Has anyone's inoperable tumour shrunk completely from chemo

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RE: Has anyone's inoperable tumour shrunk completely from chemo

by Kjohnchas on Sun Oct 19, 2014 09:19 AM

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Hi tan1980........... That is very good news,our dr always thought it would go to my husbands lungs,but hasn't.he has dozens of nodules there and some were biopsed . They are just watching them. Like your mom my husband is very positive. This month was the 2 year mark. He has been off all treatment since June 2013. He has been having issues with his kidneys ,I think from radiation,but doing well. Give your mom my best and tell her stay positive,I so BELEIVE this makes a difference.god bless ,,,,,,,,,Kathy

RE: Has anyone's inoperable tumour shrunk completely from chemo

by TBreland on Sun Oct 19, 2014 01:36 PM

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Yes, I am having the same experience. I got my tumor marker down from 82,000 to 275. Then in July my marker slowly started going up again from 275 to 1700. I just had a CT in July that sowed everything stable, so to be sure my dr ordered a PET scan in August and it also showed no new activity. My doctor said that happens sometimes. It could be any number of reasons but not to worry if the scans were normal! But again, to be on safe side we started a new regimen (because I have been on same one for a year) and my CA19-9 this week was 800. So it is coming back down.

RE: Has anyone's inoperable tumour shrunk completely from chemo

by Tan1980 on Mon Oct 20, 2014 07:32 AM

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On Oct 19, 2014 1:36 PM TBreland wrote:

Yes, I am having the same experience. I got my tumor marker down from 82,000 to 275. Then in July my marker slowly started going up again from 275 to 1700. I just had a CT in July that sowed everything stable, so to be sure my dr ordered a PET scan in August and it also showed no new activity. My doctor said that happens sometimes. It could be any number of reasons but not to worry if the scans were normal! But again, to be on safe side we started a new regimen (because I have been on same one for a year) and my CA19-9 this week was 800. So it is coming back down.
Thank you for your reply I will be pushing for a pet scan just to be sure and if she says no I will ask for an explanation to why she will not do one and if satisfied with her reasons will accept it, my mum has to have an urgent ct tomorrow morning as she had been in pain and really unwell for three days and bloods show liver failure praying her stent is just blocked and this is not a progession of cancer

RE: Has anyone's inoperable tumour shrunk completely from chemo

by maxxschiken on Fri Oct 24, 2014 04:44 PM

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I never really got an explanation from the specialist at UCSF when he first used the term "dead scar tissue" when he referred it to the tumor on the body of Annie's pancreas. It was 5cm and two lesions measuring less then 1cm each on her liver when discovered in July 2011 and by December 2011 the pancreatic tumor shrank to 4mm, lesions on the liver had vanished. Incidentally, after only three treatments of Folfirinox, her liver panels were normal. By May 2012 it could no longer be detected on the PET/CT. He declared she was NED or no evidence of new or progressive metastatic disease and no tumor recurrence and stopped the Folfirinox chemo. Annie enjoyed nearly 2 years of remission. During this time she had quarterly CT scans which were all NED and her cancer antigen tumor markers or CA19-9's remained below 38 the entire time while off chemo. I would have to say the term "dead scar tissue" is more literally understood today as we are approaching 3.5 years since diagnosis and her liver and her pancreas are both clean with no evidence of disease.
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