Scared!! Diagonosed with throat cancer

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RE: Scared!! Diagonosed with throat cancer

by caroline4 on Wed Nov 26, 2014 05:42 PM

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Well send me one to cheer me up! :) Luv'n stuff Andrea xxx

RE: Scared!! Diagonosed with throat cancer

by CheyenneMoon on Sun Nov 30, 2014 04:35 PM

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Hi Everyone Having trouble. I guess I have hit an emotional and mental wall. I have 13 more radiations and a couple more chemo's. The mucus is killing me. I am always gagging which makes the throat hurt more. I have been saying lots of prayers asking for God to help me get through these next weeks and recovery time. I don't know how much tougher it's going to get but I am really struggling right now. I am starving all the time. The feeding tube formula just isn't cutting it. My tube is to small to purée anything to put through it. If anyone has some prayers I sure could use them right about now.

RE: Scared!! Diagonosed with throat cancer

by hisprincesstoo on Sun Nov 30, 2014 04:47 PM

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Lord  we ask YOU to cover cheyanne in Your loving arms and give her peace . . Your strength, and Your love.  Surround her with Your sons and daughters to encourage her and help her in any way she needs.  But, Lord,  most of all, place Your healing hand on her throat . . and fix whatever is going on.  Thank You Jesus for giving us hope of a future.  In Jesus mighty name  amen

RE: Scared!! Diagonosed with throat cancer

by hisprincesstoo on Sun Nov 30, 2014 04:53 PM

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one more thought  can you swallow still?  I've been taking coconut oil.  I just let it melt in my mouth.  I'm sure it wouldn't hurt the saliva either . . or, give the brain a shot of  there is something here to eat??

course what do I know  :(  I begin treatment tomorrow.  39 radiation weekdays, 6 chemo weekly

RE: Scared!! Diagonosed with throat cancer

by CheyenneMoon on Sun Nov 30, 2014 05:26 PM

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On Nov 30, 2014 4:47 PM hisprincesstoo wrote:

Lord  we ask YOU to cover cheyanne in Your loving arms and give her peace . . Your strength, and Your love.  Surround her with Your sons and daughters to encourage her and help her in any way she needs.  But, Lord,  most of all, place Your healing hand on her throat . . and fix whatever is going on.  Thank You Jesus for giving us hope of a future.  In Jesus mighty name  amen

Thank you so much for your prayer. Thank you for caring. I can still swallow water, barely but I don't think I can do the coconut oil since magic mouthwash and muguard is gagging me as well. I will pray for you throughout your treatment plan. Thank you so much for your support.

RE: Scared!! Diagonosed with throat cancer

by caroline4 on Sun Nov 30, 2014 10:23 PM

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Thin smoothies with loads of ice - the thickness of milk or the equivalent of, protein/mineral powder, favour of choice - it's the only thing I can get down.

RE: Scared!! Diagonosed with throat cancer

by Sdurnell on Sun Nov 30, 2014 10:52 PM

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Cheyenne,

Why is the formula not cutting it?  Is sit that you can't get enough in, or that the amount you're told to take still leaves you hungry?  Are you tolerating it well?  Could you add an extra can, or some supplement like Ensure or Boost?  Are you losing a lot of weight?

Good idea not adding anything pureed through the tube.  I had mine get blocked with meds a few times and it's not pleasant or easy to fix.  Can you get down applesauce or ginger ale?  Those were the only things I was eating when things were really bad.

Maybe if we had a few more details someone could help you with this.

Susan

RE: Scared!! Diagonosed with throat cancer

by Dlynn1210 on Sun Nov 30, 2014 11:40 PM

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On Nov 30, 2014 4:35 PM CheyenneMoon wrote:

Hi Everyone Having trouble. I guess I have hit an emotional and mental wall. I have 13 more radiations and a couple more chemo's. The mucus is killing me. I am always gagging which makes the throat hurt more. I have been saying lots of prayers asking for God to help me get through these next weeks and recovery time. I don't know how much tougher it's going to get but I am really struggling right now. I am starving all the time. The feeding tube formula just isn't cutting it. My tube is to small to purée anything to put through it. If anyone has some prayers I sure could use them right about now.

When you say feeding tube formula, are you talking about the prescription canned formula that is made for PEG tubes?  Mine was prescribed by CTCA and delivered directly to my house with my insurance covering the cost.  It is the same consistency as Ensure and made for cancer patients.  The same company that makes Ensure makes one called Prosure, an over the counter product, also especially for cancer patients.  It has extras that cancer patients need and doesn't have what we shouldn't have.  It is generally not kept on shelves due to shelf life but Walgreens ordered it for me. 

I would not recommend taking anything else in your tube - and I wouldn't try anything by mouth other than water.  Unless you have been through it no one can imagine how thick and syrupy the mucous becomes during radiation for tonsil cancer.  I promised you I would be honest with you and unfortunately the mucous is going to get worse.  The day you have your last chemo will be as bad as it gets with side effects but the same cannot be said about radiation.  It is the "gift" that keeps giving.  For 4-8 weeks post treatment the mucous will increase.  I was unable to lie flat and had to sleep in my recliner.  I went through Kleenex like crazy wiping out my mouth.  Salt water rinses were the only thing that seemed to help acting like a scraper but didn't last long.  Cheyenne - one day this will all be behind you - that I promise you.  When you get your first all clear scan you know that everything you went through was worth it.  Will you miss food?  Of course but what is food in comparison to beating cancer.  I had to watch my family eat Thanksgiving and Christmas dinner but as I look back, I can't even tell you what they had. 

We all hit emotional and mental walls while undergoing treatment.  The one thing that got me out of the slumps was reading blogs on other sections such as the brain cancer section.  Reading about those who are fighting so valiantly for their very lives - or watching a loved one fight for their life with a terminal cancer made me realize just how fortunate I was to have a crueable cancer even if the treatment and its side effects were rough.  Everything I share is a distant memory for me now - and I live each day to the fullest appreciating being cancer free.  Beating cancer has a way of rearranging your priorities. 

Diana      

RE: Scared!! Diagonosed with throat cancer

by CheyenneMoon on Mon Dec 01, 2014 12:54 AM

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More details. I am starving! I get formula prescribed by doctor. They are supposed to up the caloric intake this week. I have never lost my appetite. I can only get about 4 cans a day of the peg tube nutrition in me a day. I have only lost 4 pounds so not bad. I can still sip water and will continue as I don't want to lose my swallowing ability. I haven't tried apple sauce or ginger ale. I have apple sauce so might try that. Just seems things kinda burn going down.

RE: Scared!! Diagonosed with throat cancer

by caroline4 on Mon Dec 01, 2014 07:26 AM

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On Nov 30, 2014 10:23 PM caroline4 wrote:

Thin smoothies with loads of ice - the thickness of milk or the equivalent of, protein/mineral powder, favour of choice - it's the only thing I can get down.
I made this comment for via mouth, not tube, asi too, wish to keep my swallowing ability as positively active as I can.
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