Scared!! Diagonosed with throat cancer

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RE: Scared!! Diagonosed with throat cancer

by gr0619064 on Thu Jan 08, 2015 10:14 AM

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Hi Diana

So good to hear from you and that you are doing well. Also what a nice person you are to be able to help others with their medical needs.

Glad I am not the only one who has not been there too. We have had two grandchildren just recently and have been busy plus the holidays.

Enjoy your cruise. We love cruising and have been to the carribean numerous times.

Gary

RE: Scared!! Diagonosed with throat cancer

by gr0619064 on Thu Jan 08, 2015 10:18 AM

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Hi Cheryl

I guess Susan and Diana are right again. I am really not cluastrophobic it was just the mask and beibg in confined space with the mask restricting my movements. I am just close to three years out and doing a lot better. Still have small salivia and taste problems but other that that I am fine . Thanks. God Bless

Gary

RE: Scared!! Diagonosed with throat cancer

by Atoms on Fri Jan 09, 2015 03:20 AM

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During my thirty radiation treatments I had to ask them to stop prepping me a few times; I just couldn't have that mask strapped over my face and bolted down. I still wish people wouldn't entertain us with pictures of their mask. The standard advice is to find a sedative that works and take it at home before you go for the treatment. Practice deep breathing and relaxation exercises. It helps a lot if they have nurses specially trained to offer additional support. They give you tips, steer you in the right direction, and give heartfelt support. The day I finished they all lined up and sang a song of congratulations while they gave me a diploma. Made me cry.

RE: Scared!! Diagonosed with throat cancer

by augustus on Fri Jan 09, 2015 04:30 PM

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Congratulations, Atoms. It is something worth celebrating. We rang a bell and read a short poem that was inscripted on it. They asked if I wanted my mask. No thank you.

 I needed ativan at the end. The last 3 or 4 radiation treatments, I used it. I was sick and just wanted everything to go as easy as possible. Made it through nearly 30 without it, but it sure helped at the end when I needed it. 

RE: Scared!! Diagonosed with throat cancer

by Dlynn1210 on Fri Jan 09, 2015 04:58 PM

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They asked if I wanted my mask and I said no. Then hubby said take it. A short time later our lower level flooded while we were on a mission trip. By the time we got home it was a moldy mess. The mask was among the casualties. As ServPro headed to the dumpster w/ them a joyful shout was heard - from me! Diana

RE: Scared!! Diagonosed with throat cancer

by Dlynn1210 on Fri Jan 09, 2015 05:08 PM

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On Jan 08, 2015 10:14 AM gr0619064 wrote:

Hi Diana

So good to hear from you and that you are doing well. Also what a nice person you are to be able to help others with their medical needs.

Glad I am not the only one who has not been there too. We have had two grandchildren just recently and have been busy plus the holidays.

Enjoy your cruise. We love cruising and have been to the carribean numerous times.

Gary

Hi Gary We love cruises and we love our mission work so realizing both thanks to Royal Caribbean is a blessing. On our way to Port Canaveral now! Yahoo! Sunday we will visit the orphanage in Haiti and then the rest of the trip is rest and relaxation touring ABC Islands. Diana

RE: Scared!! Diagonosed with throat cancer

by violet1982 on Sat Jan 10, 2015 02:05 AM

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On Oct 17, 2014 8:47 PM CheyenneMoon wrote:

On Oct 17, 2014 5:19 PM Atoms wrote:

I found the mask experience totally terrifying. I didn't stop treatment at any point but I had to ask for some time to calm down a few times. If you can't control yourself, take the drugs, I'm three years out and I still take a Klonopin occasionally when I'm really whipped. The payback is a good chance for recovery. I'm ever grateful for Dr. Kumar and his excellent management of my radiation treatment. I believe the radiation saved me from Stage IV by killing the scattered here and there cancer cells. It's worth it. Learn to deep breathe, to meditate, to pray continually, anything that lets you relax and get through the treatment.

Yes the mask totally terrified me. I have had two panic attacks since then but have come to the conclusion that it being caused by the Marinol. I went from one a day to two a day and I guess it just gets me overly paranoid. Cutting that back to a one a day pill. They have given me a prescription for Ativan so I will take one of them before I leave for my first treatment and plan on bringing the bottle with me. I appreciate your words of encouragement and support so much. Thank you and God bless you.

Hi cheyennemoon, My mom was diagnosed with stage 4 HPV+ base tongue cancer and she had major major panic attacks over the mask the first week. Her oncologist had to put her on xanax to get through it and when she did chemo gave her ativan. You will get use to it. She did and is 5 months out from 40 radiation treatments and 6 chemo

RE: Scared!! Diagonosed with throat cancer

by gr0619064 on Mon Jan 12, 2015 10:06 AM

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Hi Diana

We love Royal Carribean too. Especially the Allure. It is so nice that you do volunteer work  in the islands. God bless

gary

RE: Scared!! Diagonosed with throat cancer

by gr0619064 on Mon Jan 12, 2015 10:09 AM

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Hi Violet

I hab satge 4B BOT too. Your mom did 40 treatments? WOW!! most of us did 35 and 6 chemo God Bless her.We all had same problems with the mask

Gary

RE: Scared!! Diagonosed with throat cancer

by Dsunryz on Tue Jan 13, 2015 06:11 AM

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Hi Gary, 

I have stage IVa tonsil cancer HPV related.  I am on my 19 radiation tx (out of 37) and finished my second round of chemo (cisplatin) out of three rounds. My rounds are given 3 days in a row every 21 days. My question to you is how was your chemo administered and was it cisplatin? 

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