Scared!! Diagonosed with throat cancer

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RE: Scared!! Diagonosed with throat cancer

by mtkjohn1 on Sun Apr 26, 2015 04:49 AM

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Hope you are doing well? Three months out getting time for that all important first cat scan test ?? Good luck and prayers I am three years out All is Well ( Manageable ????)

RE: Scared!! Diagonosed with throat cancer

by TommiColley on Wed Apr 29, 2015 06:55 AM

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I go for mine on the 12th and I am scared the same will happen to me too.  I pray it gets easier for you.  I just don't think I can stand that on my face and be able to breathe.  Please pray for me as well.  Wish I could help you.

RE: Scared!! Diagonosed with throat cancer

by gr0619064 on Wed Apr 29, 2015 08:56 AM

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Please remember the mask is only on for a few minutes. I know how horrible it was.

gary

RE: Scared!! Diagonosed with throat cancer

by Atoms on Wed Apr 29, 2015 04:25 PM

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There are good drugs to take care of the panic attacks, which are natural. Speak with the nurses who will be in the area when you are there. They can be very comforting and know lots of techniques for getting through the hard parts.

RE: Scared!! Diagonosed with throat cancer

by Dlynn1210 on Wed Apr 29, 2015 11:05 PM

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Hi The idea of the mask was the worst part prior to treatment because I am severely claustrophobic - and me fears were justified when I didn't handle my first treatment well - at all. My oncologist prescribed Ativan one hour before each treatment which was a huge help. Also, I will say once again to those who have not started treatment, check out what kind of radiation you are having. TOMO is very successful in salvaging your salivary glands where those who had IMRT do not have good salivary function post treatment. It was a tough decision before beginning treatment because it meant traveling and extra expenses for lodging to go where I could have TOMO radiation but as I look back, it was by far the smartest decision long term I could have made. The term "cook" can be daunting but while our after effects continue to worsen for 6-8 weeks post treatment, you will make it through as so many here have done. We are all here whenever you have any questions. Saying a prayer as always for everyone here. Diana

RE: Scared!! Diagonosed with throat cancer

by Shereeclint on Thu Apr 30, 2015 01:21 AM

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On Apr 29, 2015 11:05 PM Dlynn1210 wrote:

Hi The idea of the mask was the worst part prior to treatment because I am severely claustrophobic - and me fears were justified when I didn't handle my first treatment well - at all. My oncologist prescribed Ativan one hour before each treatment which was a huge help. Also, I will say once again to those who have not started treatment, check out what kind of radiation you are having. TOMO is very successful in salvaging your salivary glands where those who had IMRT do not have good salivary function post treatment. It was a tough decision before beginning treatment because it meant traveling and extra expenses for lodging to go where I could have TOMO radiation but as I look back, it was by far the smartest decision long term I could have made. The term "cook" can be daunting but while our after effects continue to worsen for 6-8 weeks post treatment, you will make it through as so many here have done. We are all here whenever you have any questions. Saying a prayer as always for everyone here. Diana

Please listen to Diana. She hates cancer and loves you. We are blessed to have her here.

RE: Scared!! Diagonosed with throat cancer

by Sdurnell on Thu Apr 30, 2015 06:26 AM

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Tommi,

I am claustrophobic and didn't find the mask bad at all, especially after the first week or two when I could open both eyes.  I have since found out that you can ask them to cut holes for both eyes if that's a problem.  It's good to be able to see.

The mask will not affect your breathing, as it only covers the head and chest.  But you will not be able to move.  You can do a lot to help yourself by remembering that it's very important to your treatment and survival that you remain completely motionless--just think how hard that would be without the mask!  

Be sure to let the technicians and whoever else is part of your team know if you are anxious or frightened.  They will be able to explain things to you to help you feel more comfortable, and if you need something to calm you that will not be a problem.  Many people do.  The folks there are on your side and will do everything they can to help you through this.

One thing my doctor suggested was to visualize the machine doing away with the cancer cells during radiation treatments.  I found that a useful way to spend my time while undergoing radiation.  I visualized cartoonish cancer cells being hunted down and destroyed by the "ray guns" of the machine.  

Best of luck to you!

Susan

RE: Scared!! Diagonosed with throat cancer

by kellym83 on Thu Apr 30, 2015 11:55 PM

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Hi CheyenneMoon,

My husband was diagnosed with tonsil caner hpv positive. He went through 7 wks of radiation. He too did not care for the mask but did well through the treatments the first 3-4 weeks were not too bad. The last 3 weeks and the 4 weeks after radiation were the worst! Will you be getting a feeding tube? My husband was adament on not getting one. Let me tell you he had a very rough time. He has not eaten solid food in months. He is going into his 4th week out of radiation and now tells me he wished he would have gotten the PEG tube. Also was wondering what your symptoms were before yo were diagnosed.

RE: Scared!! Diagonosed with throat cancer

by JEYEREH on Mon Mar 07, 2016 01:48 AM

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Hi---This is brand new for us.  Husband diagnosed with throat cancer and the HPV.  We're just trying to put one foot in front of the other.  Saw Oncologist on Friday March 4, 2016.  He said stage 4 cancer in left tonsil and lymph nodes.  Has appt this Wednesday with ENT doctor who wants to take tonsils and lymp nodes out.  The oncologist wants chemp and radiation but ENT wants tonsils out.  What path are we suspossed to follow???  One says one things, the other says another thing!!!!  I know this is the start of a very, very long journey. We don't know anything for sure except for throat cancer stage 4. Any advice would be appreciated. thank You!!!

RE: Scared!! Diagonosed with throat cancer

by Cardoza33 on Mon Mar 07, 2016 04:11 AM

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Hello,

I am sorry you are going through this.  I was diagnosed with the same as your husband in November.  I am 5 weeks out of radiation and chemo and dealing with all the issues you will learn about it due time.  Regarding you questions, this is a choice that most people face.  I was told by the ENT to do surgery and the onc/rad to do that first.  I was told that even if I had surgery I would still have radiation and chemo.  If I did radiation and chemo first I may avoid surgery all together. I chose to do that. I will have a scan in May and see what happens.  I was not able to get a real benefit from doing one way over the other to be honest.  I struggled with this decision for a while.  I ended up just weighing all the information and deciding what I thought was best for me.  In the end, you need to feel comfortable with your treatment people and trust in your decision.  Good luck.  

Tony

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