Scared!! Diagonosed with throat cancer

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RE: Scared!! Diagonosed with throat cancer

by Shereeclint on Wed Oct 22, 2014 06:22 PM

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On Oct 16, 2014 4:41 PM CheyenneMoon wrote:

Hi Everyone,  I have been diagnosed with throat cancer related to the HPV 16 virus. I have run the gamment of emotions but yesterday took the cake. I went in for my simulation....where the make your mask...total panic attack. Now I am so scared I won't be able to go through with treatment. I felt like I couldnt breath. They gave me adivan to get through the simulation part. Has anyone else had such and experience and if so how did you handle going in for daily radiation treatments. Please....any advice would be greatly appreciated.  I am so afraid I can't get past the panic.

Thanks

Hi Cheyenne,

I have just one request. Please look up Dlynn1210 and send her a message. Diana is a 7 year throat cancer survivor. More importantly, she has a incredible heart for folks like you. When my brother was diagnosed over a year ago her remarks were invaluable, soothing, and trustworthy.

I pray God lays His healing hand on you. "I will never leave you or forsake you", so said Our Lord Jesus Christ. I will pray for you as well.

Clint  

RE: Scared!! Diagonosed with throat cancer

by lkennemer on Thu Oct 23, 2014 12:08 AM

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On Oct 16, 2014 4:41 PM CheyenneMoon wrote:

Hi Everyone,  I have been diagnosed with throat cancer related to the HPV 16 virus. I have run the gamment of emotions but yesterday took the cake. I went in for my simulation....where the make your mask...total panic attack. Now I am so scared I won't be able to go through with treatment. I felt like I couldnt breath. They gave me adivan to get through the simulation part. Has anyone else had such and experience and if so how did you handle going in for daily radiation treatments. Please....any advice would be greatly appreciated.  I am so afraid I can't get past the panic.

Thanks

Hi Cheyenne,  The unknown can be a booger. And the first experiences with the mask can certainly be trying.  However, I seemed to make it work for me by using the logic that many many people had been down the same road that I was facing  and that the fear of being trapped was in my head only. And that no one had ever been harmed by the mask. It never got fun but it surely got to be more comfortable. Please take strength in that and try to relax. It really does work.  My very best to you and I will pray for you.  Now, go get em!! Lee in Texas.

RE: Scared!! Diagonosed with throat cancer

by ebennet on Thu Oct 23, 2014 12:34 AM

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OMG-- I just read your post. The same thing happened to my husband 5 weeks ago. He's as tough as nails but had a panic attack during his simulation and it had to be cancelled. He was so worried. I've never seem him like that. Part of the problem was that he's a mouth breather and with the large mouthpiece inserted, he didn't feel he could breathe. Long story short -- he got through it and it has become progressively easier. He used Ativan the first treatment although he says he didn't feel anything from it. He was also able to persuade the tech not to snap all the snaps near his neck, which made him feel less restricted. He has 4 treatments left at MD Anderson. I'm sure he'd be happy to talk to you to tell you how he got over this hurdle. If interested, email me at alburli@aol.com and I'll put you in touch. Good luck. You will get through this. Everyone does and this issue is not uncommon so don't feel bad.

RE: Scared!! Diagonosed with throat cancer

by Sdurnell on Thu Oct 23, 2014 04:10 AM

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Cheyenne,

The mask is not a comfortable thing, but it can be tolerable.  I thought I'd hate mine because I get claustrophobic, but I could see through it (with one eye at first, and later, with both) so it's really just the confinement that bothers people.  I was just able to relax and remember to be grateful for the mask because without it the radiation would not be targeted correctly so my treatment would not be so successful.

My doctor suggested trying to visualize the radiation getting rid of cancer cells, and that occupied some of the time.  Music might also help.

Best of luck to you.

Susan

RE: Scared!! Diagonosed with throat cancer

by Lynnfighting on Thu Oct 23, 2014 01:44 PM

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Hello Cheyenne,

I had throat cancer 2 years ago.I also had panic attacks regarding the mask.I took adivain and it helped.I also listened to music.I don't think  people can really understand that feeling when when they place the mask on you and and then the board it is horrible to go thru.The nurses I had were wonderful they cut and adjusted it many times to make it easier. I had 36 treatments and came thru it my heart goes out to you. Have faith ...prayer is my comfort...

Lynn

RE: Scared!! Diagonosed with throat cancer

by CheyenneMoon on Thu Oct 23, 2014 06:56 PM

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Thank you Kathy. I have been given some Ativan to take before the radiation which I start on October 27. I know I will make it through and everyone has been so supportive. I was panicking due to the Marinol I was given. Since I stopped taking it and it is almost all out of my system I am so much better. That is not to say that I am not scared or anxious, I am. I have 36 treatments and then will be done. I know it is not gonna be easy but I guess nothing worth doing ever is. Thank you so much for your words and encouragement. Praying for your continued healing.

RE: Scared!! Diagonosed with throat cancer

by CheyenneMoon on Thu Oct 23, 2014 06:59 PM

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Clint, thank you so much I will look her up. I have found so many of you have incredible hearts.  Thank you for your prayers.

RE: Scared!! Diagonosed with throat cancer

by hisprincesstoo on Thu Oct 23, 2014 07:14 PM

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I'm new here and right behind you cheyenne.  I'm at the dentist part to see if any teeth need to bepulled.  then, to the mask.  Since first hearing about it . . I've been terrified of how I will make it thru this one.  Also praying for you, and others.  It is a comfort to meet finally ppl who are facing these same goliathes . . 

RE: Scared!! Diagonosed with throat cancer

by CheyenneMoon on Thu Oct 23, 2014 07:32 PM

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On Oct 23, 2014 7:14 PM hisprincesstoo wrote:

I'm new here and right behind you cheyenne.  I'm at the dentist part to see if any teeth need to bepulled.  then, to the mask.  Since first hearing about it . . I've been terrified of how I will make it thru this one.  Also praying for you, and others.  It is a comfort to meet finally ppl who are facing these same goliathes . . 

Hey. I know what I wrote probably didn't help. You will get through the mask even if they have to give you something to relax you. I had such a severe panic attack because of some medicine they were giving me. Since it has left my system I am not so scared. I do have to get past the fear now of the panic i felt but I know in my heart I will be find. If you like you can friend me and we can travel this road together. I start my radiation treatments on Oct 27 so I am not that far ahead of you. I just want to do my 36 days and start the road to the rest of my life. Hang in there and I am praying for you as well

RE: Scared!! Diagonosed with throat cancer

by Mike217 on Thu Oct 23, 2014 07:44 PM

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On Oct 23, 2014 7:32 PM CheyenneMoon wrote:

On Oct 23, 2014 7:14 PM hisprincesstoo wrote:

I'm new here and right behind you cheyenne.  I'm at the dentist part to see if any teeth need to bepulled.  then, to the mask.  Since first hearing about it . . I've been terrified of how I will make it thru this one.  Also praying for you, and others.  It is a comfort to meet finally ppl who are facing these same goliathes . . 

Hey. I know what I wrote probably didn't help. You will get through the mask even if they have to give you something to relax you. I had such a severe panic attack because of some medicine they were giving me. Since it has left my system I am not so scared. I do have to get past the fear now of the panic i felt but I know in my heart I will be find. If you like you can friend me and we can travel this road together. I start my radiation treatments on Oct 27 so I am not that far ahead of you. I just want to do my 36 days and start the road to the rest of my life. Hang in there and I am praying for you as well

I can identify with the mask fear. I have not gone for the simulation yet but i am terrified it keeps me up at night. I am tolerant to Ativan so I am so scared I don't know what to do. I already jumped out of a CT scan. the Ativan did not help I need something stronger my anxiety is so high. I feel your pain for sure. Thank you for telling me about the Marinol I will watch out for that one. I struglle with panic attacks every day it is very difficult. Hang in there! We can all do this together we will get throught it.

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