Scared!! Diagonosed with throat cancer

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RE: Scared!! Diagonosed with throat cancer

by Dsunryz on Thu Mar 10, 2016 06:03 AM

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On Mar 09, 2016 2:51 PM JEYEREH wrote:

On Mar 08, 2016 5:06 AM Dsunryz wrote:

On Mar 07, 2016 8:25 PM JEYEREH wrote:

Yes, my husband started with a small lump on the side of his neck and his primary gave him amoxiliccin for the 1st 30 days.  We have a appointment with the ENT for tomorrow at 4:30.  The cancer doctor is in agreement with the ENT for him to take out the tonsils and the lymph nodes as that is where the PET scan showed the cancer was. The Cancer doctor did say that the cancer was contained there.  I totally agree that you can't have a testimoney without a test.  God didn't take us into this without providing a way to get out of this.  My husband told his employer this afternoon and the boss was a little snarly and said "Well I paid you for the 4 days you were in Intensive Care"!!!  With everything that is going on and then to worry about the job situation is over whelming.  My husbands' employer only employs about 12 people so if he were to let my husband go we would not have the benefit of being offered COBRA insurance.  The Bible says that his Grace is sufficient for us.  I am so glad I came across this site so I can help my husband thru this difficult time.  Are any of you aware of the possible down time from having this sort of surgery.  Thank You.  Have a Great Day!!

Hello,

I am 13 months post treatment for stage 4 tonsil cancer from HPV. I had a left radical neck dissection (removed my tonsil and 41 lymphnodes ) before treatment. The incision looked worse than the pain. However, the throat was painful upon swallowing. The pain lasted 10 days exactly, even ice cream was painful to eat. 

I did have 38 radiation treatments and 3 rounds of chemo after surgery. However, because of the surgery I only needed radiation on the left at a lower dose and no radiation on the right. That was the best news ever. 

If there are any questions or anything I can help witb, don't hesitate to ask.  

Stay strong!

Dawn 

Dawn---if you had to do it all over again would you do the chemo and the radiation first?  Thank You!!!  Husband has to have a triple endoscopy done on Monday, both of us are on triple overload of information as well as anxiety and stress. Thank you for answering.

Jeyereh,

I would do surgery first. Because I had the surgery the radiation was done at a lower dose and only on one side. I feel because if this my side effects were not as bad, and they were bad. I didn't need a feeding tube because I was able to swallow without any pain. Everyone handles things differently, I'm glad I did things the way I did. I hope this helps you and umy our husband. Dawn 

RE: Scared!! Diagonosed with throat cancer

by Shereeclint on Thu Mar 10, 2016 02:49 PM

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On Mar 09, 2016 4:58 PM JEYEREH wrote:

On Mar 09, 2016 4:14 PM hisprincesstoo wrote:

yes, the waiting is horrible.  When I got to my decision point, then, it seemed like it took forever to get it moving.  before I let them know I was still making my decision, they were moving at record speed!  

I got to the point that I quit looking for information, and just released it.  The overwhelm was getting tooo much to handle.  I concentrated then on tasks, and how I was going to survive.  One of the things I worked on then was a CD of worship music. I picked out relaxing healing songs to listen to so I could keep calm.  Today even I still listen to it.  I also did my living will n stuff including a power of attorney for my son who became my primary caregiver, and involved in all decisions.  Perhaps you can discuss such things so you will be that primary caregiver.  You will also need a support team put together to help you thru as the primary caregiver.

Lord be with you both.

Thank you for answering so quickly.  My husband never has and probably never will discuss the (bad stuff), (death-funeral-burial) things like that.  I'm not sure if that is what you are talking about.  Through the years when I broach the subject he says he doesn't want to discuss it.  I bought our cemetary plots years ago and he knows about that.  I guess some people just don't want to discuss it.  It puts a heavy burden on me for sure.  He has adult children from another marriage who add many, many gray hairs to my hear.  Although we have been married for 15 years I am treated and condemned as the wicked stepmother.  Thankfully, the daughter lives out of state and has her own family.  Young people these days just don't get it.  He has a daughter and a son and they think they know everything, all young people think they know more than the doctors and they question me in every way, they have made themselves comfortable with disrespecting me.  Perhaps things will change I'm not sure.  I will be the primary care giver of my husband and do anything and everything to make sure he is ok.  We are people of faith and I will lean on that every minute of our walk.  God brought us to this and God will walk with us all the way.  My husband looks to me for EVERYTHING, the appointments, the prescriptions, the correspondence, everything.  I'm praying that the Lord keep my mouth shut when it comes to his kids.  Perhaps this will bring everyone together.  I don't work, my husband afforded me the luxury of not having to work, so like just the other day, one family member asked him if I was going to go back to work.  I think they need to concetrate on supporting him emotionally instead of trying to pick me apart.  This is going to become very hard for both of us.

Good Morning,

As I am sure you would now agree, this site is graced by some awfully giving folks. Many are an inspiration to me. I am writing today to address another very important issue, that being the loneliness of being the caregiver.

When my brother was diagnosed with stage 4 throat cancer, his wife handled it with a strategy which I would  describe as   ”Denial has worked well for me thus far.” The doctors initially were giving him a 50/50 chance of survival for five (5) years. She ignored it, which put additional strain on my brother.

Stan and I reasoned that her reluctance to face the facts stemmed from her lack of any faith in GOD. You evidently have a husband who, for whatever reason, shuns any overtures regarding the hereafter. You might say that he has adopted a similar strategy.

Nevertheless, this is going to put additional strain on you, especially in light of the animosity which you already feel from his grown kids. I do not envy your position, for what lies ahead is not for the faint of heart. Your faith will be tested.

To assist you I would like to forward some information which has proved invaluable to me. In fact, it came in handy last week when I found myself at the bedside of a close friend’s mother whose health took a sudden turn for the worse.

I am fortunate to have a close friend who has been a pastor for over 40 years, the last 10 spent as a hospice Chaplin. He has run into family issues such as what you are facing innumerable times. To assist us, he prepared a series for a group of believers which he entitled “7 things everyone should know before they die.”

I recorded his remarks and have his outline. It was very well done and I sense that the HOLY SPIRIT actually spoke through Gary. If it something which you think you might enjoy, please feel free to private message me with your mailing address and I will forward a small thumb drive with his remarks and a copy of the written outline. It is entirely biblically based and is laced with his personal experiences which I know you will appreciate.

I pray for Jesus to make His presence known to you in this very difficult time. He has told us that He will never leave us or forsake us, however that is easy to believe until a real tragedy hits. Gary talks about that as well.

Clint

 

   

 

     

 

RE: Scared!! Diagonosed with throat cancer

by CheyenneMoon on Fri Mar 11, 2016 03:30 PM

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I have a question? Does any one suffer from muscular pain on their radiated side?

RE: Scared!! Diagonosed with throat cancer

by SULLIVAN2346 on Fri Mar 11, 2016 05:44 PM

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Having a triple endo next week.  Have Stage IV throat cancer.  Exactly what should I be doing???  What questions do I ask the ENT after the procedure.  Any advice would be helpful.  thanks!!!!  Going to see the Radiation Oncologist soon.  Med Oncologist said chemo/rad but ENT wants endo first?  Any suggestions????

RE: Scared!! Diagonosed with throat cancer

by susan1206 on Sat Mar 12, 2016 02:43 AM

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I worked with my husbands oncologist and we gave him a mix of oxycodene (5ml) and 1 or 2 ativans .5mg each morning before radiation and this helped him through.  Had 33 treatments under the mask and is now done.  Hope this can help you too.

RE: Scared!! Diagonosed with throat cancer

by butler on Sat Mar 12, 2016 10:29 PM

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Yes I do have pain but on both sides in shoulders. PT isn't working so I'm paying for a massage. Can't take anything for pain and disability doesn't pay for acupuncture.

RE: Scared!! Diagonosed with throat cancer

by pressure on Sun Mar 13, 2016 02:40 AM

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I have some kind of HPV

how do I find out what kind of HPV i have? I also had a tumor removed 4 years ago and now my throat hurts

RE: Scared!! Diagonosed with throat cancer

by CheyenneMoon on Sun Mar 13, 2016 06:43 PM

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On Mar 12, 2016 10:29 PM butler wrote:

Yes I do have pain but on both sides in shoulders. PT isn't working so I'm paying for a massage. Can't take anything for pain and disability doesn't pay for acupuncture.
Ok thank you. I am sorry you are in pain as well but I find comfort in knowing I am not the only one. I have done apt, massage, and accupuncture. So far no relief. I will let you know if I find some method of relief. Cheyenne

RE: Scared!! Diagonosed with throat cancer

by butler on Mon Mar 14, 2016 01:30 PM

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My Mom sent me some All Day Energy Green powder by Institute for Vibrant Living, and I've noticed less cramping. My condition is most likely different from yours, my liver/pancreas are compromised and it's difficult for my body to recognize normal nutrition. My best to you, Sara in MA

RE: Scared!! Diagonosed with throat cancer

by cherdr on Fri Apr 29, 2016 01:56 PM

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I am very claustrophobic and also had a bad experience but after going through two different sessions of radiation with a mask I learned to handle it. the session itself was very short so that helped,   they also cut some holes in the front of the mask around the eyes and nose and mouth and that definetely helped.  I just talked to myself each time and it worked, the session was around 15 minutes so I could get through it. when they made the mask they also helped and talked me through it.  trust in God and have him help he will get you through it. 

Cheryl

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