Scared!! Diagonosed with throat cancer

230 Posts | Page(s): Prev 12...3 4 5 6 7 ...2223 Next 

RE: Scared!! Diagonosed with throat cancer

by CheyenneMoon on Sat Oct 25, 2014 12:45 AM

Quote | Reply

On Oct 23, 2014 4:10 AM Sdurnell wrote:

Cheyenne,

The mask is not a comfortable thing, but it can be tolerable.  I thought I'd hate mine because I get claustrophobic, but I could see through it (with one eye at first, and later, with both) so it's really just the confinement that bothers people.  I was just able to relax and remember to be grateful for the mask because without it the radiation would not be targeted correctly so my treatment would not be so successful.

My doctor suggested trying to visualize the radiation getting rid of cancer cells, and that occupied some of the time.  Music might also help.

Best of luck to you.

Susan

i will learn to tolerate it. I have to look at it as my friend and savior for getting me the treatment to the right place. I have decided to visulize the mask as god holding me tight. I made it through the filming today with the Ativan to help. I know it will get easier with time. I say Psalm 23 and it seems to help.

RE: Scared!! Diagonosed with throat cancer

by Dlynn1210 on Sat Oct 25, 2014 01:17 AM

Quote | Reply

You're doing great - and your outlook will be a big plus in the days ahead. 

Diana

RE: Scared!! Diagonosed with throat cancer

by CheyenneMoon on Sat Oct 25, 2014 01:39 PM

Quote | Reply

Well crap! Was looking at my insurance claims and they have paid nothing. I can't afford treatment without insurance!!

RE: Scared!! Diagonosed with throat cancer

by CheyenneMoon on Sat Oct 25, 2014 01:55 PM

Quote | Reply

It says that they didn't pay the claim cause I am eligible for medicare? I am only 51. I don't get it.

RE: Scared!! Diagonosed with throat cancer

by Atoms on Sat Oct 25, 2014 05:13 PM

Quote | Reply

The mask was scary for me. A couple of times out of thirty treatments I had to sit and calm down before proceeding.

Take the anti-anxiety drugs before you go. Ask the technicians to cut out holes for your eyes and mouth; that often makes it less scary. And remember, we've all been through it, so it must be doable. We're here to talk when you have doubts. Blessings on you.

RE: Scared!! Diagonosed with throat cancer

by Dlynn1210 on Sat Oct 25, 2014 07:47 PM

Quote | Reply

Insurance companies will delay payment as long as they can because it is money in their pockets longer.  I am so sorry you have to go through this at a time you really don't need it.  Call your insurance company and set them straight!!!  I have fought with them over and over just on medications that at first they wouldn't approve - but did eventually.  Actually, your age will be easy to dispute since that is the only excuse they are giving for not paying. 

Diana

RE: Scared!! Diagonosed with throat cancer

by Dlynn1210 on Sat Oct 25, 2014 07:51 PM

Quote | Reply

You're doing great - do not let this little glitch get you down!!!  When an insurance company refuses a claim because 'they' don't believe the cost is justified or that the procedure is warranted, then you have some explaining to do.  Eligibility for Medicare is much simpler to prove - just pull out your birth certificate and/or driver's license. 

Diana

RE: Scared!! Diagonosed with throat cancer

by augustus on Sun Oct 26, 2014 03:55 PM

Quote | Reply

What Diana said! Also the hospital has helped us a lot with these battles. They keep submitting the bills and we have pretty much been able to stay out of it. You might check with your hospital billng department tomorrow and see if they can deal with it for you. The billing will get resolved one way or the other with the insurance company, as the hospital is obviously motivated to see it gets paid. 

RE: Scared!! Diagonosed with throat cancer

by Dlynn1210 on Sun Oct 26, 2014 07:08 PM

Quote | Reply

CTCA was outstanding with submitting and following through but still payment for a scan was denied.  I didn't find out about it for several years - and it was over $6,000.  If I had addressed it at the time we might have found out why they denied it but I left everything to CTCA. 

When my husband battled cancer I had to follow through on every bill because our local hospital did not get involved - they sent the bill but when not paid, they called us.  I guess it is up to the individual hospitals as to how involved they get with insurance companies.  

Two years ago I kept receiving a bill from CTCA for my annual checkup.  When I called my insurance company I was told that CTCA used the wrong code which I believed was just an excuse to delay paying!  Good to double check with them when you feel up to it. 

Diana

RE: Scared!! Diagonosed with throat cancer

by Lynnfighting on Sun Oct 26, 2014 08:18 PM

Quote | Reply

On Oct 25, 2014 1:39 PM CheyenneMoon wrote:

Well crap! Was looking at my insurance claims and they have paid nothing. I can't afford treatment without insurance!!

Hi Cheyenne.

I don't want to scare you but no one is talking about what will happen or what to expect during treatment or afterwards.I wish I was told.My Dr. who saved my life told me I am going to bring you to the brink of death have you look over and pull you back.At the time I couldn't fathom what he was saying.

I had 36 treatments stage 3 the cancer grew into my voicebox there was a chance I could loose my voice box and there still is. I was diagnosed 3/8/2012. Most people loose around 20 lbs I was thin to begin with we spoke about the feeding tube from the beginning I refused it thruout treatment.Someti mes you give up eating and become dependant on it .I love to cook and eat I didn't want to take that chance. I used Aquafor on my neck every day after radiation with a soft material wrapped around my throat. The skin will burn and peel and can often look like hide afterwards. So please take care of your skin.

Very quickly all food and drink tasted like metal I couldn't ger thru a bottle of water a day.It was very hard to eat anything even broth.By my 20th treatment exhaustion set in ,By week 5 it really hit me .I am a very strong personality but I felt like giving up.My Dr.'s and nurses and family got me thru it and alot of prayer..

After treatment is when it hit me I couldn't eat I ended up in the hospital with intrevinous nutrition. When I came home I had A port in my arm and a nurse came daily the nutrition bags were delivered to my home weekly.I would sleep most of the day. Take care of your mouth I have dry mouth because the radiation zapped my saliva glands.Oral health  is very  important .I have hypothyroidism radiation got that also .I have lymphdemia as well. I did hypoberic chamber for 40 days and that helped the lymphdemia..

For me the battle was after radiation the Dr's dont tell you all of this because it may or not happen to you and it is too much to take in at the time.Afterw ards nutrition is the way to build yourself back up I used a mass gainer from GNC to help gain weight back it took over a year. They tell you ...you will have a new normal and it will be different but you get thru it and adjust..

Now let me tell you the good stuff my family sisters,daughters and grandchildren treat each other differently.We express our love for each other .We talk about everything.I appreciate everything I have the little things like the wind on my face.My faith in God and prayer has never been stronger.I have met wonderful people in my journey and continue to.

Best

Lynn

230 Posts | Page(s): Prev 12...3 4 5 6 7 ...2223 Next 
Subscribe to this message board discussion

Latest Messages

View More

We care about your feedback. Let us know how we can improve your CancerCompass experience.