Optimal levels

9 Posts | Page(s): 1 

Optimal levels

by missbetsy13 on Thu Oct 23, 2014 08:47 PM

Quote | Reply

What are the optimal levels for someone who is 2 years recovered from TT, no RAI and low risk? I feel like I swing from hypo to hyper, but my test results usually reflect the opposite. Any help?

RE: Optimal levels

by butterfly501 on Fri Oct 24, 2014 06:03 AM

Quote | Reply

directly from the american thyroid association guidelines:

"In patients who have not undergone remnant ablation who are clinically free of disease and have undetectable suppressed serum Tg and normal neck US, the serum TSH may be allowed to rise to the low normal range (0.3–2 mU/L)."

You may want to examine why your TSH is fluctuating.  It should be pretty stable when the thryoid hormone is taken correctly and consistently.

RE: Optimal levels

by missbetsy13 on Fri Oct 24, 2014 02:24 PM

Quote | Reply

Thanks for your response!

I am really good at taking my medicine at the same time every day and waiting at least an hour before eating.

Any ideas on why it would be flucuating even if I am doing these things?

RE: Optimal levels

by butterfly501 on Fri Oct 24, 2014 05:12 PM

Quote | Reply

What has your TSH been?

RE: Optimal levels

by missbetsy13 on Fri Oct 24, 2014 06:25 PM

Quote | Reply

I don't have my past records with me, but the most current on is 1.550 with a range of .400-5.140.

I thought my past ones have always been fine, so when I expressed that I was surprised by the change, the nurse told me it has flucuated before and has been as high as 3. I don't remember them ever discussing it with me. I have been on 88 tirosint since January.

The only change I have made in the last 3 months is I went from no cytomel, to 5 mcg, to 7.5mcg every other day, and I just asked to stop because I was feeling like I was hyper.

But... my Free T3 was at 1.97 in a range of 2.18-3.98. I feel better without it though but now I am afraid of not being on it and gaining weight or getting depressed.

RE: Optimal levels

by missbetsy13 on Fri Oct 24, 2014 06:26 PM

Quote | Reply

Oh, BTW, my dr likes to keep my TSH in the very low end of the reccomendation.

RE: Optimal levels

by butterfly501 on Fri Oct 24, 2014 07:00 PM

Quote | Reply

TSH suppression for thyroid cancer management should be no higher than 2.0. 

You may want to request your TSH history so you can see for yourself what the level have been over time. 

From my experience, I have to wait a solid hour before coffee (and anything else).  I went through a period where I got very relaxed in coffee consumption after thyroid hormone and my TSH was up around 4.  By simply waiting an hour, I was able to drop my TSH down to .8, no med adjustment needed.  For me, timing really does make a difference.

RE: Optimal levels

by missbetsy13 on Fri Oct 24, 2014 07:56 PM

Quote | Reply

I'll be more cautious, I am also going to try taking it with vitmain C to see if it helps at all since I am going off the cytomel.

Thanks!

RE: Optimal levels

by Mrs.M. on Wed Dec 17, 2014 04:22 PM

Quote | Reply

I get up every morning between 3-4 am (3 elderly bladders, so a parade at those hours is a definite happening. I'm so used to it I don't even think about it anymore). That's when I take mine (200 mcg now after TT Oct '14). Coffee is a MUST when I get up at 5, so this works out for me. My mother in law (a feisty 86) prefers to lie in, and really can't swallow safely in bed, so we do hers at night before bedtime. I was surprised to learn here and not at the pharmacy or doctor's office that coffee has such a dramatic effect on the level absorbed.

Does anyone take their synthroid at bedtime? Love to hear from you!

9 Posts | Page(s): 1 
Subscribe to this message board discussion

Latest Messages

View More

We care about your feedback. Let us know how we can improve your CancerCompass experience.