Salivary Gland Tumour

6 Posts | Page(s): 1 

Salivary Gland Tumour

by DaveSymes on Sun Oct 26, 2014 11:29 AM

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Hello,

As I write this I am 3 weeks into a six week course of Radiotherapy. I was diagnosed with Salivary Gland Cancer.

My name is Dave and I am 42yrs old, living on Portland, Dorset, United Kingdom.

I have kept a video/written diary of my journey so far.

http://davidsymesmybattle.weebly.com/

I have really enjoyed reading some of the other testimonies on this site. I hope that my diary will help others.

Thanks

Dave  

RE: Salivary Gland Tumour

by Dylan2004 on Tue Jan 17, 2017 09:10 PM

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Hi Dave,

My name is Dawn.  I also have a tumour on a salivary gland.  I have a PET 1/20 then surgery to remove tumour.  Did you have sirgery?

RE: Salivary Gland Tumour

by Blazin on Fri Mar 17, 2017 12:49 PM

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Dawn, 

Are you still going through treatment.  I assume it's over now.  I went through this treatment fall of 2014.  If you would like to share notes or need any support from someone who has been through the same thing.  Let me know.

JT

RE: Salivary Gland Tumour

by wattsupNow on Wed Apr 01, 2020 09:13 PM

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Hi Dave,

I completed surgery to remove my Parotid gland on my left side on 2/21/2020. I am still waiting to get the facial control to back, the Dr. said it would return.

I met with my radiation oncologist a couple days ago. Boy oh boy, I'm not sure I am onboard with this radiation therapy. After listening for 30 minutes about the side effects and additional creams, mouth washes, and possible medications I'll need, not to mention the down time and other losses of senses, I'm very conflicted.

I am waiting to hear from my ENT about all the particulars about the surgery. I dont know if there were clear margins or how involved the cancer was with facial nerves or how much may have been left behind.

I'm really looking for a reason to go through the radiation treatment and all its problems and possible long term negative effects. Has anyone found a different less destructive treatment for the squamous cell cancer.

I do realize reoccurance is an obvious issue without radiation but it is also a possibility with radiation treatment. I am not afraid of the pain, I am concerned about the damage the radiation treatment will cause, both short term and long term, and that might be the the bigger problem, I'm 66. I was hoping for another 15 to 20 years. I am  pretty healthy and active now.

My arteries and Thyroid gland are fine but may be damaged with treatment as might my hearing and sight.  Who knows what else may be at risk in time.

Sorry to sound so down or negative but 4 doctors failed in their due diligence to prevent this cancer. I'm not sure why I should listen to them now.

Thanks,

Rob

RE: Salivary Gland Tumour

by Blazin on Sat Apr 04, 2020 09:28 PM

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So do you still need some advice about the side affects of the radiation treatment?  I can tell you about all of them because I went through radiation in 2014.  There have been many side affects.  Let me know if you would like to me to share.  

RE: Salivary Gland Tumour

by Blazin on Sat Apr 04, 2020 09:30 PM

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This guy named Dave kept a good blog. But I've written him several times and he never responds.  

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