My adenocarcioma lung cancer doesn't make sense! Please help!

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My adenocarcioma lung cancer doesn't make sense! Please help!

by Kelly1388 on Tue Nov 25, 2014 01:36 PM

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Hi, I'm new here and very scared and confused. I turned 40 last week and never smoked in my life or have history of cancer in my family. After having pain in my hip and an abnormal x-ray a biopsy of my pelvic bone was performed. Yesterday I was told I have metastatic adenocarcinoma of lung cancer. Prior to this diognosis I had a CT scan that showed very small nodules in my lungs but no abnormalities anywhere else. The full body bone scan also only shows the abnormality in the area of the pain on my hip but nowhere else.  The Medical oncologist is sending me to sloan kettering because he believes I don't fit the typical characteristics. I'm very scared. Other than the pain in the hip I feel healthy.  I have a nagging caugh that comes once every 5 minutes or so but I've had that for years and it's seasonal. comes in the fall and spring. I would appreciate any insight and help you can give me.  My prayers go out to all you strong people out there. Thank you!

RE: My adenocarcioma lung cancer doesn't make sense! Please help!

by KimberlyAnn49 on Wed Nov 26, 2014 07:27 PM

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I am so sorry. I was diagnosed at 49 with oral neck cancer. I was a light smoker and quit 20 years ago. Wasn't a drinker, two factors that account for 95 percent of oral cancer. Mine spread while waiting for surgery. 3 hours was 9. I then had chemo and radiation. Had a feeding tube and port put in too. In and out of the hospital all summer. My first scan came back and showed no cancer. I was stage 3. I have 3 more this year and then the second year, it's every 6 months. I have a survival rate of 57 percent of being here on earth within 5 years. I been to hell and back. But now I am not using a feeding tube, I am starting to eat real food! No sign of cancer. I am so thankful I had healthcare and that I am alive. I don't post anywhere and I don't share my story. What I can help you with, is that there is a light on the other side, one I am in right now. And you will be too. I know nothing about ling cancer, so maybe someone can share. But I can pray for you and share with you my story. I am 50 today, very happy and live each day as if it's my last. My wish is for you to stay strong, allow your years and know your not alone;). Good bless you and Happy Thsnksgiving. Kimberly

RE: My adenocarcioma lung cancer doesn't make sense! Please help!

by mf1951er on Wed Nov 26, 2014 08:48 PM

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It appears that those small (How small?) lung nodules are adenocarcinoma and it has metastasized to the hip.

I not sure what does not make sense. Not all lung cancers reside in smokers.

MSK does some remarkable things including HIFUS (High frequency ultrasound) for Bone Mets.

I have had metastatic cancer for several years. I still work and enjoy myself. Don't give up.

RE: My adenocarcioma lung cancer doesn't make sense! Please help!

by Kelly1388 on Wed Nov 26, 2014 09:13 PM

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Hi, the CT scan mentions the size of 2 nodules both with diameter of 1.9 cm. what doesn't make sense to me ( and to my doctor) is that I don't look I'll. Did anyone here have metastatic lung cancer and felt healthy? I mean advanced cancer. Also the two oncologists that I've gone to, aren't giving me much hope. One of them said remission is not going to happen and I should just start chemo to slow down the process. He made is sound like I have maybe a year! I wish they would say things like my otherwise healthy body will increase my chances or something along those lines. My bloodwork came back normal and non of my organs seem to be affected so far. Shouldn't that increase my chances? Is lung cancer always a terminal disease ? Also how is the staging determined? Am I considered stage 4 because I have mets at my hip bone?

RE: My adenocarcioma lung cancer doesn't make sense! Please help!

by KimberlyAnn49 on Wed Nov 26, 2014 09:17 PM

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Quite a few people shared their stories with me about themselves or their loved ones. So many I met were told they will be dead and are still alive several years later. Get an second opinion when you hear that, And take it with a grain of salt. Doctors are wrong all the time.

RE: My adenocarcioma lung cancer doesn't make sense! Please help!

by PositiveNote on Wed Nov 26, 2014 09:22 PM

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Hi, I am sorry  to hear about your lung cancer. I understand your shock at the diagnosis. I too had hip pain and a nagging cough. My doctor thought the hip pain was due to mild arthritis and the cough was allergies – that was in Feb 2014. In April 2014 my  breathing was so labored and I had chest pain that sent me to emergency.  An x-ray revealed fluid in the pleura around  my entire right lung. Over 1500 ml was drained but that was only half of the fluid.  Tests on the fluid and a PET scan confirmed the diagnosis of Stage 4 Non-small cell lung cancer.  What a shock !  I am a 62 year old female,  a non-smoker and to the best of my knowledge, have not been exposed to any toxic chemicals.  I have the EGFR [epithelium growth factor rate]  mutation that supports taking a targeted drug ‘ Tarceva’ daily.   I have been on 75mg of Tarceva [150mg was too strong for me]  for 6 months now and I can report that I am feeling very good – almost as good as I did a year ago. There is much information on the internet about this type of cancer and various treatments.  I also joined a cancer support group for the first 4 months that really helped me understand cancer and helped me adjust my life to my new normal; living with cancer.  

 

I pray that you receive all the medical help and advice you will need to regain your quality of life.

RE: My adenocarcioma lung cancer doesn't make sense! Please help!

by LovingMummy on Wed Nov 26, 2014 09:59 PM

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Hi Kimberly I agree with you. In 1996, My husband was a level 4 melanoma cancer patient ( a quarter size mole on his right upper arm) and was told by the doctors that he had only 6 months to live. I think miracle worked in my husband's case as I had a divine vision at very early morning , the divine voice assured me that nothing is going to harm my husband and everything will be alright. Next day he had to go for CAT scan which showed no trace of cancer spread. After that he had to undergo a 5-7 hour surgery and all lymph node samples were sent for cancer testing. My husband was shown no cancer and he is very healthy even today. No cancer has shown up till now! Now saying that I would like to add that I am here on this site as my son 45 is just recently detected esophageal cancer and is to start chemo/radiation next week.

So even though new medical researches do help people get cured of diseases, sometimes what the doctors predict go totally different than the actual happening in patients lives.

Do keep positive, Kelly and you will have better chances of improving your health. Positive attitude plays a great role in getting you better and the treatment works better for you.

I am praying for you and all on this forum who are sailing in the same boat of frustration, anquish , lose of hope and yet want to get better to lead a happy healthy life.

RE: My adenocarcioma lung cancer doesn't make sense! Please help!

by KimberlyAnn49 on Wed Nov 26, 2014 10:09 PM

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Nice to meet you LovingMommy;) that is awesome! I pray your son will be ok as well as your husband. I remember how scared I was waiting on the scan results but I too heard a voice saying to me, several times. Do not worry, it's gone and it's never coming back. Hope that voice was from God! Anyhow, my scan shows no cancer and I was stage 3... In pretty bad shape. Just got the news this past march. I feel very healthy today. Stiff from radiation but physical therapy is helping me! And yes, so many people told me, while in the hospital, going to the center for treatment and even while in a nursing home... In really bad shape, so many people told me stories one Yours! I used to fear death but I recently made my peace with God, am I still afraid? Yes, but not like before I got cancer. No where near as much. I really feared the radiation mask, you wear it when you have oral neck cancer. That really terrified me' But when I went in and laid on the table and the doors shut and the machine turned on. I started off with the Lord's Prayer, then I prayed fir all I knew who needed prayers, then I asked god to put a protective bubble over my organs to help not let it harm me so much. I felt peace and usually fell alseep. This from someone who used to have panic attacks and at times needed Xanax and therapy! Not anymore! Bless you;) And Happy Thanksgiving to all... Peace.

RE: My adenocarcioma lung cancer doesn't make sense! Please help!

by LovingMummy on Wed Nov 26, 2014 10:47 PM

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Wow! That' s how is power of God and power of Faith. I wish healrhy life ahead and Happt  thankagiving to our dear Lord!

May you be blessed!

RE: My adenocarcioma lung cancer doesn't make sense! Please help!

by KimberlyAnn49 on Wed Nov 26, 2014 10:50 PM

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thank you! I am totally amazed at how much I felt him since I was diagnosed this past march. It's been one horrible year but without him. I would not be where I am, no way on hell. I am quite amazed. Blessings to you all as well! Kimberly
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