Pancreatic CA Survival

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Pancreatic CA Survival

by Sfebwe on Tue Dec 16, 2014 03:19 AM

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I guess my families concern is if there is anyone who has survived adenocarcinoma of pancreas tail with possible mets to lungs. Area in lungs to small to biopsy. My father-in-law keeps seeing the grim reports and studies of not lasting a year. It just breaks my heart to see someone wanting to do everything g possible to stay alive and be with his children and grandchildren. Is there anyone who has I can pass along your story? Thank you

RE: Pancreatic CA Survival

by Jess24lynn on Tue Dec 16, 2014 06:24 PM

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First, I am so sorry that your family has to go through this. It is a terrible disease! My mom, who is only 57 years old, was diagnosed nearly 9 months ago with stage 4 PC with mets to her lungs. I know this is not the long-term survival story that you are looking for, but I thought I would share our experience with you anyway. My mom is seen at Johns Hopkins, her oncologist there stressed that seeing mets in the lungs without liver involvement is not all that common. He said it occurs in only about 10% of PC patients. He also said that mets to the lungs tend to be more slow growing and that people are able to live with this longer than those with liver mets. I know what it is like to search the internet and only come across awful stories and grim statistics. But please remember, everyone is unique and so is their cancer. Your father-in-law may respond to chemo and his cancer may be a manageable condition for a period of time. There are survivors, and long-term survivors at that. Please check out this website:http://stage4hope.blogspot.com/2013/07/survivor-story-12-rem

I have read all of these stories and it gives me hope that my mom could be one of these people. Also check out stories about Peggy Kressler and Roger Stump. They have survived for many years with stage 4 PC. Do yourself a favor and get in contact with PANCAN. They can pair you up with a caregiver in your similar situation or even paid your father-in-law up with a similar patient. It is always nice to be able to talk to someone who has been through this and to see there are people living with PC.

I hope this helps!!

RE: Pancreatic CA Survival

by Sfebwe on Wed Dec 17, 2014 12:43 AM

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Thank you so much for sharing your story and the wonderful resources. I shared it with my husband to show him there are people out there who have survived beyond 1 year. I am grateful for you and stories of hope. Sincerely, Stephanie.

RE: Pancreatic CA Survival

by Whippleschmiple on Wed Dec 17, 2014 02:11 AM

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Neuroendocrine has a history of being slower growing, and depending on his age and health some doc might be more aggressive with treatment maybe mixing chemo, radiation and possibly consider surgery, possibly.  Top center increases odd longer disease free...

RE: Pancreatic CA Survival

by Swannboro on Wed Dec 17, 2014 11:04 AM

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It has now been thee years that I had my second whipple.  The first one, nine months before the last was done to remove a stage 1 tumor from my pancreatic duct.  I was one of the lucky ones, as the tumor had my duct blocked, causing sever pain, and acute pancreatitis.   Luckily, once a CA-19-9 was done, I no longer was considered to have just pancreatitis.  That got the ball rolling, and I had the surgery to remove the tumor.   The second whipple was necessary as my stomach had plastered itself to the pancreas, causing internal bleeding. I required as long a hospitilization that time as the first.     So, what I am saying is, survival of pancreatic CA is out there, we just have to be pro active.  If you are one of those who suffer repeated bouts of pancreaitis, do not let them blow you off by labeling you a alcoholic,  insist on a CA-19-9 blood test. You just may be on my list of survivors,  at least for now.  Another friend live 8 years following the exact same diagnosis as I, then he died of testical CA.  Sophia

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