thalamic brain tumor

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thalamic brain tumor

by chez1 on Wed Jan 14, 2015 03:20 AM

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Hi I feel all alone, I was diagnosed with a thalamic brain tumor but dont know what kind. My journey started about 7 years ago and i have noticed some changes of late, but the doctors just seem to shrug it off when I mention it. 

I have a weakness in my right side and in the mornings I wake up with my right hand shaking so much cant even pick up a cup of coffee. I also keep walking into things such as walls, doors and people and the pain has increased. not sure if this is anything to worry about. They have told me it is inoperable. Has anyone any ideas?

RE: thalamic brain tumor

by Dodgerblue on Wed Jan 14, 2015 12:55 PM

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Well, your symptoms shouldn't be ignored.  I assume you must have a slow growing tumor, however even slow growing tumors can progress in grade and pick up steam in terms of growth.  How often do you get an MRI to monitor growth of the tumor?  If you haven't had since onset of smyptoms you may want to push your doctors for one.  In terms of your new symptoms, I would do much more than casually mentioning it!  You are obviously concerned about it, share that concern with your docters and have an expectation that they can and will figure out what's causing these issues.

Is your tumor located on the left side of your brain?  If yes, then it would make more sense that could have something to do with your right side issues.  Don't worry about it, but don't ignore it either.  Your doctors need to figure out what is going on.  Just because your tumor is inoperable doesn't mean it's untreatable.  Good luck, keep us posted.

Dodger

RE: thalamic brain tumor

by Lorre_G on Thu Jan 15, 2015 04:23 PM

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I agree with everythig Dodger has said.  One added comment.  If you are feeling like you are not getting answers, it is always good to get a second opinion.

Lorre G

RE: thalamic brain tumor

by bdana on Thu Jan 15, 2015 06:05 PM

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I too have an inoperable tumor in my thalamus. Running into things may be a symptom of vision problems; your brain may be blocking input from the eye on the opposite side of your tumor. The thalamus sits behind the optic nerve chiasm (where the separate optic nerves from the eyes come together in the brain). Besides insisting on your doctors taking you more seriously, I would make an appointment with an eye doctor as soon as possible. Let him/her know what's going on and after an exam to check the health of the eyes, you may be sent for a field of vision test.

Best of luck to you.

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