Husband was diagnosed with stage 4 base of tongue cancer - he is 8 days into treatment

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RE: Husband was diagnosed with stage 4 base of tongue cancer - he is 8 days into treatment

by blessedmimi on Mon Mar 28, 2016 03:55 PM

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On Mar 16, 2016 11:21 PM makinwavsIII wrote:

I started radiation and chemo on 2-7-16 for sqquamous cell carcinoma of overlapping sites of hypopharynx. basically i have a tumor a little bigger than a cm, right next to my l larynx on base of tongue. I found problem as a large lump appearred on right side of neck. so now it's stave 4. I am receiving 7 weeks 5 days a week radiation and chemo once a week. they say 90% success rate and no surgery at this time so I feel pretty lucky. as of today 2-16-16 my throat is getting soar. i was hoping it wouldn't start for another week but today I can tell the change. I do have a peg feeding tube. So Good luck and hope all goes well. I live alone so this will be challenging.

My husband is now one year out from Treatment.. He is cancer free, praise the LORD... He had three doses of cisplatin, and  7 weeks of radiation, he also was blessed to not have any surgery.  There were a few lymph nodes affected in his neck but they too were treated with radiation.  It was a rough road, I will not lie.  He was very ill for quite a while, he refused the feeding tube intially but two weeks before his treatments were over he was getting so dehydrated that we had to get the peg tube.  It was a life saver indeed.  I was able to "feed" him every two hours and keep him hydrated and nourished.  I did this every two hours, all day and night for several months.  My faith in God and His strength is what got me through it, and I am sure that is what got him through it as well.  I will be praying for you, I am very sorry to hear you are alone in this but know that you are never truly alone.. God is with you and will provide, if you have any specific prayer requests please let me know and I will lift them up on your behalf... Stay strong and remind yourself that this is only a season of stuggle..

James 5:15 And the prayer offered in faith will make the sick person well; the Lord will raise them up. If they have sinned, they will be forgiven

RE: Husband was diagnosed with stage 4 base of tongue cancer - he is 8 days into treatment

by blessedmimi on Mon Mar 28, 2016 04:03 PM

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On Mar 19, 2016 5:15 PM Nanasan wrote:

I am so sorry to hear about your husbands condition.In "" target="_blank" rel="nofollow">http://condition.In " target="_blank" rel="nofollow">condition.In April 2014 after my husband had (and still has) a sore throat for well over a year he was diagnosed with T4 cancer of the base of the tongue.He "" target="_blank" rel="nofollow">http://tongue.He " target="_blank" rel="nofollow">tongue.He underwent 30 doses of radiotherapy (6 weeks) and another introvenous drug (chemo) called CETUXIMAB.He "" target="_blank" rel="nofollow">http://CETUXIMAB.He " target="_blank" rel="nofollow">CETUXIMAB.He felt really well for the first couple of weeks but then started to feel very unwell.He "" target="_blank" rel="nofollow">http://unwell.He " target="_blank" rel="nofollow">unwell.He weighed 14 st 4 lbs but within a few weeks went down to 11st.He "" target="_blank" rel="nofollow">http://11st.He " target="_blank" rel="nofollow">11st.He has not put any weight back on but has stayed stable.He "" target="_blank" rel="nofollow">http://stable.He " target="_blank" rel="nofollow">stable.He cannot swallow very well, has a soft diet (sadly no T-bone steaks anymore!)His appetite has gone but I have to force him to eat 'something'He gets ready mixed drinks from the doctor called FORTISIPS -they had all the nutrients in that you need.He "" target="_blank" rel="nofollow">http://need.He " target="_blank" rel="nofollow">need.He has two of those every day (300 cals each).Weve had a difficult 20 months since he finished his treatment but his consultant is convinced that the tumor has ' melted away'However he has a LYMPHADEMA (swelling)in the neck caused by the radiotherapy.It "" target="_blank" rel="nofollow">http://radiotherapy.It " target="_blank" rel="nofollow">radiotherapy.It is a very hard lump(s) -the lymph glands have been damaged -I think -beyond repair so that's something we have to live with.Also "" target="_blank" rel="nofollow">http://with.Also " target="_blank" rel="nofollow">with.Also he keeps having bad headaches so he is having an MRI scan next week just to eliminate anything else.Radiot "" target="_blank" rel="nofollow">http://else.Radiot " target="_blank" rel="nofollow">else.Radiot herapy is fantastic treatment but it destroys everything in its way!I don't know if my husband can ever get back to normal (hes 73) but at least he's got me to look after him, I wish you and you husband husband good luck with his treatment.......Take care

I am truly sorry to hear that your husband is having a difficult time after treatment.  My husband has been very blessed indeed, he has been done with treatment for one year and is doing really well.  He can eat anything he choses except really spicy food.  He has not been able to gain any weight really but has not lost any more, we found out a month ago his tyroid is not functioning correctly due to the radiation so hoping the meds they have started him on will help.  He is cancer free, he does have the lymphodema in the neck as well but he sleeps in a recliner and stays upright as much as he can and it seems to be better when he does.  They have told us if it gets cumbersome they can do some massage therapy that helps drain the fluid build up... My husband is only 51, so that may be why he was able to bounce back quicker.  I will be praying for you and your husband, as a caretaker I know that it can be overwhelming at times.. Praying the outcome of the MRI is good and that they find relief for for him with the headaches, I have chronic migraines and I know headache pain is hard to tolerate.  Your husband is truly blessed to have you, take care and may God bless you both

RE: Husband was diagnosed with stage 4 base of tongue cancer - he is 8 days into treatment

by anuru on Thu Nov 09, 2017 02:06 AM

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 My Dear, 

My father is experiecing similar cancer and he will start with radiotherapy. Can you please let me know the name of mouth wash and the neck lotion?

Thank you so much.

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