Signet Ring Cell Cancer - 4 year survivor

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Signet Ring Cell Cancer - 4 year survivor

by purplemountaing on Wed Feb 04, 2015 11:26 PM

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Hi.

I was diagnosed in February 2011 with Stage 3C metestatic cancer in the sigmoid and through the abdominal wall.

I had 17/24 positive lymph nodes.  Had colon resection and FOLFOX.  

I have lived with the terror of this type of cancer and can tell everyone that I was the last person I thought would still be around. 

If anyone needs to communicate with me or wishes to share, please let me know.  Thank you,  Donna

RE: Signet Ring Cell Cancer - 4 year survivor

by SallyB on Thu Feb 12, 2015 09:26 PM

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Hello, my sister was diagnosed with signet cell last year, she had her ovaries, womb n large bowel removed and appendix which is where it started. She had chemo and now 6 months later has been told it's in her pelvis and lymph glands so she will need radio therapy and chemo. The thing is in yorkshire they don't know a lot about this type of cancer, my sister is 32 and has a three year old who she wants be around for is there any hope at this stage? I'm trying to be positive but I need something from someone who has been through it and I can tell her that there's some hope. My sister is amazing and I just need something that she can cling hold of and so she won't give up. Thank you in advance, Sally x

RE: Signet Ring Cell Cancer - 4 year survivor

by SallyB on Thu Feb 12, 2015 09:34 PM

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Hello, my sister was diagnosed with signet cell last year, she had her ovaries, womb n large bowel removed and appendix which is where it started. She had chemo and now 6 months later has been told it's in her pelvis and lymph glands so she will need radio therapy and chemo. The thing is in yorkshire they don't know a lot about this type of cancer, my sister is 32 and has a three year old who she wants be around for is there any hope at this stage? I'm trying to be positive but I need something from someone who has been through it and I can tell her that there's some hope. My sister is amazing and I just need something that she can cling hold of and so she won't give up. Thank you in advance, Sally x

RE: Signet Ring Cell Cancer - 4 year survivor

by purplemountaing on Thu Feb 12, 2015 11:44 PM

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Hi Sally,

Signet-ring cell is poorly understood in general.

There is always hope, but SRCC can be difficult.

I would suggest contacting MD Anderson in Houston, TX, USA via a written query.  It is no charge and you can get some feedback. 

That cancer center has the most experience with SRCC vs most other places.

There is always hope.  STOP reading what they post on the internet because most information is old and not accurate and it reflects the fact the SRCC typically is diagnosed at a later stage and has a poor prognosis based on that alone.

I can't predict anyone's future, but my FOLFOX treatment gave me four years and you just don't know what will work for someone.  You don't know and must keep digging.

For pelivis mets, FYI, they do abilation therapy here in the US.  It isn't done everywhere , but you may want to research it.

Let me know how it is going and if I can be of any further help or assistance in any way at all.

D

RE: Signet Ring Cell Cancer - 4 year survivor

by SallyB on Fri Feb 13, 2015 06:38 AM

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Thank you so much for your advice I'm so grateful. I have emailed them so hopefully they maybe able to give me some advice. Thank you again xxx

RE: Signet Ring Cell Cancer - 4 year survivor

by rosedeb on Wed Feb 18, 2015 06:18 PM

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On Feb 12, 2015 9:34 PM SallyB wrote:

Hello, my sister was diagnosed with signet cell last year, she had her ovaries, womb n large bowel removed and appendix which is where it started. She had chemo and now 6 months later has been told it's in her pelvis and lymph glands so she will need radio therapy and chemo. The thing is in yorkshire they don't know a lot about this type of cancer, my sister is 32 and has a three year old who she wants be around for is there any hope at this stage? I'm trying to be positive but I need something from someone who has been through it and I can tell her that there's some hope. My sister is amazing and I just need something that she can cling hold of and so she won't give up. Thank you in advance, Sally x

Hi sally,

My 33 year old daughter was diagnosed with Stage 4 Metastatic Stomach Cancer on December 23rd 2014. She was given very little hope here in canada. Thru the resources of the Internet we were able to find a clinic in Tijuana Mexico called Immunity Therapy center. Dr Carlos Baustista. Lisa is currently a patient at the clinic and has been for 13 days. She has received the best care and advanced treatments. The staff are fabulous and Dr Baustista has given her hope. Lisa also has two small children at home. Livia age 5 and Grady age 16 months. With the support, strength and encouragement of her family, Lisa and her husband were able to go to Mexico knowing their babies are well cared for and loved and they are able to focus on Lisa's health and the road to recovery. Google the clinic and see what they have to offer. I trust you will be pleased. I will post from time to time with updates on Lisa's journey. You can also read her bloghttp://livinglovinglaughingfighting.blogspot.ca/?m=1

Debby( Lisa's Mom)

RE: Signet Ring Cell Cancer - 4 year survivor

by SallyB on Wed Feb 18, 2015 07:23 PM

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Thank you so so much for your reply I will look into this. It's just so so sad that we are all dealing with this horrible disease. They really do not deserve it do they and if we can get them the best care then I will do what ever it takes. I really hope the treatment helps your daughter with all my heart, thank you again. Sally x

RE: Signet Ring Cell Cancer - 4 year survivor

by MzCutright on Sat Jul 25, 2015 01:22 AM

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My mother has been diagnosed with Stage 4 Signet Ring Cell. Her cancer was found while performing a surgery to remove a tumor on the right ovary. Cancer Cells were found in the Ovaries, fallopian tubes, omentum, and appendix. All were removed. Her baseline CT Scan Said the has a nodule in her left lung, cyst on her liver, some lymphnodes showed cells but none were swollen. Her appendix is the origin of her cancer. She started her first round of FOLFOX this Wednesday and her pump removed today. I have concerns and am most certainly interested in hearing your opinion. I really want my mother to get a second opinion at MD Anderson. I want to make sure my mother survives this cancer. She is only 51 years old. She is having a difficult time with everything and her doctors talk like she will never get better. They say that they are treating this like an incurable chronic disease. We will continue to do chemo until it stops working or until she is tired of doing it. It seems so negative. I need to know if I am not being realistic. Am I holding onto an idea that is not reality when I should be focusing on this is her new life. We just need to make the best of it. She had a rough day yesterday and I am just trying to prepare myself for the future.

Her doctors continue to say that they are treating this like Colon Cancer but at the stage that she is in I worry we are not being aggressive enough. I am also concerned that her doctors may not have much knowledge of this cancer which is why we need to try to go to MD Anderson. My mom doesn't want to talk about getting a second opinion but I think it would be wise of us to go where they have dealt with this before. Any advice?

RE: Signet Ring Cell Cancer - 4 year survivor

by rohitkrishnan on Mon Jul 27, 2015 11:15 PM

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Hi MZCutright

We are from India and My Sis is diagnosed with appendicular cancer with high grade signet cell ring last month.She underwent the HIPEC surgery but some deposits are still left behind. she has started the FOLFOX regimen couple of days back..the surgeon ha ssiad that depending on the response to chemo, she may be required to undergo another surgery possibily after an another 8-9 months from now (after her folfox is over ) to remove the rest of the deposits. 

I would say SRCC is definetly tough, but have faith and the picture is not too gloomy. If there is any brightside to SRCC , thenm its that the it usually responds to FOLFOX compared to ther grades of tumours. So hang in there...definetly get a 2nd opinion if the one u r with isin't an expert in dealing with these types of tumors

RE: Signet Ring Cell Cancer - 4 year survivor

by MzCutright on Wed Jul 29, 2015 03:17 PM

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Thank you so much for your response!!!!!

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