Can any one answer this.

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Can any one answer this.

by Tina1977 on Wed Mar 04, 2015 04:01 PM

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My dad has had his epiglatis (spelling) removed.  Has anyone else.  If so please let me know how it has gone.  He is getting discouraged and wants some support.  

Thank You

RE: Can any one answer this.

by Atoms on Wed Mar 11, 2015 08:39 PM

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My epiglottis was removed October 24, 2011. I've grown accustomed to using a g-tube. I drink formula but also blend a lot of regular food for good nutrition. Mucus is a problem and always will be with the epiglottis removed.

Not eating in the traditional way is a shock at first. You don't realize how much time in your life was dedicated to food.

The important thing is to take this seriously and establish a routine. It becomes a way of life that is OK; certainly an alternative to dying. Hang around, there's lots of good support here.

RE: Can any one answer this.

by Atoms on Wed Mar 18, 2015 10:48 PM

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My epiglottis was removed. Take these steps: get a wedge for sleeping to avoid aspiration pneumonia; there will be mucus and he needs to learn how to gargle without getting liquids in his lungs; dry mouth is the worst part of this. I use Biotene mouthwash and water. I carry a spritzer in my pocket so I can squirt Biotene into my mouth when I'm dried out. Get humidifiers and keep them running in whichever room he is in. I have one in our family room and another beside my bed. Tell your dad I've been on a gtube without epiglottis for three years now. It's emotionally painful in the beginning because you have to lose the ability to eat to really see how much time each day is devoted to food. If he wants to eat healthier food, look into home blended food. And, join our group on Facebook, Adult GTube Feeding. You can get all the info and support you need.

RE: Can any one answer this.

by Tina1977 on Sun Apr 26, 2015 01:39 PM

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Ok so dad was discouraged at sometimes but now after hard work and speech theraphy to teach him how to eat.  He has his gtube in still but has not used it for almost a month.  That stated hope to remove in July.  He is able to eat almost everything of course it takes longer he is last at the table but that is ok my son is a slow eater also.  He is very proud of where he has gotten to even though many times wanted to quit. He is very glad he did not quit.  Thank you all for your support.  He is still getting thrush and infection in the neck they are working on that tho. 

RE: Can any one answer this.

by Sdurnell on Mon Apr 27, 2015 05:48 AM

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Tina,

Wishing your dad all the best.  He's been through a lot, so it's good to see that he is doing well and proud of himself for sticking with it all!

And thanks to you as well for being there for him.

Susan

RE: Can any one answer this.

by Tina1977 on Mon Apr 27, 2015 11:18 PM

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 Thank you Susan it has been  a long rough road but even tho we have both wanted to quit we have stuck it threw.

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