Recovery eating with Ménière's disease

4 Posts | Page(s): 1 

Recovery eating with Ménière's disease

by CheyenneMoon on Fri Mar 13, 2015 06:29 PM

Quote | Reply
I am in my third month out from 6 chemo and 36 radiation treatments for throat cancer from the HPV 16 virus. I also had surgery. I was wondering if anyone else went through treatment with Ménière's disease. My problem is with eating. Anything that I can eat which I find appealing is to salty. Anything I try to cook at home is so un appealing my stomach turns just thinking about it. I used to eat mostly salads and fruit but not having much luck with either at this point. I cannot drink protien drinks that make me I'll. Thank you in advance

RE: Recovery eating with Ménière's disease

by augustus on Fri Mar 13, 2015 08:53 PM

Quote | Reply

Congratulations. You and I went through treatment about the same time. I finished on December 18.

I wasn't diagnosed with Ménière's disease, but did have enough vertigo from low bp to pass out twice and do a little damage. I am doing a lot better now that I am on a pill for the low bp. When I get up, I now sit on the side of the bed for a few seconds and then stand up slowly.

I also have been having a hard time with food. You might look at the food aversion thread further down on this page. If you think it is mental, I can post some links that helped me. You also might google the Garcia effect and an M D named Russ Dewey. He has a lot of good advice that is working for me. My goal is get off the feeding tube before my next scan in May. 

Good luck, we have made it through hell so far and I don't see anyhere but up from here. 

RE: Recovery eating with Ménière's disease

by Sdurnell on Sat Mar 14, 2015 06:44 AM

Quote | Reply

Cheyenne,

The damaged sense of taste is a real problem for many of us after radiation.  It's still pretty recent for you, and at this point it's not unusual for people to have difficulty eating.

I'm not sure what this other disorder has to do with your difficulty eating.  Are you having problems with nausea possibly, caused by vertigo?

I found that everything tasted very salty to me after radiation too.  But ginger ale and applesauce were not too bad.  Some people recommend going to a buffet and trying small amounts of many different foods to see what you can tolerate, then fix similar foods at home.  Also, I found that as the time out of treatment lengthened, I had less problem with foods tasting bad.  Instead, they didn't taste at all.  That's better, but still not good.  Then later I could taste the first bite of a food, but nothing after. 

For me it was a slow, drawn-out process.  It was probably two years before I could taste things properly again, and even then I had some issues, like not being able to handle chiles of almost any strength.  Now I am 4+ years out, and I can taste almost anything, but still shy away from anything flavored with chiles hotter than Anaheims.  And I sometimes have episodes where my sense of taste is blunted or gone altogether for a day or several.

All the best,

Susan

RE: Recovery eating with Ménière's disease

by Dlynn1210 on Fri May 01, 2015 01:01 AM

Quote | Reply
Hi I have to say this is the first time I have seen this question. I was diagnosed with Menieres a few years before being diagnosed with tonsil cancer. Salt intake definitely intensifies the ringing we endure and as I think back, I attributed the louder ringing to whatever drugs weren't going into my body. I had a feeding tube for a little over a year. Salads are pretty much off the menu for me now and I have to remind myself to eat most days. I always encourage people to go to a buffet when working back to eating. The fact that you are able to eat now is good because I wasn't able to swallow this soon post tx. My taste buds gradually improved over time but I still can't handle hot and spicy. It took me a couple of years to work up to a Wendy's spicy chicken fillet sandwich. I still eat quite a bit less than I did before tx - I generally get tired eating before I get full. Even though I have a new normal for eating I am still cancer free and that is the most important thing. I thank God every day for a cancer that was cureable. The worst is definitely behind you! Diana
4 Posts | Page(s): 1 
Subscribe to this message board discussion

Latest Messages

View More

We care about your feedback. Let us know how we can improve your CancerCompass experience.