new here - just diagnosed sclc left lung and lymph nodes - overwhelmed

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new here - just diagnosed sclc left lung and lymph nodes - overwhelmed

by zeesue on Sat Jun 27, 2015 03:56 AM

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I would appreciate any feedback> Just diagnosed with 6.5 cm small cell lung cancer in left lung - wrapped around pulmonary artery with lymph noode involvement.

Getting port plus 2 chemos and radiation soon. Telling my childrren tomorrow. Feeling overwhelmed, scared and numb. Onncologist said don t let info put you off - but it is scary.

Any feedbak much appreciated. Thanks

RE: new here - just diagnosed sclc left lung and lymph nodes - overwhelmed

by tks3xs on Sun Jun 28, 2015 09:54 PM

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I just joined too. My mom (72) was diagnosed March 2015 with stage 4 SCLC. Scans showed a 6cm mass in lung, also in liver, lymph nodes and bones. In Dec 2014 there were no signs of it (had chest xray and blood work for knee surgery which were all clear). She was a smoker for 30 years (smoked a pack a day) but hasn't in 10 years.

She's just completed her 4th round of chemo (will have 6 total; each round is 3 days with 21 days in between rounds). First scan showed cancer had shrunk 30-50%. Apparently that is what is expected for this type of cancer/diagnosis/treatment. Doc said next scan (in about 2 weeks) may not show as much of a drop as first but with this type of cancer, should get to very low, or undetectable levels after the 6th round. But did say it will eventually come back.

So we are just taking things day to day. She's done well with chemo...only lost hair...and very few side effects. The day after her rounds finish she gets a metalic taste in her mouth and is a little tired. Other than that she's been living life as normal.

The goal is to take advantage of the time she'll have between the last round and the recurrance. How long that will be is the unknown. As the doc said, with this type of cancer, the goal of treatment is about quality of life for the patient.

I can't pretend to know what you are feeling. All I know is it hit all of us like a ton of bricks. My mom has never looked or felt as good as she does/did when  she got this diagnosis a couple of months ago. She still feels and looks that way so we/she are holding on to that as long as well can.

Ask lots of questions, have honest conversations, and enjoy the good days you have as best you can.

RE: new here - just diagnosed sclc left lung and lymph nodes - overwhelmed

by zeesue on Thu Jul 02, 2015 02:49 AM

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Thank you for your reply - it meant a lot. Hope your Mom continues to do well.

RE: new here - just diagnosed sclc left lung and lymph nodes - overwhelmed

by wakker88 on Sun Jul 05, 2015 09:40 PM

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Hi Zeesue

Your story related to my dad who was recently diagnosed with t4-n2-m0 sclc with pulm artery and lymph node involvement. Stage 3b I think it is. He was diagnosed around 7 weeks ago. It also hit him and the whole family very hard. His treatment was for 4 sessions of chemo and 3 weeks of daily radio. (Weekends off) with the aim to cure.

He has completed 2 chemo sessions and finished his radio last Friday. 

Not sure what information you're looking to get so if you have any questions about my dads journey so far please do feel free to ask. 

RE: new here - just diagnosed sclc left lung and lymph nodes - overwhelmed

by StingGB on Wed Aug 26, 2015 01:40 PM

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Hi,

I have identical, SCLC in left lung with lymph, except mine is a little larger - 9cm. I was actually diagnosed the same week as you. My one advantage is I'm only 54. On 2nd round of the most powerful chemo regime, with simultaious radio starting in 3 weeks.

I would guess you are out of the complete shock period by now, and beginning to make decisions about your new life. I hope you are managing. My decision has been to keep this very quiet, only a tiny handful of people very close to me know, and no kids.

You are very welcome to keep in touch.

RE: new here - just diagnosed sclc left lung and lymph nodes - overwhelmed

by tks3xs on Wed Aug 26, 2015 08:01 PM

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My thoughts are with you both. I thought I'd update my mom's situation.

She completed all 6 rounds of chemo two weeks ago, had her 3rd scan a week ago and got those results today.

The first scan had shown a 30-50% decrease in the cancer in all areas, and the second showed more decrease, although not as much. But the lymph nodes were undetectable and the other spots to like a 0.3-0.5 cm measurement. This third scan showed a "status quo" from the last scan, meaning there is still a lesion on her bone, and in her lung and liver, albeit small. 

The doctor doesn't know if these are "live cancer cells or dead" so she is ordering a PET scan for her to be done in two weeks. If they show to be "dead" then there will be no further treatment until she gets new symptoms or lesions. If they appear to be "live" then they might consider some radiation beads to target those areas. So we won't know the next step until after the PET scan.

What we are doing is still trying to move along as "normal"...she's out to lunch with friends, shopping at Target, etc. We are planning a small trip with her as well in October. Her attitude is still great. The 5th and 6th rounds of chemo took a bit more out of her (it took her several days after they finished to feel better) but otherwise she's done well.

Keep fighting and living your life. As we all know too well (and based on the tragic events in Virginia today), any of us can go at any time. We fight so we can live.

Best to you both and anyone else fighting out there. 

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