Do I have carcinoid?

2 Posts | Page(s): 1 

Do I have carcinoid?

by Britbed on Wed Jul 01, 2015 07:20 PM

Quote | Reply

Hi, I am 21 years old and overall pretty healthy and active. In the last month or two I have experienced flushing that is typically on my face and chest, and once went down my left side of my body. Now primarily it is on my right cheek only that gets flushed. This comes and goes every couple weeks. I also worked in a green house earlier this summer so I'm not sure if that would have attributed to some type of side effects. I have been having some stomach issues for the last few months as well, what I thought was possibly IBS or lactose intolerance but never got either of those checked out. I do not have diahhrea unlsess I eat something spicy or lactose related. I feel I am more constipated most of the time than anything else. I just am so worried and afraid and after doing googling of course the conclusion I come up with is cancer. I really don't know what to do or where to go from here. My blood pressure has also been extremely high this past month probably from worrying, so I got perscribed medication from my doctor for that. Please if anyone can help me it would be appreciated.

RE: Do I have carcinoid?

by LauriG on Fri Jul 03, 2015 12:24 PM

Quote | Reply

Hi Britbed,

Obviously there are probably a number of possibilities for your symptoms, but I think you are wise to consider carcinoid. In other words, don't want to worry you that you might be right, but also think it is important not to ignore it. The fact that you are already searching for possibilities online tells me that you feel something is not right.

I first started flushing around the age of 18yrs, so must have had active tumours then without knowing it. In fact I never mentioned my flushing to my doctor. I did not have any further symptoms until I reached my 30's when I got heart palpitations, then in my mid-30's acute abdo pain and bowel issues started.

But that is not the case for everyone. My Mum was 65 when they found her tumours (2 years after I was diagnosed), but she did not develop noticeable syndrome symptoms until after her surgery.

I am now 40, and have had extensive testing and scans, but they can't find my tumours. Again, that is not the case for everyone. There are still many who have the tests or scans done and it does reveal a neuroendocrine tumour.

The main thing is to get tested, and if your results come back as normal but another cause is not found, continue to get tested (e.g. make the blood tests part of a yearly check-up, or more regularly if symptoms worsen). I would also recommend keeping a record of when you flush, how long it lasts, whether there was an identifiable trigger; as well as when you have diarrhoea. If you notice the symptoms are developing over time then you have something you can show your doctor. And, take photos of your flushes, which you can use to show doctors who might be assessing you for the disease.

As I said at the start, these symptoms don't mean you have it, but it is good to be vigilant.

Wishing you all the best, Lauri.

2 Posts | Page(s): 1 
Subscribe to this message board discussion

Latest Messages

View More

We care about your feedback. Let us know how we can improve your CancerCompass experience.