Update. .

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RE: Update. .

by sue2070 on Wed Jul 29, 2015 05:35 PM

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Tom, I'm just interested in your story. My husband was recently diagnosed (June 2, 2015). We initially did tx locallly but we've come to MD Anderson for opinion/options. We have been diagnosed stage iv adenocarcinoma with mets to liver. The doctor told us surgery and or radiation would NEVER be an option because we had mets to the liver and because of mets to the liver surgery would not EVER be considered. But obviously sometimes people who have mets to liver do sometimes get surgery and radiation. He said radiation might be an option but only for pain management. I know all cases are different just wondering if there are things I'm missing that I should be asking this doctor.

RE: Update. .

by dshell17 on Wed Jul 29, 2015 06:10 PM

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Hi Sue,

Sorry to hear about your dx..Not sure what your exact conversation or situation is but i know of a few people who were given fulfirnox for stage IV and it killed the cancer in the liver and were able to move forward and have surgery. Never give up!

Good Luck!

RE: Update. .

by sue2070 on Wed Jul 29, 2015 08:35 PM

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dshell, We are on gem/abraxane due to my husband not being eligible for a port at initial point of tx. This doctor gave me the impression it didn't matter what happened in the liver that the cancer had traveled through the bloodstream and therefore surgery wasn't an option. I'm investigating further.

RE: Update. .

by TOMA76 on Thu Jul 30, 2015 01:42 AM

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Sue, 

        I think it depends on the doctors. In my case the surgery and radiation were decided by the tumor board at IU. To recap I was diagnosed stage IV September 29 2013. I had a 4cm tumor on my pancreas and 2 2 cm tumors on my liver. I had 12 rounds of folfirinox ...after the 12 rounds the tumor on my pancreas disapeared and  one of the tumors on my liver shrunk to almost nothing as well.  Leaving me with one sizeable tumor on my liver that the chemo did nothing with. The board decided to go forward with the whipple and liver resection.  What the doctors removed were about the size of the tip of a pen. The remaining liver lesion was then treated with nano knife radiation and to my knowledge is gone. I have followed up those two procedures with 12 rounds of gemzar and now am on my 6th treatment of xelox. I know why the doctors hesitate but if you are capable physically as a patient to handle it I dont why more doctors dont try. I was in treatment with another woman and another man who were in very similar situations.  We all had surgery. .so far the woman and myself are doing ok. Regretfully the other man who has become a good friend of mine suffered a reccurence on his pancreas and kidney and last week had a stroke and is now being moved to a nursing home. I dont know if any of this helps...if you would like feel free to private message me with any other questions. I pray for all the patients and caregivers on here.

                           Tom

  

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