Stage IV Colon Cancer-THC Cannabis Oil Therapy

259 Posts | Page(s): Prev 12...22 23 24 25 26  Next 

RE: Stage IV Colon Cancer-THC Cannabis Oil Therapy

by msrincon on Wed Jun 13, 2018 05:27 AM

Quote | Reply

On Sep 01, 2015 1:49 AM cscottandcarly wrote:

Scott is using about two grams a day.  It is an oil that looks like thick tar.  It comes pre-loaded in a syringe (not like an iv or shot syringe)- it's just like the kind of medicine syringe the pharmacy gives out for the kids antibiotics. 

Scott started out by taking small drop, the size of a grain of rice, and we increased pretty quickly over days and weeks.  He also takes CBD Oil Charlottes Web- which he also took in small doses at first.  He takes this primarily at bed time, where the THC Oil, he takes throughout the day.  

It sounds like most people are knocked out by THC Oil, but Scott has had not any issues.  He isn't even particularly high feeling or sleepy, but again, he has spent months taking in marijuana products for his epilepsy. I have read of studies showing that having a balance of high CBD and high THC can help minimize the psychoactive effects-maybe that’s why Scott has had no problems   There is also evidence that thes two components may work well together to fight cancer.

The psychoactive effect may not be so bad for Scott because he has the freedom to rest (and heal?) at his own will. And I am sure this helps make the therapy seem less overwhelming. Everyday, he at home in comfort with his kids around him, making sure he eats and making sure he keeps that oil going in and he sits in the sun a lot.  He is not trying to work or do a bunch high energy things- he is not trying to pretend he doesn't have cancer--healing is key.  Right now he can rest when he wants to and be active when he wants. But mostly it seems like his body wants him to rest. And we are going to be okay with that as long as the scans come back better and better...

We shall see.  

He has only been on the THC oil for a total of thirty days (21 on Colorado Cannabis Oil) but he has been on Charlottes Web Oil for almost five months and I think there might be a connection between the effectiveness and the keeping control the challenges of dealing with the high. 

I also just learned of creating a suppository using coconut oil and the cannabis oil and this can help minimize the high.  

The address info and website for the place we get the oil is below.

Caregivers for Life

Address: 310 St Paul St,Denver,CO80206

Phone:(720) 536-5462

http://caregiversforlife.net/colorado-cannabis-oil-aka-phoen ix-tears-rso-rick-simpson-oil/"" target="_blank" rel="nofollow">http://caregiversforlife.net/colorado-cannabis-oil-aka-phoen target="_blank" rel="nofollow">http://caregiversforlife.net/colorado-cannabis-oil-aka-phoen

For the Charlottes Web Oil you can contact Realm of Caring

I don't know if they sell to cancer patients or only epileptics.  

My husband was just diagnosed this week, so of course I have just been reading as much as I can. Thank u for sharing your journey.  I've ordered a full spectrum CBD for him and Sunday I picked up the thc oil.  He really doesn't want to do chemo.  This coming week he will be doing more tests and a scan.  We r hoping it hasn't popped up anywhere else.  He is Leary that he will be able to injest the amount needed,  bc the small amount he is taking knocks him out.  But it's only been a cpl days.  

RE: Stage IV Colon Cancer-THC Cannabis Oil Therapy

by Wickedinns on Wed Jun 13, 2018 11:25 AM

Quote | Reply

On Jun 13, 2018 5:27 AM msrincon wrote:

On Sep 01, 2015 1:49 AM cscottandcarly wrote:

Scott is using about two grams a day.  It is an oil that looks like thick tar.  It comes pre-loaded in a syringe (not like an iv or shot syringe)- it's just like the kind of medicine syringe the pharmacy gives out for the kids antibiotics. 

Scott started out by taking small drop, the size of a grain of rice, and we increased pretty quickly over days and weeks.  He also takes CBD Oil Charlottes Web- which he also took in small doses at first.  He takes this primarily at bed time, where the THC Oil, he takes throughout the day.  

It sounds like most people are knocked out by THC Oil, but Scott has had not any issues.  He isn't even particularly high feeling or sleepy, but again, he has spent months taking in marijuana products for his epilepsy. I have read of studies showing that having a balance of high CBD and high THC can help minimize the psychoactive effects-maybe that’s why Scott has had no problems   There is also evidence that thes two components may work well together to fight cancer.

The psychoactive effect may not be so bad for Scott because he has the freedom to rest (and heal?) at his own will. And I am sure this helps make the therapy seem less overwhelming. Everyday, he at home in comfort with his kids around him, making sure he eats and making sure he keeps that oil going in and he sits in the sun a lot.  He is not trying to work or do a bunch high energy things- he is not trying to pretend he doesn't have cancer--healing is key.  Right now he can rest when he wants to and be active when he wants. But mostly it seems like his body wants him to rest. And we are going to be okay with that as long as the scans come back better and better...

We shall see.  

He has only been on the THC oil for a total of thirty days (21 on Colorado Cannabis Oil) but he has been on Charlottes Web Oil for almost five months and I think there might be a connection between the effectiveness and the keeping control the challenges of dealing with the high. 

I also just learned of creating a suppository using coconut oil and the cannabis oil and this can help minimize the high.  

The address info and website for the place we get the oil is below.

Caregivers for Life

Address: 310 St Paul St,Denver,CO80206

Phone:(720) 536-5462

http://caregiversforlife.net/colorado-cannabis-oil-aka-phoen "" target="_blank" rel="nofollow">http://caregiversforlife.net/colorado-cannabis-oil-aka-phoen target="_blank" rel="nofollow">http://caregiversforlife.net/colorado-cannabis-oil-aka-phoen "" target="_blank" rel="nofollow">http://caregiversforlife.net/colorado-cannabis-oil-aka-phoen "" target="_blank" rel="nofollow">http://caregiversforlife.net/colorado-cannabis-oil-aka-phoen target="_blank" rel="nofollow">http://caregiversforlife.net/colorado-cannabis-oil-aka-phoen target="_blank" rel="nofollow">http://caregiversforlife.net/colorado-cannabis-oil-aka-phoen "" target="_blank" rel="nofollow">http://caregiversforlife.net/colorado-cannabis-oil-aka-phoen target="_blank" rel="nofollow">http://caregiversforlife.net/colorado-cannabis-oil-aka-phoen "" target="_blank" rel="nofollow">http://caregiversforlife.net/colorado-cannabis-oil-aka-phoen "" target="_blank" rel="nofollow">http://caregiversforlife.net/colorado-cannabis-oil-aka-phoen target="_blank" rel="nofollow">http://caregiversforlife.net/colorado-cannabis-oil-aka-phoen "" target="_blank" rel="nofollow">http://caregiversforlife.net/colorado-cannabis-oil-aka-phoen "" target="_blank" rel="nofollow">http://caregiversforlife.net/colorado-cannabis-oil-aka-phoen target="_blank" rel="nofollow">http://caregiversforlife.net/colorado-cannabis-oil-aka-phoen target="_blank" rel="nofollow">http://caregiversforlife.net/colorado-cannabis-oil-aka-phoen "" target="_blank" rel="nofollow">http://caregiversforlife.net/colorado-cannabis-oil-aka-phoen target="_blank" rel="nofollow">http://caregiversforlife.net/colorado-cannabis-oil-aka-phoen target="_blank" rel="nofollow">http://caregiversforlife.net/colorado-cannabis-oil-aka-phoen "" target="_blank" rel="nofollow">http://caregiversforlife.net/colorado-cannabis-oil-aka-phoen target="_blank" rel="nofollow">http://caregiversforlife.net/colorado-cannabis-oil-aka-phoen "" target="_blank" rel="nofollow">http://caregiversforlife.net/colorado-cannabis-oil-aka-phoen "" target="_blank" rel="nofollow">http://caregiversforlife.net/colorado-cannabis-oil-aka-phoen target="_blank" rel="nofollow">http://caregiversforlife.net/colorado-cannabis-oil-aka-phoen target="_blank" rel="nofollow">http://caregiversforlife.net/colorado-cannabis-oil-aka-phoen "" target="_blank" rel="nofollow">http://caregiversforlife.net/colorado-cannabis-oil-aka-phoen target="_blank" rel="nofollow">http://caregiversforlife.net/colorado-cannabis-oil-aka-phoen ix-tears-rso-rick-simpson-oil/"" target="_blank" rel="nofollow">http://caregiversforlife.net/colorado-cannabis-oil-aka-phoen "" target="_blank" rel="nofollow">http://caregiversforlife.net/colorado-cannabis-oil-aka-phoen target="_blank" rel="nofollow">http://caregiversforlife.net/colorado-cannabis-oil-aka-phoen "" target="_blank" rel="nofollow">http://caregiversforlife.net/colorado-cannabis-oil-aka-phoen "" target="_blank" rel="nofollow">http://caregiversforlife.net/colorado-cannabis-oil-aka-phoen target="_blank" rel="nofollow">http://caregiversforlife.net/colorado-cannabis-oil-aka-phoen target="_blank" rel="nofollow">http://caregiversforlife.net/colorado-cannabis-oil-aka-phoen "" target="_blank" rel="nofollow">http://caregiversforlife.net/colorado-cannabis-oil-aka-phoen target="_blank" rel="nofollow">http://caregiversforlife.net/colorado-cannabis-oil-aka-phoen "" target="_blank" rel="nofollow">http://caregiversforlife.net/colorado-cannabis-oil-aka-phoen "" target="_blank" rel="nofollow">http://caregiversforlife.net/colorado-cannabis-oil-aka-phoen target="_blank" rel="nofollow">http://caregiversforlife.net/colorado-cannabis-oil-aka-phoen "" target="_blank" rel="nofollow">http://caregiversforlife.net/colorado-cannabis-oil-aka-phoen "" target="_blank" rel="nofollow">http://caregiversforlife.net/colorado-cannabis-oil-aka-phoen target="_blank" rel="nofollow">http://caregiversforlife.net/colorado-cannabis-oil-aka-phoen target="_blank" rel="nofollow">http://caregiversforlife.net/colorado-cannabis-oil-aka-phoen "" target="_blank" rel="nofollow">http://caregiversforlife.net/colorado-cannabis-oil-aka-phoen target="_blank" rel="nofollow">http://caregiversforlife.net/colorado-cannabis-oil-aka-phoen target="_blank" rel="nofollow">http://caregiversforlife.net/colorado-cannabis-oil-aka-phoen "" target="_blank" rel="nofollow">http://caregiversforlife.net/colorado-cannabis-oil-aka-phoen target="_blank" rel="nofollow">http://caregiversforlife.net/colorado-cannabis-oil-aka-phoen "" target="_blank" rel="nofollow">http://caregiversforlife.net/colorado-cannabis-oil-aka-phoen "" target="_blank" rel="nofollow">http://caregiversforlife.net/colorado-cannabis-oil-aka-phoen target="_blank" rel="nofollow">http://caregiversforlife.net/colorado-cannabis-oil-aka-phoen target="_blank" rel="nofollow">http://caregiversforlife.net/colorado-cannabis-oil-aka-phoen "" target="_blank" rel="nofollow">http://caregiversforlife.net/colorado-cannabis-oil-aka-phoen target="_blank" rel="nofollow">http://caregiversforlife.net/colorado-cannabis-oil-aka-phoen target="_blank" rel="nofollow">http://caregiversforlife.net/colorado-cannabis-oil-aka-phoen "" target="_blank" rel="nofollow">http://caregiversforlife.net/colorado-cannabis-oil-aka-phoen target="_blank" rel="nofollow">http://caregiversforlife.net/colorado-cannabis-oil-aka-phoen "" target="_blank" rel="nofollow">http://caregiversforlife.net/colorado-cannabis-oil-aka-phoen "" target="_blank" rel="nofollow">http://caregiversforlife.net/colorado-cannabis-oil-aka-phoen target="_blank" rel="nofollow">http://caregiversforlife.net/colorado-cannabis-oil-aka-phoen target="_blank" rel="nofollow">http://caregiversforlife.net/colorado-cannabis-oil-aka-phoen "" target="_blank" rel="nofollow">http://caregiversforlife.net/colorado-cannabis-oil-aka-phoen target="_blank" rel="nofollow">http://caregiversforlife.net/colorado-cannabis-oil-aka-phoen "" target="_blank" rel="nofollow">http://caregiversforlife.net/colorado-cannabis-oil-aka-phoen "" target="_blank" rel="nofollow">http://caregiversforlife.net/colorado-cannabis-oil-aka-phoen target="_blank" rel="nofollow">http://caregiversforlife.net/colorado-cannabis-oil-aka-phoen "" target="_blank" rel="nofollow">http://caregiversforlife.net/colorado-cannabis-oil-aka-phoen "" target="_blank" rel="nofollow">http://caregiversforlife.net/colorado-cannabis-oil-aka-phoen target="_blank" rel="nofollow">http://caregiversforlife.net/colorado-cannabis-oil-aka-phoen target="_blank" rel="nofollow">http://caregiversforlife.net/colorado-cannabis-oil-aka-phoen "" target="_blank" rel="nofollow">http://caregiversforlife.net/colorado-cannabis-oil-aka-phoen target="_blank" rel="nofollow">http://caregiversforlife.net/colorado-cannabis-oil-aka-phoen target="_blank" rel="nofollow">http://caregiversforlife.net/colorado-cannabis-oil-aka-phoen "" target="_blank" rel="nofollow">http://caregiversforlife.net/colorado-cannabis-oil-aka-phoen target="_blank" rel="nofollow">http://caregiversforlife.net/colorado-cannabis-oil-aka-phoen "" target="_blank" rel="nofollow">http://caregiversforlife.net/colorado-cannabis-oil-aka-phoen "" target="_blank" rel="nofollow">http://caregiversforlife.net/colorado-cannabis-oil-aka-phoen target="_blank" rel="nofollow">http://caregiversforlife.net/colorado-cannabis-oil-aka-phoen target="_blank" rel="nofollow">http://caregiversforlife.net/colorado-cannabis-oil-aka-phoen "" target="_blank" rel="nofollow">http://caregiversforlife.net/colorado-cannabis-oil-aka-phoen target="_blank" rel="nofollow">http://caregiversforlife.net/colorado-cannabis-oil-aka-phoen

For the Charlottes Web Oil you can contact Realm of Caring

I don't know if they sell to cancer patients or only epileptics.  

My husband was just diagnosed this week, so of course I have just been reading as much as I can. Thank u for sharing your journey.  I've ordered a full spectrum CBD for him and Sunday I picked up the thc oil.  He really doesn't want to do chemo.  This coming week he will be doing more tests and a scan.  We r hoping it hasn't popped up anywhere else.  He is Leary that he will be able to injest the amount needed,  bc the small amount he is taking knocks him out.  But it's only been a cpl days.  

Hi Explore options for ingesting it... we were told get it into your body anyway you can. Suppositories was one of the options given to us. If you put the oil into caps you can do it that way. He shouldn’t have the high he gets with swallowing .... hope that helps...

RE: Stage IV Colon Cancer-THC Cannabis Oil Therapy

by PanCA on Fri Jun 22, 2018 04:19 AM

Quote | Reply

On Aug 27, 2015 1:11 AM cscottandcarly wrote:

Hi Amy.

Scott is taking Colorado Cannabis Oil and Charlotte's Web Oil, both are the highest THC and CBD that one can get.  I has a suspicion that it might be the combo of these two things that are working for Scott.

If you are in Colorado, I would get a hold of these two and forget the others.  We tried several high CBD oils and nothing stopped Scott's seizures until we got the Charlotte's Web.  

He has seizures from a car accident that he had as a teenager.  His seizures got worse and worse over the years and he almost died from them several times.  He was in a coma twice in one year from them and we knew we had to try something radical.  So we decided to try for Colorado and I got a job immediately and we moved out here last November.  

So anyway, I really think the Colorado Cannabis Oil which is supposed to be comparable to the Rick Simpson Oil.  It cost just under $600 for 30 grams.  Scott has taken about twenty or so grams thus far.  And the results are stunning.

Scott also has hereditary cancer, but we are still waiting on the Lynch results.  The Breast Cancer gene, which Scott has also has a 50% chance of passing on and they aren't sure if there is a colon connection-but it is possible.

What state are you in?

Keep me posted.   

Return to Cancer Compass,

I wonder if I can order CBD and THC shifted to TX since it is not legal here. Do you know? Please help me!

RE: Stage IV Colon Cancer-THC Cannabis Oil Therapy

by glowgirl on Fri Jun 22, 2018 04:27 AM

Quote | Reply

On Jun 22, 2018 4:19 AM PanCA wrote:

On Aug 27, 2015 1:11 AM cscottandcarly wrote:

Hi Amy.

Scott is taking Colorado Cannabis Oil and Charlotte's Web Oil, both are the highest THC and CBD that one can get.  I has a suspicion that it might be the combo of these two things that are working for Scott.

If you are in Colorado, I would get a hold of these two and forget the others.  We tried several high CBD oils and nothing stopped Scott's seizures until we got the Charlotte's Web.  

He has seizures from a car accident that he had as a teenager.  His seizures got worse and worse over the years and he almost died from them several times.  He was in a coma twice in one year from them and we knew we had to try something radical.  So we decided to try for Colorado and I got a job immediately and we moved out here last November.  

So anyway, I really think the Colorado Cannabis Oil which is supposed to be comparable to the Rick Simpson Oil.  It cost just under $600 for 30 grams.  Scott has taken about twenty or so grams thus far.  And the results are stunning.

Scott also has hereditary cancer, but we are still waiting on the Lynch results.  The Breast Cancer gene, which Scott has also has a 50% chance of passing on and they aren't sure if there is a colon connection-but it is possible.

What state are you in?

Keep me posted.   

Return to Cancer Compass,

I wonder if I can order CBD and THC shifted to TX since it is not legal here. Do you know? Please help me!

This thread hasn't been to active for awhile. However, you can come on over to Facebook Cannabis Success Stories and there will be lots of help for you there. I am pretty sure they can't ship into a state where it is illegal, but you can certainly make it yourself.

RE: Stage IV Colon Cancer-THC Cannabis Oil Therapy

by cscottandcarly on Mon Sep 24, 2018 07:10 PM

Quote | Reply

Hello, my Sweet Cancerland Friends!

First, I want to say, unequivocally, that this Cancer Compass Tread is most definitely still active, and it will continue as long as Scott lives. Perhaps even after that, too, because as it turns out this entire thread may end up to be evidence in a MURDER case. Scott’s cancer is spreading again and now we cannot get the treatment that saved his life! This message board thread is contemporaneous evidence that Scott’s treatments did, in fact, save him; and of course, we have all of the imaging studies and pathological reports to back up every single statement made. But now everything has changed. And I am scared.

Before I move forward, I cannot express how very sorry I am to have been so neglectful in my posting. I am not a social media person so posting here (or anywhere) is a huge thing for me to do, very uncomfortable, but I know it is very necessary. I really cannot believe I have stayed away for so long, especially since I really thought I had put an update on this board in March and/or July and replied to peoples private messages. I should have done it because I had important updates about our journey.  But perhaps I decided to wait and see what would happen, and Oh my Goodness, I waited and I sure have news about what happened!!!

It is shocking, terrifying and it makes me sick to even write it! It may also be the very last straw in my stance as a complacent cancer-patient caregiver.  

It appears that the FDA has now made it illegal to import Helixor (Scott’s Mistletoe Extract—made by a totally legitimate German pharmacy). Although this is a plant extract that was easy to get with guidance of an educated doctor, the United States FDA, has with absolutely NO evidence of Helixor being in anyway dangerous and with extensive studies that it is NOT dangerous, they have now made it so the only people who can get it are the handful of folks allowed in the FDA approved John Hopkins study. And Scott is ineligible for the study because he has used mistletoe treatment before.

There is so much to the story, and I will try to tell it. I am so busy right now, but hopefully, I can detail it quickly here and beyond this post, I must do something to make a difference, not just for Scott, but for all of you out there. I think I will have more time now, since I have left the beautiful Bed and Breakfast and have a normal job now. I really loved the job, but it was WAY too much for me, considering what I have going on in my personal like. Now I am back to doing hotel sales, letting other people run the property, and allowing me to put my energy into saving Scott’s life again.  

 

I will try to explain, in brief, what happened to us. In February/March 2018 we got a beautiful report of decreased/stable growth to where we felt really great about things.  Scott was at a precarious place in his Helixor treatment, where he was no longer having a reaction to doses, even at 200mg, so after consulting Scott's doctor, we knew the best course of action was to take a break from the Helixor so that if the cancer came back in force, Scott would be able to fight it effectively.

Well, in the interim, it came back to his lymph system. It has not spread to any organs, and perhaps this is because he continued lower dose of Cannabis Oils, but Scott’s Oncologists are extremely concerned with the spreading to his lymph nodes and throughout his retroperitoneal areas. So, we started Scott on the Helixor that we had left (back in 2017, we had ordered it in bulk, thankfully), and we went to order more to continue treatment, and that’s when the pharmaceutical company let us know that the FDA has put a stop to the import of the import of it into the US. 

This is all I know so far about the ban.

I will provide more details as I receive them. I reached out to BelieveBig.org , and they have responded. I will speak with them today and I will keep everyone posted.

Has anyone else able to get a hold of Helixor or Iscador in the form that should be injected subcutaneously? Incidentally, the FDA will let all other mistletoe into the country, except the kind that fights cancer!

Scott feels like they are trying to kill people with cancer. He feels so defeated. He did what the protocol recommended—Two different kinds of chemotherapy and 18 rounds of radiation. He tried. He didn’t give a care which treatment worked, whether it was the chemo, or the cannabis, whether it was the mistletoe or the radiation. He just wanted to live. Now the FDA says the ONLY treatments he is allowed to receive are the ones that not only didn’t work, but left him nearly physically destroyed and filled with even more cancer.

When he began Cannabis and Mistletoe, the cancer went away, and that was just the facts of what happened. The facts are that we would have LOVED if the other stuff worked. Scott’s insurance paid for all of it! We have to pay out of pocket for the effective treatments, and while their cost is a fraction of the colon cancer protocol costs, we could NEVER have afforded it if it weren’t for help from others. 

I am going to have to start speaking out about this. I don’t know how to do it, but I cannot keep letting people die. All I could think of through this whole experience was Thank God that we lived in Colorado, because cannabis is legal here, and I felt terribly sad and powerless in the fight for legalization elsewhere. I knew that if we still lived in Arkansas, as we did just 6 months before Scott was diagnosed, that he would have likely not survived, since the only treatment he was on went his liver metastasis regressed was THC/CBD oil, and it was this regression that allowed us time to figure out the mistletoe treatment.

So now we are in the same terrifying situation with mistletoe extract, which the FDA doesn’t even claim is dangerous. The only reason it has been stopped is that they have now begun to study it. Before when they did not accept that it could be helpful, it was fine to ship into the US, but now it is illegal. 

I am now calling out for help again…just like I did on my first post. I wanted help then because I was new to the cancer world and I hoped someone would know something to assist me. Well, three and half years later, I know a lot. I have learned words like apoptosis, angiogenesis, microsatellite instability, lectins, metastatic lymphadenopathy, and so much more. I know more than any regular mom-of-three, creative-writing-major, hotel-sales-woman, should ever have to know about cancer and how it works, and now that I have filled my brain with all of this, I need to put that to good use. 

So I am reaching out to anyone who can help me make a difference.  How can we make sure people know about this treatment so they have chance to.

We have all of the documentation to show that we didn’t make this up. People can read my posts from the day one and I think it is very obvious that we had no idea what would happen.  As I write this all, I am getting more and more terrified. I am remembering all of the other folks stuck in states and countries where cannabis is illegal for medical care, and I think of all of those who wanted to try cannabis or mistletoe because they had tried everything else and had no other options left.  Scott was there and if we weren't in Colorado, he'd have never lived long enough to try mistletoe (Helixor) and so everyday I thanked god that we lived in this state where we could get his medicine.  Well, now I know how terrifying the situation can be when the gov't say you can't have it. And this is what most people who get cancer deal with. Either it is not available or it is made to seem like it wouldn't work, so why try. Well, come on, FDA, you are promoting the use of FolFox! Have you seen the prognosis for Stage IV Colon Cancer. I am getting angrier every second! 

I have been sitting back watching my husband's life be saved with treatments that are actively being denied to others.  These people are dying. I have communicated directly with cancer patient caregivers, who were desperate and terrified because they unable to get cannabis oil for their loved one or unable to get a doctor to research the treatments like Helixor, which is a legitimate treatment in Germany, across Europe and elsewhere.

Instead of having oncologists come into a conversation with real information, I have heard so many stories of oncologist actively lying about these treatments, saying things that are in no way supported by facts. 

I am so infuriated. I am so tired of people dying needlessly because certain treatment do not fall under the Colon Cancer Protocol, which offers Stage IV patients a maximum of 12% survival rate.  The Protocol doesn't work for most people. That is what that statistic says. I didn't make that up.

Please God, please can we stop allowing FolFox or the other Protocol treatments to be presented as the only real option for people. I am so sorry for all of this rant, but I am freaking out here. Scott wil DIE if he doesn't get Helixor and he may die anyway, but why did the FDA do this? Can someone explain that to me, with honestly. Without lies about Helixor's danger, because that is not true. I also don't want to hear conspiracy theories. I cannot believe that is true. Our government could not possibly be doing this to kill people. I don't and won't believe that. I just want to hear the REAL reason. Who decided this. Why could Scott get Helixor last year, but now no more? What changed. Who changed it? 

  I have sent the copies of Scott's scans to people so they could show their oncologists the results, along with links to dozens of studies.  The doctors have NEVER responded supportively.  These people were DYING and the doctors told them lies. That the treatments would NOT help them, that it could HURT them.  There is NO evidence of that, in fact there is a vast amount of evidence to the contrary. And then these people DIED! And more are dying every day because of this, and now my husband may join them.

I am sorry. I have to stop. I apologize for this rant. I am so devastated for all of us in Cancerland. I love you all, and as I learn more moving down this horrible and painful road,I will keep you posted.

RE: Stage IV Colon Cancer-THC Cannabis Oil Therapy

by thompson4654 on Mon Sep 24, 2018 07:30 PM

Quote | Reply

My dear, I am  following your post since 2016 and I am sorry to hear about Scott's health changes.

For information, you still can order Mistletoe injections from Uriel Pharmacy, located here in US in Wisconsine . I just placed an order for 10ml Mistletoe injections, but they do require a doctor prescription now in order to ship. My doctor Adam Blanning from Colorado, had no issue submitting prescription to them. I hope this will help. Best regards.

urielpharmacy.com

Here their contact info:

Phone:1.866.642.2858(toll-free)

Fax:1.262.642.8780

Mail
Uriel Pharmacy
N8464 Sterman Road
East Troy, WI 53120

RE: Stage IV Colon Cancer-THC Cannabis Oil Therapy

by Wibbers on Mon Sep 24, 2018 09:58 PM

Quote | Reply

On Sep 24, 2018 7:10 PM cscottandcarly wrote:

Hello, my Sweet Cancerland Friends!

First, I want to say, unequivocally, that this Cancer Compass Tread is most definitely still active, and it will continue as long as Scott lives. Perhaps even after that, too, because as it turns out this entire thread may end up to be evidence in a MURDER case. Scott’s cancer is spreading again and now we cannot get the treatment that saved his life! This message board thread is contemporaneous evidence that Scott’s treatments did, in fact, save him; and of course, we have all of the imaging studies and pathological reports to back up every single statement made. But now everything has changed. And I am scared.

Before I move forward, I cannot express how very sorry I am to have been so neglectful in my posting. I am not a social media person so posting here (or anywhere) is a huge thing for me to do, very uncomfortable, but I know it is very necessary. I really cannot believe I have stayed away for so long, especially since I really thought I had put an update on this board in March and/or July and replied to peoples private messages. I should have done it because I had important updates about our journey.  But perhaps I decided to wait and see what would happen, and Oh my Goodness, I waited and I sure have news about what happened!!!

It is shocking, terrifying and it makes me sick to even write it! It may also be the very last straw in my stance as a complacent cancer-patient caregiver.  

It appears that the FDA has now made it illegal to import Helixor (Scott’s Mistletoe Extract—made by a totally legitimate German pharmacy). Although this is a plant extract that was easy to get with guidance of an educated doctor, the United States FDA, has with absolutely NO evidence of Helixor being in anyway dangerous and with extensive studies that it is NOT dangerous, they have now made it so the only people who can get it are the handful of folks allowed in the FDA approved John Hopkins study. And Scott is ineligible for the study because he has used mistletoe treatment before.

There is so much to the story, and I will try to tell it. I am so busy right now, but hopefully, I can detail it quickly here and beyond this post, I must do something to make a difference, not just for Scott, but for all of you out there. I think I will have more time now, since I have left the beautiful Bed and Breakfast and have a normal job now. I really loved the job, but it was WAY too much for me, considering what I have going on in my personal like. Now I am back to doing hotel sales, letting other people run the property, and allowing me to put my energy into saving Scott’s life again.  

 

I will try to explain, in brief, what happened to us. In February/March 2018 we got a beautiful report of decreased/stable growth to where we felt really great about things.  Scott was at a precarious place in his Helixor treatment, where he was no longer having a reaction to doses, even at 200mg, so after consulting Scott's doctor, we knew the best course of action was to take a break from the Helixor so that if the cancer came back in force, Scott would be able to fight it effectively.

Well, in the interim, it came back to his lymph system. It has not spread to any organs, and perhaps this is because he continued lower dose of Cannabis Oils, but Scott’s Oncologists are extremely concerned with the spreading to his lymph nodes and throughout his retroperitoneal areas. So, we started Scott on the Helixor that we had left (back in 2017, we had ordered it in bulk, thankfully), and we went to order more to continue treatment, and that’s when the pharmaceutical company let us know that the FDA has put a stop to the import of the import of it into the US. 

This is all I know so far about the ban.

I will provide more details as I receive them. I reached out to BelieveBig.org "" target="_blank" rel="nofollow">http://BelieveBig.org " target="_blank" rel="nofollow">BelieveBig.org , and they have responded. I will speak with them today and I will keep everyone posted.

Has anyone else able to get a hold of Helixor or Iscador in the form that should be injected subcutaneously? Incidentally, the FDA will let all other mistletoe into the country, except the kind that fights cancer!

Scott feels like they are trying to kill people with cancer. He feels so defeated. He did what the protocol recommended—Two different kinds of chemotherapy and 18 rounds of radiation. He tried. He didn’t give a care which treatment worked, whether it was the chemo, or the cannabis, whether it was the mistletoe or the radiation. He just wanted to live. Now the FDA says the ONLY treatments he is allowed to receive are the ones that not only didn’t work, but left him nearly physically destroyed and filled with even more cancer.

When he began Cannabis and Mistletoe, the cancer went away, and that was just the facts of what happened. The facts are that we would have LOVED if the other stuff worked. Scott’s insurance paid for all of it! We have to pay out of pocket for the effective treatments, and while their cost is a fraction of the colon cancer protocol costs, we could NEVER have afforded it if it weren’t for help from others. 

I am going to have to start speaking out about this. I don’t know how to do it, but I cannot keep letting people die. All I could think of through this whole experience was Thank God that we lived in Colorado, because cannabis is legal here, and I felt terribly sad and powerless in the fight for legalization elsewhere. I knew that if we still lived in Arkansas, as we did just 6 months before Scott was diagnosed, that he would have likely not survived, since the only treatment he was on went his liver metastasis regressed was THC/CBD oil, and it was this regression that allowed us time to figure out the mistletoe treatment.

So now we are in the same terrifying situation with mistletoe extract, which the FDA doesn’t even claim is dangerous. The only reason it has been stopped is that they have now begun to study it. Before when they did not accept that it could be helpful, it was fine to ship into the US, but now it is illegal. 

I am now calling out for help again…just like I did on my first post. I wanted help then because I was new to the cancer world and I hoped someone would know something to assist me. Well, three and half years later, I know a lot. I have learned words like apoptosis, angiogenesis, microsatellite instability, lectins, metastatic lymphadenopathy, and so much more. I know more than any regular mom-of-three, creative-writing-major, hotel-sales-woman, should ever have to know about cancer and how it works, and now that I have filled my brain with all of this, I need to put that to good use. 

So I am reaching out to anyone who can help me make a difference.  How can we make sure people know about this treatment so they have chance to.

We have all of the documentation to show that we didn’t make this up. People can read my posts from the day one and I think it is very obvious that we had no idea what would happen.  As I write this all, I am getting more and more terrified. I am remembering all of the other folks stuck in states and countries where cannabis is illegal for medical care, and I think of all of those who wanted to try cannabis or mistletoe because they had tried everything else and had no other options left.  Scott was there and if we weren't in Colorado, he'd have never lived long enough to try mistletoe (Helixor) and so everyday I thanked god that we lived in this state where we could get his medicine.  Well, now I know how terrifying the situation can be when the gov't say you can't have it. And this is what most people who get cancer deal with. Either it is not available or it is made to seem like it wouldn't work, so why try. Well, come on, FDA, you are promoting the use of FolFox! Have you seen the prognosis for Stage IV Colon Cancer. I am getting angrier every second! 

I have been sitting back watching my husband's life be saved with treatments that are actively being denied to others.  These people are dying. I have communicated directly with cancer patient caregivers, who were desperate and terrified because they unable to get cannabis oil for their loved one or unable to get a doctor to research the treatments like Helixor, which is a legitimate treatment in Germany, across Europe and elsewhere.

Instead of having oncologists come into a conversation with real information, I have heard so many stories of oncologist actively lying about these treatments, saying things that are in no way supported by facts. 

I am so infuriated. I am so tired of people dying needlessly because certain treatment do not fall under the Colon Cancer Protocol, which offers Stage IV patients a maximum of 12% survival rate.  The Protocol doesn't work for most people. That is what that statistic says. I didn't make that up.

Please God, please can we stop allowing FolFox or the other Protocol treatments to be presented as the only real option for people. I am so sorry for all of this rant, but I am freaking out here. Scott wil DIE if he doesn't get Helixor and he may die anyway, but why did the FDA do this? Can someone explain that to me, with honestly. Without lies about Helixor's danger, because that is not true. I also don't want to hear conspiracy theories. I cannot believe that is true. Our government could not possibly be doing this to kill people. I don't and won't believe that. I just want to hear the REAL reason. Who decided this. Why could Scott get Helixor last year, but now no more? What changed. Who changed it? 

  I have sent the copies of Scott's scans to people so they could show their oncologists the results, along with links to dozens of studies.  The doctors have NEVER responded supportively.  These people were DYING and the doctors told them lies. That the treatments would NOT help them, that it could HURT them.  There is NO evidence of that, in fact there is a vast amount of evidence to the contrary. And then these people DIED! And more are dying every day because of this, and now my husband may join them.

I am sorry. I have to stop. I apologize for this rant. I am so devastated for all of us in Cancerland. I love you all, and as I learn more moving down this horrible and painful road,I will keep you posted.

Oh no, I’m so sorry to hear this crappy news! I pray that you are able to once again get the mistletoe extract using their offerred information. Do you know if the mistletoe helps people with stage IV melanoma? I’m still stable with my SCC, but I have a dear friend with the melanoma. She is already using the thc/cbd. I’m going to also ask some friends of mine about the mistletoe, they may know where to get it. They’ve been really active in the thc community as it saved her husband’s life. If I get any news from them, I’ll let you know.

RE: Stage IV Colon Cancer-THC Cannabis Oil Therapy

by itsjatt on Mon Sep 24, 2018 11:32 PM

Quote | Reply

Cancer is not a disease, its $100B industry. It is bigger than the economy of many countries.More than that, it gives many of us a reason to spend on expensive premiums in case we are hit.

Mistletoe has been part of German Cancer treatment protocol since early 1900's. Its part of standard treatment in Canada and its allowed by UK too.

The reason why US doesnt allow it is because it is cheap and reliable.If people come to know about Mistletoe then who will buy the insurance after all Mistletoe doesnt cost a fraction of the insurance premium.

Unless, govt is inclined to make it as part of main therapy, any amount of cancer compasses will not be effective.

As an alternative, you may seek someones help in Canada to get you Mistletoe.

RE: Stage IV Colon Cancer-THC Cannabis Oil Therapy

by cscottandcarly on Tue Sep 25, 2018 12:56 AM

Quote | Reply

OMG that is amazing! Thank you soooooo much!  I actually tried to use this site recently, but couldn't get the order to go through. It did look like it should work, but no matter what I did, it wouldn't go through. So, with the new regulations and my failed attempt to order from mistletoepharmacy.com , who sells Helixor directly, I never went back to try it at urielpharmacy. 

Scott is a patient of Dr. Blanning's, too and I have just called him today to ask his advice.  

I also would like to say that I reached out to Believe Big, the organization pushing for Mistletoe and raising funds for the FDA approved Johns Hopkins study, and they immediately responded in the most heartfelt and helpful way. They were my original resource to find Dr. Blanning, and he is so wonderful. 

Believe Big informed me that there are two places in Colorado that do Mistletoe Infusion IV therapy, but I don't know yet anything about it. I have my consult call with the Boulder clinic tomorrow. I do know the first real consultation with them is almost $500, and Believe Big provides a grant to pay for the consultation. How much the treatment is, I do not know. I will keep you all posted on that.

Oh, hey, I just talked to Dr. Blanning, and we have an appointment with him for Thursday. I love that man. He did confirm the situation with the other pharmacy, so I am so totally relieved. I can't tell you how good it feels to talk to Dr. Blanning. I should have called him immediately when Scott's oncologist put us on Cancer Red Alert.

Dr. Blanning is a true doctor. Just like Dr. Fisher, who was Scott's oncologist, and sadly retired just as this growth began. Scott was with him from the day he visited us while still in the hospital after the ER visit that led to the Big C surgery, etc. From Day One, Dr. Fisher was so supportive of our choices. Maybe if we had not tried and failed at chemo and radiation, he would not have been so supportive of doing these different treatments, but whatever the reason, he made us feel like it was worth it to try. I also think he probably knew the traditional treatments offeredScottlittle chance for survival. 

I hope doctors know how much empowering us as patients means to our survival.  The taking away of choices and options is what makes our hope evaporate.  Scott did what they said. Dr. Fisher and Dr. Blanning stood by us and supported us and empower us, and I don't know what we would we have done.

I hope others are lucky enough to happen upon good doctors. I don't think we would have had the energy or knowledge at the beginning of this journey to even recognize what a doctor looked like. 

When we talked to Fisher about Mistletoe, he immediately started to research it. He didn't say NO. He didn't ridicule the idea. He didn't help us find the medicine, but he didn't lie to us about it.His honesty, and his willingness to show that he didn't know EVERYTHING gave us all we needed to keep researching it.He gave us facts that he knew, and let us do what seemed right. It seems that unless you get a doctor like Fisher, you might not really get the truth.  That's really terrible and seems against the physicians oath.

Doctors who immediately quash all ideas of doing something off protocol give patients no hope if the traditional treatments fail. Then what hope is left?

I just took a look at MD Anderson's colon cancer prognosis calculator, and I plugged in Scott's data. As a 42 year old, white male with a poorly differentiated Stage IV Colon Cancer diagnosis, he had a 14% chance of living to 3 years. That's WITH treatment.  

Thank God that we NEVER asked "how long".

He has treated his cancer successfully for 3 years with cannabis oil and mistletoe and he is definitly not on death's doorstep. He is in for another fight, but we are sure that if we can just get this treatment, we can win.

But how can we make sure everyone can get it?

RE: Stage IV Colon Cancer-THC Cannabis Oil Therapy

by Wickedinns on Tue Sep 25, 2018 01:27 AM

Quote | Reply

On Sep 25, 2018 12:56 AM cscottandcarly wrote:

OMG that is amazing! Thank you soooooo much!  I actually tried to use this site recently, but couldn't get the order to go through. It did look like it should work, but no matter what I did, it wouldn't go through. So, with the new regulations and my failed attempt to order from mistletoepharmacy.com "" target="_blank" rel="nofollow">http://mistletoepharmacy.com " target="_blank" rel="nofollow">mistletoepharmacy.com , who sells Helixor directly, I never went back to try it at urielpharmacy. 

Scott is a patient of Dr. Blanning's, too and I have just called him today to ask his advice.  

I also would like to say that I reached out to Believe Big, the organization pushing for Mistletoe and raising funds for the FDA approved Johns Hopkins study, and they immediately responded in the most heartfelt and helpful way. They were my original resource to find Dr. Blanning, and he is so wonderful. 

Believe Big informed me that there are two places in Colorado that do Mistletoe Infusion IV therapy, but I don't know yet anything about it. I have my consult call with the Boulder clinic tomorrow. I do know the first real consultation with them is almost $500, and Believe Big provides a grant to pay for the consultation. How much the treatment is, I do not know. I will keep you all posted on that.

Oh, hey, I just talked to Dr. Blanning, and we have an appointment with him for Thursday. I love that man. He did confirm the situation with the other pharmacy, so I am so totally relieved. I can't tell you how good it feels to talk to Dr. Blanning. I should have called him immediately when Scott's oncologist put us on Cancer Red Alert.

Dr. Blanning is a true doctor. Just like Dr. Fisher, who was Scott's oncologist, and sadly retired just as this growth began. Scott was with him from the day he visited us while still in the hospital after the ER visit that led to the Big C surgery, etc. From Day One, Dr. Fisher was so supportive of our choices. Maybe if we had not tried and failed at chemo and radiation, he would not have been so supportive of doing these different treatments, but whatever the reason, he made us feel like it was worth it to try. I also think he probably knew the traditional treatments offeredScottlittle chance for survival. 

I hope doctors know how much empowering us as patients means to our survival.  The taking away of choices and options is what makes our hope evaporate.  Scott did what they said. Dr. Fisher and Dr. Blanning stood by us and supported us and empower us, and I don't know what we would we have done.

I hope others are lucky enough to happen upon good doctors. I don't think we would have had the energy or knowledge at the beginning of this journey to even recognize what a doctor looked like. 

When we talked to Fisher about Mistletoe, he immediately started to research it. He didn't say NO. He didn't ridicule the idea. He didn't help us find the medicine, but he didn't lie to us about it.His "" target="_blank" rel="nofollow">http://it.His " target="_blank" rel="nofollow">it.His honesty, and his willingness to show that he didn't know EVERYTHING gave us all we needed to keep researching it.He "" target="_blank" rel="nofollow">http://it.He " target="_blank" rel="nofollow">it.He gave us facts that he knew, and let us do what seemed right. It seems that unless you get a doctor like Fisher, you might not really get the truth.  That's really terrible and seems against the physicians oath.

Doctors who immediately quash all ideas of doing something off protocol give patients no hope if the traditional treatments fail. Then what hope is left?

I just took a look at MD Anderson's colon cancer prognosis calculator, and I plugged in Scott's data. As a 42 year old, white male with a poorly differentiated Stage IV Colon Cancer diagnosis, he had a 14% chance of living to 3 years. That's WITH treatment.  

Thank God that we NEVER asked "how long".

He has treated his cancer successfully for 3 years with cannabis oil and mistletoe and he is definitly not on death's doorstep. He is in for another fight, but we are sure that if we can just get this treatment, we can win.

But how can we make sure everyone can get it?

I am storing all this info for future reference!!! My hubby is coming to an end of a clinical trial...actually had to stop just short of it as it attacked his liver... a doctor I know in Germany put me in touch with her oncologist daughter in England and she suggested mistletoe... all this info is great !!! Prayers for Scott...you have worked so hard and been a wonderful advocate and strong supporter !!! Keep the faith !!!!! Wanda
259 Posts | Page(s): Prev 12...22 23 24 25 26  Next 
Subscribe to this message board discussion

Latest Messages

View More

We care about your feedback. Let us know how we can improve your CancerCompass experience.