Stage IV Colon Cancer-THC Cannabis Oil Therapy

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RE: Stage IV Colon Cancer-THC Cannabis Oil Therapy

by cscottandcarly on Wed Sep 26, 2018 06:41 PM

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Thank you all for the kind words going back for over three years. I wish I could express my appreciation more fully, and I hope the information I have provided will help folks.

Just like I needed help at the start of this whenI was seeking info, but at the time no one seemed to have any, and it still seems hard to find the truth from doctors. Especially from oncologists from whom we are seeking advice. Not standards, but true educated information from the cutting edge of science, not only the 75-year-old failing treatment choices! Which they say, based on thier own stats, are not likely to work in the long run. Remember, Scott had a 14% chance of living to three years, and he has passed that now, and he is NOT going anywhere anytime soon! And I want everyone to have the same chance that we did. This cannot be about luck. Are you lucky enough to have the info shared with you by a doctor? If not, and the treatments fail, what then. Or what if the only treatments they offer almost kill you, like they almost did Scott.   Information is power! You have to know the choices available to be able to make them!!!

So, with that, I am driven to share every bit of information I have and really this tread contains most everything I have learned and invented (like my suppository recipe). 

And yes, to respond directly to the post about the EVIL of the industry that keeps truth from those who are sick or dying, I do believe that there is something terrible about this system.

I have heard the equating of treatmentslike cannabis and mistletoe to Quackery, and I fear this will continue to happen as long as the control of healthcare is in the hands of those profiting from the Medical/Cancer-Industrial-Complex. 

I really cannot ignore the fact that the doctors continue to act totally confused as to how Scott’s cancer could have regressed, and I cannot ignore the fact that when I began to researchmistletoe and cannabis, that thescientific studies are pretty unequivocal, there is A LOT of evidence.

Any Oncologist who continues to remain ignorant to these treatment options is complicit in the deaths of every patient who dies while in thier care. Especially if they recommend patients AGAINST these treatments--which MANY do. If a doctor does that, then I think that they are guilty of something very serious. 

So back to the update…

After the initial bad scan in late July, we started Scott back on the very last of his Helixor (mistletoe). He is about one month into treatment, and since then we have been trying to get a hold of more before he runs out. 

On Thursday, September 20thScott had a new scan and it showed a lot more growth, really super scary stuff. But it also detailed that the metastatic lymphadenopathy is showing signs of necrosis.

Hopefully, this means the mistletoe treatment is working. We will know more Thursday, when we meet with Dr. Blanning (the Mistletoe Doc). 

I will keep everyone posted once we find out what is next.

Check out the wesites below, they are pages on theCancer.gov site regarding cannabis and mistletoe studies.I think if our own gov't is unable to deny these scientific studies, then our oncologists shouldn't.

They detail dozens of studies showing positive effects of these medicines in the treatment of cancer--even pancreatic!

When you look at these studies, please keep in mind that THIS is why we chose this path for Scott after all else failed and why we thought it might actually work.We are NOT natural remedy folks (not that there is ANYTHING wrong with that, it is just not who we are)

When you read these studies, it is clear how they worked to take Scott from cancer-ridden to ridding himself of cancer.

Because we screwed up and went off mistletoe instead of proceeding with a long-range maintenence plan, we have to fight this cancer again. But I am NOT scared this time, because now we have the answer (and just as important, we have access to the medicine) and I KNOW it will work.

Science tells me so.

https://www.cancer.gov/about-cancer/treatment/cam/hp/mistlet

https://www.cancer.gov/about-cancer/treatment/cam/hp/cannabi

https://www.cancer.gov/about-cancer/treatment/cam/hp/cannabi

RE: Stage IV Colon Cancer-THC Cannabis Oil Therapy

by cscottandcarly on Wed Sep 26, 2018 07:57 PM

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I am not sure why, but I just discovered that Cancer Compass will has not posted all of my messages. I noticed because the last one I wrote said it had to be approved first, but it hasn't been.

So I went back to look at my computer documents and I found that this has happened more than a couple of times. I had originally written many to posts as word documents and then pasted them into this thread, but it seems that several were not approved to be posted

So it looks like I actually had tried to post updates since last February, they just aren't here.  Weird.  We will see if the message I wrote earlier will end up posted.

RE: Stage IV Colon Cancer-THC Cannabis Oil Therapy

by cscottandcarly on Wed Sep 26, 2018 09:56 PM

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The following is the post that Cancercompass will not let me post for some reason, and I think it is because I had a link to a website.  So below is what I wrote and if they ever approve it, I guess it will be here twice...

Thank you all for the kind words going back for over three years. I wish I could express my appreciation more fully, and I hope the information I have provided will help folks. Just like I needed help at the start of this. I was seeking info, but at the time know one had any, and still it is hard to find the truth, it seems. Especially from the professionals we are seeking help from. So I am happy to share every bit of info I have, and I think I have. This message board contains most everything I have learned.

Yes, in reply to Itsjatt's comments about the medical industry, I do believe that there is something terrible about the system, and I do think that things like cannabis and mistletoe will be forever vilified as Quackery by those who profit from the Medical-Industrial-Complex. I really cannot ignore the fact that the doctors do act totally confused as to how Scott’s cancer could have regressed, and I cannot ignore the fact that when I began to research the scientific studies that have been done on mistletoe and cannabis that there is a LOT of evidence.

Any Oncologist who continues to remain ignorant to these treatments is complicit in the deaths of every patient who dies. Especially if they recommend patients against these treatments. If they do that, then they are guilty of something very serious, in my mind. Particularly with the abysmal stats on Stage IV Colon Cancer---this cancer IS something you can beat.

So back to the update…

After the initial bad scan in late July, we started Scott back on the very last of his Helixor (mistletoe). He is about one month into treatment, and since then we have been trying to get a hold of more before he runs out. 

On Thursday, September 20thScott had a new scan and it showed a lot more growth’ super scary stuff. But it also detailed that the metastatic lymphadenopathy is showing signs of necrosis.

Hopefully, this means the mistletoe treatment is working. We will know more Thursday, when we meet with Dr. Blanning (the Mistletoe Doc). 

I will keep everyone posted once we find out what is next.

Please check out the Mistletoe studies on Cancerdotgov (I won't put the proper link cause it will be stopped, I think)and look at what they have on cannabis. I don't like how they have the cannabis studies page, as they do not divide out the studies and detail them the way the do the mistletoe page, but regardless, the info is pretty good, and is a good starting point for research.  The mistletoe page shows many studies and the amazing results. 

For me, understanding cancer and how it works and then understanding how the cancer process is reversed, it makes sense that cannabis and mistletoe would work. 

RE: Stage IV Colon Cancer-THC Cannabis Oil Therapy

by cscottandcarly on Sat Sep 29, 2018 04:14 AM

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Update time...
Bad news... My hopes of the scan being somewhat positive were dashed. We visited one of Scott's doctors and he explained that the kind of necrosis Scott shows does not indicate that the treatment is working. We trust his opinion (although we hope he's wrong), and we trust his advice (even though the advice was not what we wanted to hear).

That's all I can say now. We are hurting really bad right now, scared of the journey ahead, afraid of the man made impediments to this God and earth made healing.

But we have total hope. It will take time, but we are ready for whatever comes and know we will be victorious!

Also, just a quick message to those who have reached out privately. My account does not show any private messages sent to me after July of 2018. I don't know why that is the case, but I thought I should let you know why I may not have answered any message that you sent.

I have reached out to the cancer compass folks about challenges posting and recieving messages, and I am still awaiting a response.

This being said, I'm happy to assist in whatever way I can. Please remember, I am not in anyway a medical professional. I am literally just the wife of a guy who was diagnosed with cancer in May of 2015. That's it. I only know what I have experienced, and this is always communicated through my own lens. So please do tons of research and use all information you learn to lead you to search for more information. 

Also, please let me know if you have tried to reach me unsuccessfully. I haven't gotten a private message since July, according to my list of notifications, so that seems unlikely, and I am quite sure I have answered messages from people.

All my best, everyone! I will keep yall posted!

RE: Stage IV Colon Cancer-THC Cannabis Oil Therapy

by farahb on Mon Oct 01, 2018 01:15 PM

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These are not the news that we wanted to hear !! Most important is to not lose hope. Regarding the emails I tried emailing you a few times to ask you about the mistletoe treatment. My father was diagnosed February 2016 with colon cancer spread to the liver he’s done a lot of chemos and a couple of surgeries and we just started him on the mistletoe treatment. From experience do you think it might help him ? And after how long of doing the mistletoe did Scott start seeing results ? Thank you soo much!

RE: Stage IV Colon Cancer-THC Cannabis Oil Therapy

by cscottandcarly on Mon Oct 01, 2018 02:22 PM

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Yeah, we're definitely not pleased with the reading of the scan, and I'm sure we will be even more displeased after seeing the oncologist this morning. 

We only want the truth so whatever is said, we are okay about it, but it sucks to get bad news. 

We are back on the mistletoe so we know things will improve, even if we have to change kinds of mistletoe. 

I plan to detail all of the news from both appts later today.

I don't think I've seen a message from you Farah, but I'll look.

I'll be sure to update soon.

RE: Stage IV Colon Cancer-THC Cannabis Oil Therapy

by Wickedinns on Mon Oct 01, 2018 09:00 PM

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On Oct 01, 2018 2:22 PM cscottandcarly wrote:

Yeah, we're definitely not pleased with the reading of the scan, and I'm sure we will be even more displeased after seeing the oncologist this morning. 

We only want the truth so whatever is said, we are okay about it, but it sucks to get bad news. 

We are back on the mistletoe so we know things will improve, even if we have to change kinds of mistletoe. 

I plan to detail all of the news from both appts later today.

I don't think I've seen a message from you Farah, but I'll look.

I'll be sure to update soon.

You are amazing Carly...don’t ever give up hope ! I don’t use this site very often...I prefer smart patient...much more user friendly but I try and keep up with you... My hubby is almost finished two years of keytruda but it attacked his liver and now we wait to see the next step. He has been on high dose THC/ CBD cannabis since six months after dx... I am a believer in health and positive mind as well as natural treatments but it is not my life so I can only do the best I can. Such a long exhausting story over the last two and a half years... anyway... keep up the great work...prayers and hope!! Wanda

RE: Stage IV Colon Cancer-THC Cannabis Oil Therapy

by cscottandcarly on Wed Oct 03, 2018 04:55 AM

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Well, I am NOT amazing. I have had this easy, honestly. Way easy. Things are about to get tough...tough in the same way it has been for everyone else. Doctor tough.

As you may remember,  in June, Scott's amazing oncologist retired. We had the second visit with his new oncologist yesterday, and it didn't feel very feel good. While the doc recommended trying mistletoe again, he did not have any faith that It will work again.

He also seemed to not have really read Scott's history. He said things that were totally in opposition to the facts and explained things using these inaccurate narratives. It was weird.

I understand that Scott has over 3 and 1/2 years of Stage IV Colon Cancer records, dozens of office visits, at least a dozen scans, dozens of blood tests and hospital visits. That's a lot to read, especially for a doctor with so many patients.

But in my estimation, Scott is worth the read and it would make the doctor's advice more valuable. Instead of being interested and invested in our journey, he seemed to want off the ship. 

It felt nearly adversarial at one point, particularly when he said wouldn't allow Scott to use mistletoe and Folfiri. He said it could harm Scott and he wouldn't approve them to be co-prescribed. He at first refused to do blood work on Scott, saying he should have it done by the mistletoe doctor! Even tho Rocky Mountain cancer Center's has been providing care to Scott since May 2015 and we have done everything they have ever recommended, from 2 chemos to 18 rounds of radiation. We wish they had worked, honestly. He implied Scott should have tried longer with folfox even though the first onc stopped it cause of toxicity and Folfiri is similar. Just like it's similar to xeloda which Scott took for months during which his cancer spread throughout his entire abdominal cavity and around his heart. The Folfiri will not cure him and it will give him a 10 to 30% chance to live up to one year longer

Anyway, it's so crazy. I'll give more info very very soon. Night night!

RE: Stage IV Colon Cancer-THC Cannabis Oil Therapy

by Kierannolan1234 on Fri Oct 05, 2018 08:49 PM

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Hi I was wondering how to beat bowel cancer I’ve been told it’s terminal any help thanks

RE: Stage IV Colon Cancer-THC Cannabis Oil Therapy

by Wibbers on Sat Oct 06, 2018 12:47 AM

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On Oct 03, 2018 4:55 AM cscottandcarly wrote:

Well, I am NOT amazing. I have had this easy, honestly. Way easy. Things are about to get tough...tough in the same way it has been for everyone else. Doctor tough.

As you may remember,  in June, Scott's amazing oncologist retired. We had the second visit with his new oncologist yesterday, and it didn't feel very feel good. While the doc recommended trying mistletoe again, he did not have any faith that It will work again.

He also seemed to not have really read Scott's history. He said things that were totally in opposition to the facts and explained things using these inaccurate narratives. It was weird.

I understand that Scott has over 3 and 1/2 years of Stage IV Colon Cancer records, dozens of office visits, at least a dozen scans, dozens of blood tests and hospital visits. That's a lot to read, especially for a doctor with so many patients.

But in my estimation, Scott is worth the read and it would make the doctor's advice more valuable. Instead of being interested and invested in our journey, he seemed to want off the ship. 

It felt nearly adversarial at one point, particularly when he said wouldn't allow Scott to use mistletoe and Folfiri. He said it could harm Scott and he wouldn't approve them to be co-prescribed. He at first refused to do blood work on Scott, saying he should have it done by the mistletoe doctor! Even tho Rocky Mountain cancer Center's has been providing care to Scott since May 2015 and we have done everything they have ever recommended, from 2 chemos to 18 rounds of radiation. We wish they had worked, honestly. He implied Scott should have tried longer with folfox even though the first onc stopped it cause of toxicity and Folfiri is similar. Just like it's similar to xeloda which Scott took for months during which his cancer spread throughout his entire abdominal cavity and around his heart. The Folfiri will not cure him and it will give him a 10 to 30% chance to live up to one year longer

Anyway, it's so crazy. I'll give more info very very soon. Night night!

I’m so sorry for this crappy news, you have fought so incredibly hard for your husband, I just can’t believe all these obstacles you’re facing now. ?? I think I have messaged you a couple of times, or more. I’ve been following you as you went thru this journey. I agree, this sight isn’t very user friendly. You have my prayers, I pray that the mistle toe starts working soon, and that things start going better with his new oncologist. I hate it when a dr you love retires or moves! Please keep us updated, and don’t lose faith sweeet girl! ??????
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