Anaplastic Astrocytoma

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RE: Anaplastic Astrocytoma

by HopeFaithLive on Fri Aug 28, 2015 12:06 PM

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Hello Dick, In 2008 was the surgen able to remove all of the tumor or was there still some that was not removed?  Do to size and the location of the tumor my daughters surgen was only able to remove about 80%.  Thank you

RE: Anaplastic Astrocytoma

by HopeFaithLive on Fri Aug 28, 2015 12:11 PM

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Dodger,  Thank you so much for the level of detail and continuing to post here on cancer compass.  Your posts and replys are very informative and truely help myself and I'm sure everyone else who reads them!

RE: Anaplastic Astrocytoma

by HopeFaithLive on Fri Aug 28, 2015 12:37 PM

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 On June 9, 2015 the surgeons were able to remove about 80% of my 31 year old daughters Anaplastic Astrocytoma grade III tumor.  She started radiation and chemo on July 13 and finished up last Friday.  

The radiation and chemo were no fun but she handled them very well.  I think partically because she's worked hard to stay positive, continued to work part time and has very strong family support (my sister even moved close by to help) about 5 of us took turns driving her to treatment and we all look at the positives rather than negatives.   She also forced herself to eat even when she didn't feel like it. One side effect of the treatment was her taste buds changed. She really tried to totally change her eating but in order to keep eating she did turn to the carbs she loved.  However she has been able to almost totally cut out sugar. 

On Monday we go back to Seattle for an MRI which we are all on edge about and praying for good results from the treatment.  I will let you know next week what the results are.

She will start her chemo up again after a month off, but is pretty worried because the dose will be 2.5 times what it was during radiation.  We're going to ask the ON how effective the additional chemo is supposed to be for quieting the tumor.

My thoughts and prayer go out to your sister and all the others who are going through this.  

RE: Anaplastic Astrocytoma

by jazzkool on Fri Aug 28, 2015 01:22 PM

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In 2008, the Hopkins surgeon said he thought that he had removed the entire tumor.  In 2012, the same surgeon said that he may not have removed the entire tumor because it was too close to the area of the brain that controls speech, etc.  That is the problem with all tumors beyond Stage I.  You cannot remove all the tumor cells.

He has had no radiation treatments, although they want him to start now and he is resisting. 

Regarding the prognosis, I would get a second opinion.  You can send the MRI films to Dr. Lang at MD Anderson and Dr. Berger at UCSF.  Before my son's last operation, Dr. Lang looked at the films for free prior to my son making a decision as to which surgeon was going to do the surgery.  I was in on the phonecon with Dr. Lang.  Very impressive guy who appeared on the HBO show called Vice that dealt with new but dangerous ways of curing GBM and other types of serious cancer, e.g., leukemia.  The show is probably available on YouTube.  BTW, my wife died from GBM. 

I wish your daughter the best. 

RE: Anaplastic Astrocytoma

by Lekadeboni on Fri Oct 09, 2015 09:48 PM

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On ago 24, 2015 2:38 helpmysis wrote:

My identical twin sister had surgery to remove a brain tumour on August 11, 2015. They were able to remove 90% of it, but there are still some "fingers" left. After pathology came back we were informed it was a grade 3 anaplastic astrocytoma. She will be having radiation in 3 weeks. The plan is to do the radiation and then a wait and see approach with MRI's every 2 months. If the tumour starts to grow chemotherapy will start.

She has the option for a clinical trail where they adiminister chemotherapy at the same time as radiation therapy to "hit the cancer hard".

We wondering if anyone has had experience with the use of both chemo and radiation at the same time? Benefits and disadvantages?

Please if anyone can tell us of their course of treatment and the success of it and pros and cons.

If there are any other options for treatment?

Our family is brand new in this new scary world of brain cancer. The prognosis of 2-3 years is extremly disappointing and scary. But we have read on these message boards that this prognosis is much better in others.

Please help, any information would be wonderful.

Thanks!!

Hey there! Is the treatment working? How is your sister? My dad has been diagnosed recently and after he removed part of the tumor now he'll start both radio and chemo with Temodar. The doctor has given me a great release about the effectiveness of this medicine mix, and it's very interesting to understand about it. If you'd like to, I can share it with you. I know it sucks to read all statistics, but the stories in here are cheering me up a lot, and finally I'm finding a light at the end of the tunnel. There are people living with the disease for a long time, so let's keep our positivity! Good luck for you and your sister! ;) Leticia

RE: Anaplastic Astrocytoma

by helpmysis on Sat Oct 10, 2015 02:52 PM

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On Oct 09, 2015 9:48 PM Lekadeboni wrote:

On ago 24, 2015 2:38 helpmysis wrote:

My identical twin sister had surgery to remove a brain tumour on August 11, 2015. They were able to remove 90% of it, but there are still some "fingers" left. After pathology came back we were informed it was a grade 3 anaplastic astrocytoma. She will be having radiation in 3 weeks. The plan is to do the radiation and then a wait and see approach with MRI's every 2 months. If the tumour starts to grow chemotherapy will start.

She has the option for a clinical trail where they adiminister chemotherapy at the same time as radiation therapy to "hit the cancer hard".

We wondering if anyone has had experience with the use of both chemo and radiation at the same time? Benefits and disadvantages?

Please if anyone can tell us of their course of treatment and the success of it and pros and cons.

If there are any other options for treatment?

Our family is brand new in this new scary world of brain cancer. The prognosis of 2-3 years is extremly disappointing and scary. But we have read on these message boards that this prognosis is much better in others.

Please help, any information would be wonderful.

Thanks!!

Hey there! Is the treatment working? How is your sister? My dad has been diagnosed recently and after he removed part of the tumor now he'll start both radio and chemo with Temodar. The doctor has given me a great release about the effectiveness of this medicine mix, and it's very interesting to understand about it. If you'd like to, I can share it with you. I know it sucks to read all statistics, but the stories in here are cheering me up a lot, and finally I'm finding a light at the end of the tunnel. There are people living with the disease for a long time, so let's keep our positivity! Good luck for you and your sister! ;) Leticia
Hi, she is halfway through her treatment. She is in a clinical trial where she is receiving chemo during radiation. She will finish on November 4th and we should know if it was effective after her MRI on December 2nd. I would love it if you could share the info that you have on it as we don't have a lot of info. Thank you for sharing some positivity, the stats are hard to read. I hope your dad has some good luck during treatment.:) My sister is also looking into some DCA treatment after the radiation. They apparently have some trials going on at the U of A hospital in Edmonton. She has a phone consultation on October 23rd to look into it. I will keep you posted:)

RE: Anaplastic Astrocytoma

by Lekadeboni on Sat Oct 10, 2015 03:09 PM

Quote | Reply

On out 10, 2015 2:52 helpmysis wrote:

On Oct 09, 2015 9:48 PM Lekadeboni wrote:

On ago 24, 2015 2:38 helpmysis wrote:

My identical twin sister had surgery to remove a brain tumour on August 11, 2015. They were able to remove 90% of it, but there are still some "fingers" left. After pathology came back we were informed it was a grade 3 anaplastic astrocytoma. She will be having radiation in 3 weeks. The plan is to do the radiation and then a wait and see approach with MRI's every 2 months. If the tumour starts to grow chemotherapy will start.

She has the option for a clinical trail where they adiminister chemotherapy at the same time as radiation therapy to "hit the cancer hard".

We wondering if anyone has had experience with the use of both chemo and radiation at the same time? Benefits and disadvantages?

Please if anyone can tell us of their course of treatment and the success of it and pros and cons.

If there are any other options for treatment?

Our family is brand new in this new scary world of brain cancer. The prognosis of 2-3 years is extremly disappointing and scary. But we have read on these message boards that this prognosis is much better in others.

Please help, any information would be wonderful.

Thanks!!

Hey there! Is the treatment working? How is your sister? My dad has been diagnosed recently and after he removed part of the tumor now he'll start both radio and chemo with Temodar. The doctor has given me a great release about the effectiveness of this medicine mix, and it's very interesting to understand about it. If you'd like to, I can share it with you. I know it sucks to read all statistics, but the stories in here are cheering me up a lot, and finally I'm finding a light at the end of the tunnel. There are people living with the disease for a long time, so let's keep our positivity! Good luck for you and your sister! ;) Leticia
Hi, she is halfway through her treatment. She is in a clinical trial where she is receiving chemo during radiation. She will finish on November 4th and we should know if it was effective after her MRI on December 2nd. I would love it if you could share the info that you have on it as we don't have a lot of info. Thank you for sharing some positivity, the stats are hard to read. I hope your dad has some good luck during treatment.:) My sister is also looking into some DCA treatment after the radiation. They apparently have some trials going on at the U of A hospital in Edmonton. She has a phone consultation on October 23rd to look into it. I will keep you posted:)
Sending good vibes for your sister, she'll be fine, you'll see it! I'd love to share the study with you...do u have an email where I can send it? I'll scan it for you... :)
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