Have you said NO to PCI?

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Have you said NO to PCI?

by Daughter2015 on Tue Sep 29, 2015 03:29 AM

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Has anyone said no to PCI? If so, do you regret it or not? Need to make a decision and the numbers are not so convincing. Please help.

RE: Have you said NO to PCI?

by BobbieK on Wed Oct 07, 2015 01:01 AM

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On Sep 29, 2015 3:29 AM Daughter2015 wrote:

Has anyone said no to PCI? If so, do you regret it or not? Need to make a decision and the numbers are not so convincing. Please help.

That decision was even more difficult because I also had MS. I chose to have PCI and my radiologist decided to give me a lower dosage with 2 extra treatments. That was in 2006. My oncologist is the top dog at the University of Colorado Cancer Center in Colorado. My last visit he told me I would never get a reoccurance of lung cancer. I was cured.

The only bad thing about the brain radiation is I lost my hair again and it is very very thin. My scalp shows. I am a female so now wear uncomfortable wigs in public. No other side effects that would keep me from making the same decision. That doesn't mean it is the right decision for everyone. My doctor said I had to make the decision. Lesions could happen anywhere in the brain and cause bad things to happen but in my case, all is good. I was diagnosed with SCLC January 2006 and there is nothing in my lung except a scar from radiation. No sign of cancer. I beat the odds. I don't know if it is because of PCI. I had 5 rounds of Chemo and started chest radiation after the second round. I started PCI 2 weeks after the final chest radiation.

I am cold all the time. I used to be hot. I don't sleep well. I am scared that it will return somewhere else in my body.

You may have heard the saying "I have cancer but it doesn't have me! I say B--S---! You never get over the scare.

My name is Bobbie. I am a 67 year old female. I hope I am of some help. Best wishes for your full recovery.

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