What does it mean when you test positive for JAK 2

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RE: What does it mean when you test positive for JAK 2

by Catherinepm on Wed Nov 08, 2017 02:35 AM

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On Mar 07, 2015 2:36 AMdalt1wrote:

Hi, I am Dalt. That is a very old post of mine. I will send you my protocol to your email address. In reference to Emodin, there are so many variations available that I didn't use the product. However, I have a medical paper that states Vitamin C is a JAK Inhibitor Gene suppressor. This is no doubt why it worked for me.

Hi Dalt is it possible to send me the protocol as well. Email address is  26 years old diagnosed jak2 and enlarged spleen.

RE: What does it mean when you test positive for JAK 2

by TnAngel on Wed May 16, 2018 02:49 PM

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It has been 7 years since you wronte your post. What is your follow up? How are you doing?

RE: What does it mean when you test positive for JAK 2

by kristinawatson on Sat May 26, 2018 02:33 AM

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Hi there, I was diagnosed with pv since 2010. Been to a few doctors and the onologist would see me every three months, recommended to do phlebotomy every week for two months , take 81 mg of aspirin daily, until my hematocrit lowered down to normal. my platelets, rbc, white blood cells are always high. I woulfd like to know how you manage to cure yours. My body is always itchy, i'm always tired and sometimes can't function well in a daily basis. Will u please share what u did. Quite desperate here.

RE: What does it mean when you test positive for JAK 2

by bbell on Tue Oct 08, 2019 03:15 AM

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Hi Have you recieved any help from this board? I am JAK2+ Im on 1000 mg of Hydroxyurea 2x a day. i would like to get off of this but i dont know what to do.

RE: What does it mean when you test positive for a month for JAK 2

by okidust on Tue Oct 08, 2019 04:09 PM

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Hey There,

Sorry for the delay.  I donot like being on a computer, & I wasnt feeling good. Now I am doing much better.  I do not have any other ailments like your mother does.  I have been using Chinese medicine for 40 yrs so I have always consulated my Chinese Dr before I make a decision about what my Hemotologist wants me to take.  I did ask my Hemotologist to "mirror me" while I tried Chinese herbs & accupuncture. She said yes. The Chinese medicine worked for me lowering my platelets to 501. This took about a year and a half or more. I was feeling great but tired of taking the herbs 2x day so I did my own trial study & only took herbs once a day for a month.  I went into a tail spin with my platelets going up to a over million. My Chinese Dr said take the hydroxyurea. I didn't want a stroke. It worked for awhile 450mg each day until I realized that taking that much in a dose was making my heart race! Now I am taking 200mg Droxia 3xday without symptoms. I just donot like taking pharma drugs. My Chinese Dr says stay on them and she is making me herbs to pull the heat out of my body as that is one of the side effects. My medicial Dr is suppotive of me trying what I want & my Chinese Dr has known me for over 30 yrs.                                                                       I hope your mother is better and again I appoligize for the late response.    Ann Marie

RE: What does it mean when you test positive for JAK 2

by jeff3 on Wed Oct 09, 2019 12:39 AM

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My wife used red palm Tocotrienol to lower her platelets while on Anagrelide, 100 mg twice a day. Liposomal vitamin C is a JAK2 inhibitor, 5 ml three times a day. Curcumin is another to research. It's hard to absorb so look for products like double strength Theracumin three times a day. Astaxathin is another JAK2 inhibitor, 12 mg twice a day. Vitamin K2 MK4  as this link shows plays an important role and is enhanced with the supplements mentioned. The article mentions 15 mg of K2 MK4. 45mg is needed to activate the GLA Matrix proteins. If you are at the ET stage it is important to enlist this group to prevent progression. Always check with your doctor before using any supplement while you research each of them as they apply to your diagnosis. 

http://www.townsendletter.com/Dec2017/myelo1217.html

RE: What does it mean when you test positive for JAK 2

by okidust on Wed Oct 09, 2019 02:54 PM

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thanks

RE: What does it mean when you test positive for JAK 2

by bbell on Wed Oct 09, 2019 08:15 PM

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went to Hemotologist said blood at 1500/? taking Warfrin starting on 1200/Vit C and the Selenium as described meanwhile they have me on HYDREA 1000mg I want to drop the HYDREA what bothers me is the DR doesn't know what flips the switch. I'm beginning to wonder if diet, exercise helps this. aged 77 didn't indicate as to what to do differently, read the vitamin solution, that might help. the public is not aware of the impact of diet on our lives. my wife is feeding me fruits NAKED juices for breakfast with alittle to eat. I work in a warehouse in all the heat,cold, year round. eat a sandwich chips and a fruit. trying to avoid sugars much as i can.

RE: What does it mean when you test positive for JAK 2

by jeff3 on Wed Oct 09, 2019 09:09 PM

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okidust, Research indicates curcumin is an inhibitor for JAK2-617f, often associated with PV. Curcumin by itself is poorly absorbed hence the need for a product increasing availability like Double Strength Theracumin. Doseage level and frequency will depend on the product. Consult with your doctor.

https://library.ehaweb.org/eha/2018/stockholm/216521/jessica

RE: What does it mean when you test positive for JAK 2

by bbell on Fri Oct 11, 2019 11:32 AM

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On Oct 09, 2019 8:15 PM bbell wrote:

went to Hemotologist said blood at 1500/? taking Warfrin starting on 1200/Vit C and the Selenium as described meanwhile they have me on HYDREA 1000mg I want to drop the HYDREA what bothers me is the DR doesn't know what flips the switch. I'm beginning to wonder if diet, exercise helps this. aged 77 didn't indicate as to what to do differently, read the vitamin solution, that might help. the public is not aware of the impact of diet on our lives. my wife is feeding me fruits NAKED juices for breakfast with alittle to eat. I work in a warehouse in all the heat,cold, year round. eat a sandwich chips and a fruit. trying to avoid sugars much as i can.

Today 10-10-2019 i got news that the medicine is working, however my red cell count is declining, the white cell is ok, i recently started the Vit C 1200 tabs, twice a day, and the selenium capsules. Will keep you posted on whats up. 

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