SCLC Recurrence Advice

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SCLC Recurrence Advice

by jlpetrie on Wed Oct 28, 2015 12:30 AM

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Hi,

I am wondering if any SCLC patients, survivors or their families can assist. My mother was diagnosed with SCLC in February of this year and has since gone through the standard chemo, chest radiation and PCI. At the time of diagnosis, the tumour appeared to be limited to one lobe. Unfortunately, she has had issues regaining her appetite and strength since this treatment and will need to get stronger before any additional chemo/radiation can occur (we are starting to get indications of recurrence and spread). She is in her mid-sixties and normally is quite strong physically. Does anyone had any advice to assist in this matter, based on their own personal experience? 

RE: SCLC Recurrence Advice

by Atoms on Wed Oct 28, 2015 09:10 PM

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Radiation takes a strong toll on the body. It takes quite some time, perhaps a couple of years, before the body begins to strengthen and energy returns. I had 30 doses of radiation at age 59 and it kept me weak for at least two years. You'll need to change the framework of how you look at your mother and what is possible for her.

What was the staging of the tumor? Did it occur in the neck or throat before appearing in the lungs? Does SCLC mean Squamus Cell Lung Carcinoma? Ask the doc if it is still considered squamous cell at this point.

The original surgery didn't call for a g-tube, a feeding tube. Might be helpful now. Even if she has no appetite you can pour all sorts of nutrious products down the tube to keep up her weight and to add foods that resist cancer. G-tubes are easily mounted easily removed. I've had mine four years and no troubles. I'm gaining weight with it and it enables me to eat a very healthy diet.

RE: SCLC Recurrence Advice

by Atoms on Wed Oct 28, 2015 09:15 PM

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I found this data on the American Cancer pages.

http://www.cancer.org/cancer/lungcancer-smallcell/detailedgu

The survival rates are not good beyond Stage 1 and you should  be aware of that. Read the info and make plans. Sorry about this tough position you're in.

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