Please, what can we expect? Glioblastoma on corpus callosum

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Please, what can we expect? Glioblastoma on corpus callosum

by anneymouse on Wed Oct 28, 2015 08:27 PM

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My dad is 80, very fit, and active up to a month ago.   He then got confused, shuffled gait, and then incontinent, all over the space of a few days.  CT scan and later a MRI points to Grade 4 glioblastoma in a butterfly on the corpus callosum.

The consultant talked us out of biopsy, and has started dad on 6 sessions of radiotherapy.  He is now on steroids, which have reversed the effects, and he can now walk, no confusion, and no incontinence.

I've read so much and am sending myself round in circles.  What to expect?

RE: Please, what can we expect? Glioblastoma on corpus callosum

by huxley2006 on Thu Oct 29, 2015 04:59 PM

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Radiation should help slow the progress of the disease. By in large you can expect a worsening of symptoms over time.

The Dex should help alleviate the worst if the symptoms in the near term.

Avastin may also be utilized to lessen the symptoms caused by the swelling.

You should ask your doctor about that.

There is no cure but timeline to progression is anyone's guess.

Dex and Avastin should be able to drastically improve his quality of life and (in the case of avastin)  potentially prolong it

Hux...

 

RE: Please, what can we expect? Glioblastoma on corpus callosum

by RobinMB on Sun Nov 01, 2015 03:42 AM

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My husband used Boswellia to help with the swelling.  I truly  believed it helped considerably because he remained on a low dose of Dexamethasone the entire 22 months of his life with GBM.

Sometimes I wish we wouldn't have agreed to all of the additonal types of chemo that we tried near the end.  They really didn't enable my husband to have a very good quality of life.

Have you looked into Optune?  It has been approved for recurring GBM.

I'm so sorry you are going through all of this; I know it is very difficult.

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