Doctor says it as slow growing appendix cancer

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Doctor says it as slow growing appendix cancer

by staypositive123 on Wed Nov 11, 2015 09:20 PM

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hi all,

My girlfriend was in an accident and the doctors found later that her appendix was swollen. 

She was asked to come back in 3 weeks to test again and the doctor found out that the appendix was not any better and suspected tumor. 

Doctor asked for an octreotide test after another 3 weeks which came out to be negative and said she was ok and tumor free but the appendix was still swollen 

3 weeks later another CT scan was done and we were hoping to request for an appendectomy but now the doctor is saying that it might be a slow growing cancer, lymph nodes are abnormally big and surgery is required to figure out if it has moved to other areas of the body.

I am shocked, confused, extremely worried. Any response would be highly appreciated

RE: Doctor says it as slow growing appendix cancer

by canuktrimom on Fri Nov 13, 2015 12:15 AM

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Hi there your girlfriend has no use for her appendix and not all carcinoid tumours show up on the O scan. Please get a second opinion from a NETS doctor in your area. You will have to be her advocate . Google NETS doctors in your area and get an appointment soonest. Hope this helps. Cheryl

RE: Doctor says it as slow growing appendix cancer

by staypositive123 on Fri Nov 13, 2015 02:42 PM

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We are going for laproscopy next week. Another specialist strongly believes this might be the infection of Appendix. He is going to send the appendix to pathology after surgery to verify. 

Appendix was swollen 8mm (normal is 6mm) that night of the accident. Now it has been 14 mm. How can this be a slow growing cancer if it has grown substantially in this 2 and a half months. If it is cancer shouldn't this be aggressive. 

I think it is too much of a coincidence for the appendix to get swollen so fast right after the accident. She was in a double car wreck and most of her impact was in the abdomenal area due to the seat belt. The first doctor not doing the surgery in the day or 3 weeks after the accident is questionable. I do understand he might have expected to heal on its own and get better. 

I will get second opinion on this soon. Thanks Cheryl.

RE: Doctor says it as slow growing appendix cancer

by DalAnderson on Tue Dec 01, 2015 12:07 AM

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Get your pathology reports. If it is positive...do not stop, find a NET specialist as this is rare and many doctors have never seen a case in their practice life..There are a number of tests that can be done to check for metastases. See the Carcinoid Cancer Foundation website for a list of specialists. 

RE: Doctor says it as slow growing appendix cancer

by staypositive123 on Thu Dec 17, 2015 09:00 PM

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Thank you so much for your reply. Her appendix was infected and because of that in this 3 and a half month period mucocele, lymph nodes around the appendix had swollen. When we went for surgery, we found out that the appendix had already ruptured and had to do a colon resection as well. The pathology reports came out negative at the day of the surgery and today was her follow up for the full pathology report which came out negative as well. This whole process had me worried and I am relieved now. Thank god. 

Still can't understand the doctors saying that the accident might not be a reason behing the appendix rupture. He says there is no way he can prove it. Coincidence? what do you guys think?

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