Recovery from EC treatment and Surgery

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Recovery from EC treatment and Surgery

by Lynettes on Wed Nov 18, 2015 04:17 PM

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Hello All,

I've asked a couple questions on here in the past and I truly am grateful and appreciate the outpouring of thoughtfulness and information I've received.  When I last posted my boyfriend was doing very poor in his recovery from his Esophagectomy.  After countless Dr. appt. a CT scan of his chest and scope to check how he was healing.  They discovered a lung infection and pneumonia.  He is on an antibiotic and is doing so much better. its like night and day from a week or so ago.  he has been eating great with little symptoms after. His main symptom is dumping syndrome and indigestion.  We are very cautious of his sugar intake and this has been working well for him.  But today out of no where he dumps.  Sweats, dry heaves, coughing it's just miserable for him and last so long Usually an hour or 2.  What would cause this now after about 10 days of eating everything insight and not having any thing happen?  Is this normal to have these set backs? I really appreciate the help.  It is so difficult, as many of you know, to just not know if this is ok or normal or worry if something is worng.  Thanks again for all the support I've received on here.  It has been the only place I've found that has given us true reassurance.

RE: Recovery from EC treatment and Surgery

by joensteph on Wed Nov 18, 2015 05:19 PM

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Eating too much, too fast or possibly too big of pieces at a time.  Dairy can also cause dumping so he has to pay close attention to what he is eating and when it happens.  Try to eat a little slower and a little less.  My husband is drinking more almond milk than regular milk and its working great for him.  Glad to hear he is doing better.  It does take time and there will be bad days but the good will start to out number the bad in no time!

RE: Recovery from EC treatment and Surgery

by roneida on Thu Nov 19, 2015 04:06 PM

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to Lynettes,  I an 75 and had my esophagectomy in August of 2012.  My main problem after surgery was putting weight on.  I just couldn't seem to do much to regain weight.  I was fortunate in that I did not go through nausea and digestive distress and after nearly a year normal returned.  Thank God And Strong Hospital.  I was fortunate in that my Dr. removed my feeding tube  in late October and that began my final healing time.  3 + years post op and I have no restrictions other that as you say,  eat slowly, sparingly and often.  Tell your boyfriend to not let the slow rebuild become discouraging.  I am eternally grateful that my problems were found early enough to save me and give me a whole new attitude of gratitude for every new day. God bless.hang in there,   ron

RE: Recovery from EC treatment and Surgery

by mehall on Fri Nov 20, 2015 02:50 PM

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I agree with joensteph regarding dairy. My husband had an esophagogastrectomy in January 2013. I cook with soy-based products (milk, cheese) and use honey instead of sugar, and he rarely dumps. When he does, it's because he has indulged in ice cream or some other treat that he thought he could get away with, or he ate too much at one time. Many small portions throughout the day is your boyfriend's "new normal."

RE: Recovery from EC treatment and Surgery

by Aoife on Tue Nov 24, 2015 07:49 AM

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I still get dumping syndrome the odd time and I had the surgery in February 2007.  I still have to be careful what I eat, milk was a no no until I became pregnant with my daughter when I was just over a 4 year survivor (she is 4 now and I have a 5 year old as well), and even still low fat millk makes me ill.  It takes a long time to get used to the new normal with this surgery and even that changes over time.  He will be able to eat more with time but it is very early days yet.

RE: Recovery from EC treatment and Surgery

by spencerJ on Tue Nov 24, 2015 10:27 PM

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On Nov 18, 2015 4:17 PM Lynettes wrote:

Hello All,

I've asked a couple questions on here in the past and I truly am grateful and appreciate the outpouring of thoughtfulness and information I've received.  When I last posted my boyfriend was doing very poor in his recovery from his Esophagectomy.  After countless Dr. appt. a CT scan of his chest and scope to check how he was healing.  They discovered a lung infection and pneumonia.  He is on an antibiotic and is doing so much better. its like night and day from a week or so ago.  he has been eating great with little symptoms after. His main symptom is dumping syndrome and indigestion.  We are very cautious of his sugar intake and this has been working well for him.  But today out of no where he dumps.  Sweats, dry heaves, coughing it's just miserable for him and last so long Usually an hour or 2.  What would cause this now after about 10 days of eating everything insight and not having any thing happen?  Is this normal to have these set backs? I really appreciate the help.  It is so difficult, as many of you know, to just not know if this is ok or normal or worry if something is worng.  Thanks again for all the support I've received on here.  It has been the only place I've found that has given us true reassurance.

I had my surgery Jan 13th this year.  Dumping syndrome would come out of nowhere.  My doctor told me my sugar levels would spike high and then plummet to almost dangerous levels during a attack.  She recommended that I keep candy or candy bars close by and eat some as soon as the symptoms first appeared.  It sounds crazy to eat more sugar because you have too much sugar to begin with but it works!  It works every time.  Ever since I started that I have never had a full-blown attack.  Most of the time it passes within about 5 minutes of eating something sweet.  I don't leave the house without taking something with me. I don’t eat a whole candy bar but those smaller snack size. 

RE: Recovery from EC treatment and Surgery

by trudy103 on Wed Nov 25, 2015 05:26 PM

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On Nov 24, 2015 10:27 PM spencerJ wrote:

On Nov 18, 2015 4:17 PM Lynettes wrote:

Hello All,

I've asked a couple questions on here in the past and I truly am grateful and appreciate the outpouring of thoughtfulness and information I've received.  When I last posted my boyfriend was doing very poor in his recovery from his Esophagectomy.  After countless Dr. appt. a CT scan of his chest and scope to check how he was healing.  They discovered a lung infection and pneumonia.  He is on an antibiotic and is doing so much better. its like night and day from a week or so ago.  he has been eating great with little symptoms after. His main symptom is dumping syndrome and indigestion.  We are very cautious of his sugar intake and this has been working well for him.  But today out of no where he dumps.  Sweats, dry heaves, coughing it's just miserable for him and last so long Usually an hour or 2.  What would cause this now after about 10 days of eating everything insight and not having any thing happen?  Is this normal to have these set backs? I really appreciate the help.  It is so difficult, as many of you know, to just not know if this is ok or normal or worry if something is worng.  Thanks again for all the support I've received on here.  It has been the only place I've found that has given us true reassurance.

I had my surgery Jan 13th this year.  Dumping syndrome would come out of nowhere.  My doctor told me my sugar levels would spike high and then plummet to almost dangerous levels during a attack.  She recommended that I keep candy or candy bars close by and eat some as soon as the symptoms first appeared.  It sounds crazy to eat more sugar because you have too much sugar to begin with but it works!  It works every time.  Ever since I started that I have never had a full-blown attack.  Most of the time it passes within about 5 minutes of eating something sweet.  I don't leave the house without taking something with me. I don’t eat a whole candy bar but those smaller snack size. 

SpencerJ,

It's good to hear that you are doing well. Who would think that extra sugar helps with dumping syndrome? We learn something from each other with every post. Thank you.

Trudy

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