What do I do?

3 Posts | Page(s): 1 

What do I do?

by Jess24lynn on Thu Nov 19, 2015 01:45 AM

Quote | Reply
My mom was diagnosed with stage 4 PC with mets to her lungs back in April 2014. We have been battling this beast for nearly 20 months and my mom is doing very well. Unfortunately, in these 20 months we have gone through FOLFIRINOX and Gemcitabine/Abraxane. She also enrolled in the GVAX/Listeria trial but unfortunate was randomized to the single agent chemo arm, so she has also been given xeloda. Her lung nodules have been growing since March 2015. Gemcitabin/Abraxane did wonders shrinking them but she took a break for 8 weeks and they began growing again. We have not been able to find a treatment in the past 8 months to stop their growth. Granted going back on G&A and single agent xeloda probably were not the best choices. But I feel as though her doctors are starting to give up. My mom is in great shape, she has no pain, eats like a horse, works every day, she lives a relatively normal life. Her only symbol at this point is a cough due to those stupid lung mets. I know she wants to keep fighting and I will do anything I can for her as long as she is willing. Has anyone had any luck with chemo after a few regimens? Any advice on what we should try next? I need some hope and inspiration. I feel like I am the only one fighting for my mom, I hate feeling like she is being written off. She has beaten all the odds thus far and I'll be damned if these Drs won't even try!

RE: What do I do?

by tjvonblueberry on Fri Nov 20, 2015 03:07 AM

Quote | Reply

I understand how insensitive they can be.  I think PC is one of the worst cancers, so they don't have high hopes for their patients.  They gave my Mom no options.  In her case, I now believe it was best.  However, had she had a chance we would have taken it.  I hope you find a regime that works, because it sounds like your Mom has a chance.  Best Wishes!

RE: What do I do?

by middleages on Fri Nov 27, 2015 03:58 AM

Quote | Reply

I dont know what Country you are in, but marijuana oil works for CTC (circulating tumour cells). You could also give her a drop of boswellia sacra (frankincense essential oil by Young Living) on her tongue every day or as a massage. Both of these options are complimentary/integrative. They are based on clinical studies which have shown to be effective. You have nothing to lose. She has had alot of chemo but continues to eat well, which is great. These foods have natural compounds in them which are good for PC and noted in clinical studies: capsicum, cucumber (curcubans),  brocolli, garlic, green tea, and these ones are excellent: Noni juice (papain enzyme), pineapple (bromelain enzyme), and turmeric.  There are others of course. There is much information out there by people who managed PC by rebuilding their immune system through diet and detox often after chemo. One more thing, probiotics also help rebuild the bacteria in the gut which is very important as 80% of our immune system is in the gut. For some with pancreatic cancer, zinc may work well, and there is a school of thought that vegetarian diet may be best. Dont be discouraged. Your Mum sounds positive, she's just carrying on. Good for her.

3 Posts | Page(s): 1 
Subscribe to this message board discussion

Latest Messages

View More

We care about your feedback. Let us know how we can improve your CancerCompass experience.