Doctor can't see me until February! Help!

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Doctor can't see me until February! Help!

by jesimesi on Mon Dec 07, 2015 10:46 PM

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My PCP ran tests after we found the mass on my liver. My 5 HIAA was normal, but my Chromogranin A was elevated. 2x the less than value. I've had carcinoid syndrome symptoms for years. Test results were back Nov 19. Anyway he has sent me a referral to the GI doc, but he can't see me until February! I've talked to the staff and nurses multiple times, but they won't see me any sooner! I live in the U.S. and have insurance. Someone please tell me what to do!!!! Ochsner's won't see me without a diagnosis.

RE: Doctor can't see me until February! Help!

by GallbladderCA on Wed Dec 09, 2015 04:53 PM

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talk to your PCP and if the PCP can make the appt sooner for you or see other MD.

RE: Doctor can't see me until February! Help!

by plines on Wed Dec 09, 2015 06:23 PM

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Go t MDANDERSON. .

RE: Doctor can't see me until February! Help!

by Georgenone on Wed Dec 09, 2015 11:40 PM

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I feel for you. Sorry I have no advice. I encountered similar issues prior to last cancer battle. Going to a different doctor got me nothing more than you need to go see the doctor who does not have time for you.

Its a hard road, I wish you all the best.

RE: Doctor can't see me until February! Help!

by beingcelestial on Thu Dec 10, 2015 02:20 AM

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hi jesimesi, i suggest you go on thewww.ACOR.orgsit e and register in the email carcinoid group. you can post your questions to dr. gene woltering and he will respond. you can also call him for advice. he lists his phone number. dr. woltering works out of kenner, louisanna, as a carcinoid specialist.

also go onwww.interscienceinstitute.com . you can request a copy of Neuroendocrine Tumors: A Comprehensive Guide to Diagnosis and Management. it is free and no shipping charges. it is also available for download. the book contains the info on symptoms, tests, and codes. it is a valuable tool.

another site to try iswww.carcinoid.org . you can find specialists to go to on that site. it states much about carcinoid.

there are other tests and scans that are very helpful in determining carcinoid but i imagine, usually, a biopsy is necessary before declaring you a carcinoid or NET patient.

be the squeaky wheel! advocate for yoruself and explain your issues to whomever will listen and help you.

keep me posted. keeping you in prayer.

RE: Doctor can't see me until February! Help!

by peggyznd on Thu Dec 10, 2015 03:35 PM

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At least some of the www.ACOR.org groups are now found at www.SmartPatients.com .  The previous kidney cancer group at ACOR is now found at SmartPatients, and know that other groups were also shifting into the new format.  Valuable resource!

RE: Doctor can't see me until February! Help!

by Hermannbs on Thu Dec 10, 2015 09:02 PM

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Not being able to get an appointment until February is totally unacceptable. I see two options to consider, the first is to have your PCP call the GI doctor directly and have him tell the guy that is unacceptable, the second option is go to a different GI Doctor. There are lots of them so do not worry about that. If you schedule with another GI I would certainly write a letter to the original Doctor, copy the local medical society, and express your thoughts. Wishing you the best....

RE: Doctor can't see me until February! Help!

by beingcelestial on Thu Dec 10, 2015 10:16 PM

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are they the same groups with dr. woltering at smart patients but shifting from one to the other company?

RE: Doctor can't see me until February! Help!

by peggyznd on Thu Dec 10, 2015 11:14 PM

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 I do not know anything about Dr. Woltering, but do know that there is a very active and knowledgeable group of kidney cancer patients at www.SmartPatients.com who might give additional insight as ho to handle this situation.

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