Diagnosed with stage 4 esophogeal cancer

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RE: Diagnosed with stage 4 esophogeal cancer

by wolfgang1950 on Wed Dec 30, 2015 08:45 PM

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On Dec 22, 2015 8:53 PM paul64 wrote:

Hi all, just joined the site. After an endoscopy I was diagnosed with EC 12/3/15. It has mets to lymph nodes. My oncologist order a PET scan which I had Friday and I'm waiting on the results. He wanted me to start pill form and IV type chemo last week ( with possible radiation also )  but I'm waiting for the results of the PET to come in before making a treatment decision. If the cancer is in my lungs or anywhere else I may opt to just not get treatment. My wife passed with lung/brain/bone cancer three years ago so I'm not sure if I want to go thru with it (chemo/radiation) myself after watching and living with what it did to her. It's a decision I have to make soon though...just as she did. I miss her terribly and at nearly 65 years of age there isn't much to live for now.   Doctor says 6-7 months likely with no treatment....I just dont know what to do at this point in time..maybe the PET results will make a decision easier for me.  Has any one of you felt this way with your EC, I mean is the treatment worth the ride?  Whatever battle or struggles you face I wish you the very best and Merry Christmas to all.  ( Politically incorrectness aside)    

Dear Paul

My partner Wolf was diognosed with stage 4 osephageal cancer in July 15 it was a terrible shock and delivered following an endoscopy, rather bluntly. The good news would be that they could operate but that sounded rather terrifying and life changing. We then seemed to be delivered bad news by more bad news. A PET scan confirmed the cancer had spread to the lymph nodes in the chest so surgery was out! We live in the UK Manchester and come under the wonderful Christies hospital.   The news wasnt good, he would have only six months with no chemo, and a year pluswith. He stared the heavy dose of EOX IV chemo every 3 weeks and tabs daily 2300mg. Wolf is afit 65 yr old contined to work and run his new business a butty wagon called 'Wolf it down!' The first three chemo seemed to be ok and the half way through the scan results were amazing, the tumour and lymph nodes had shrunk by almost 40%! He has finished the six now and the final scan hasnt shown any further reduction but hasnt spread or grown either!  This is amazing news for the new year for us. They have offered him a trial to start in 28 days, which will hopefully contain  the beast!!  On top of Wolfs news I was diognosed with breast cancer in Oct 15, all unbelievable really! You couldnt write it ! I had my first chemo on 18th December.   We are on thejourney, but as one patient said to us both on a recent Christies visit, we are not dying with Cancer, but living with it! That will be Wolfs journey, but a good positive mental attitude has certainly helping, with constant support from family and friends.

So Paul, sorry to ramble , but I want to show our support and take each day  with Hope and love,

Sendingblove and support Sue and Wolf xx

RE: Diagnosed with stage 4 esophogeal cancer

by eternalife on Wed Dec 30, 2015 10:31 PM

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Hi Paul,

My husband was diagnosed with stage iv EC, he underwent the Pet  scan etc. and he proceeded with chemo and finally radiation, he was told 18 months as a prognosis and he battled hard, but he expired as predicted by the docs.

some chemo treatment will work, it all depends , have you been tested for the HER + gene? EC is very aggressive and the fight is up to you.

Wishing you only the best

RE: Diagnosed with stage 4 esophogeal cancer

by Georgef on Wed Dec 30, 2015 10:36 PM

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I have been fighting Esophogeal Cancer for 7 years.

MY Esophogeast was removed at that time, Chemo,

Raditaion, knee replacement, skin cancer, scatica followed.

Life is the greatest gift our Creator can give us.

Be encouragement to those fighting the same.

See those your love each day and thank God for

each day.

RE: Diagnosed with stage 4 esophogeal cancer

by paul64 on Thu Dec 31, 2015 12:26 AM

Quote | Reply

On Dec 30, 2015 7:23 PM Cjswan wrote:

On Dec 22, 2015 8:53 PM paul64 wrote:

Hi all, just joined the site. After an endoscopy I was diagnosed with EC 12/3/15. It has mets to lymph nodes. My oncologist order a PET scan which I had Friday and I'm waiting on the results. He wanted me to start pill form and IV type chemo last week ( with possible radiation also )  but I'm waiting for the results of the PET to come in before making a treatment decision. If the cancer is in my lungs or anywhere else I may opt to just not get treatment. My wife passed with lung/brain/bone cancer three years ago so I'm not sure if I want to go thru with it (chemo/radiation) myself after watching and living with what it did to her. It's a decision I have to make soon though...just as she did. I miss her terribly and at nearly 65 years of age there isn't much to live for now.   Doctor says 6-7 months likely with no treatment....I just dont know what to do at this point in time..maybe the PET results will make a decision easier for me.  Has any one of you felt this way with your EC, I mean is the treatment worth the ride?  Whatever battle or struggles you face I wish you the very best and Merry Christmas to all.  ( Politically incorrectness aside)    

My wife is in very nearly same situation. As we understand it there is a remote chance of cure and a good chance of significant life extension even if an operation is not possible. Fight to the end, there is always more good you can do while in this world.

Hoping the best for your wife. Fight the good fight and do everything you can for her!

RE: Diagnosed with stage 4 esophogeal cancer

by paul64 on Thu Dec 31, 2015 12:33 AM

Quote | Reply

On Dec 30, 2015 8:45 PM wolfgang1950 wrote:

On Dec 22, 2015 8:53 PM paul64 wrote:

Hi all, just joined the site. After an endoscopy I was diagnosed with EC 12/3/15. It has mets to lymph nodes. My oncologist order a PET scan which I had Friday and I'm waiting on the results. He wanted me to start pill form and IV type chemo last week ( with possible radiation also )  but I'm waiting for the results of the PET to come in before making a treatment decision. If the cancer is in my lungs or anywhere else I may opt to just not get treatment. My wife passed with lung/brain/bone cancer three years ago so I'm not sure if I want to go thru with it (chemo/radiation) myself after watching and living with what it did to her. It's a decision I have to make soon though...just as she did. I miss her terribly and at nearly 65 years of age there isn't much to live for now.   Doctor says 6-7 months likely with no treatment....I just dont know what to do at this point in time..maybe the PET results will make a decision easier for me.  Has any one of you felt this way with your EC, I mean is the treatment worth the ride?  Whatever battle or struggles you face I wish you the very best and Merry Christmas to all.  ( Politically incorrectness aside)    

Dear Paul

My partner Wolf was diognosed with stage 4 osephageal cancer in July 15 it was a terrible shock and delivered following an endoscopy, rather bluntly. The good news would be that they could operate but that sounded rather terrifying and life changing. We then seemed to be delivered bad news by more bad news. A PET scan confirmed the cancer had spread to the lymph nodes in the chest so surgery was out! We live in the UK Manchester and come under the wonderful Christies hospital.   The news wasnt good, he would have only six months with no chemo, and a year pluswith. He stared the heavy dose of EOX IV chemo every 3 weeks and tabs daily 2300mg. Wolf is afit 65 yr old contined to work and run his new business a butty wagon called 'Wolf it down!' The first three chemo seemed to be ok and the half way through the scan results were amazing, the tumour and lymph nodes had shrunk by almost 40%! He has finished the six now and the final scan hasnt shown any further reduction but hasnt spread or grown either!  This is amazing news for the new year for us. They have offered him a trial to start in 28 days, which will hopefully contain  the beast!!  On top of Wolfs news I was diognosed with breast cancer in Oct 15, all unbelievable really! You couldnt write it ! I had my first chemo on 18th December.   We are on thejourney, but as one patient said to us both on a recent Christies visit, we are not dying with Cancer, but living with it! That will be Wolfs journey, but a good positive mental attitude has certainly helping, with constant support from family and friends.

So Paul, sorry to ramble , but I want to show our support and take each day  with Hope and love,

Sendingblove and support Sue and Wolf xx

To ramble with me is fine. Thank you for sharing Wolf's story and I'm happy for him!  I am hating to hear of your diagnosis however. Since yours was in October...how are you doing if I may be so bold.  

It's a wonderful feeling to hear all the support the community has for one another.  Hope, love, and the best to you!

RE: Diagnosed with stage 4 esophogeal cancer

by paul64 on Thu Dec 31, 2015 12:37 AM

Quote | Reply

On Dec 30, 2015 10:31 PM eternalife wrote:

Hi Paul,

My husband was diagnosed with stage iv EC, he underwent the Pet  scan etc. and he proceeded with chemo and finally radiation, he was told 18 months as a prognosis and he battled hard, but he expired as predicted by the docs.

some chemo treatment will work, it all depends , have you been tested for the HER + gene? EC is very aggressive and the fight is up to you.

Wishing you only the best

I am truly saddened to hear this and I am sorry for your loss. Losing a spouse can be a horrible thing..I hope you're doing well.

I dont know what HER+gene is..so I'm going to assume I haven't been tested. 

I'm still waiting to hear from PET scan. 

The best to you! 

RE: Diagnosed with stage 4 esophogeal cancer

by paul64 on Thu Dec 31, 2015 12:40 AM

Quote | Reply

On Dec 30, 2015 10:36 PM Georgef wrote:

I have been fighting Esophogeal Cancer for 7 years.

MY Esophogeast was removed at that time, Chemo,

Raditaion, knee replacement, skin cancer, scatica followed.

Life is the greatest gift our Creator can give us.

Be encouragement to those fighting the same.

See those your love each day and thank God for

each day.

Keep your chin up and spirit high George.  You sure have been through a lot and I am cheering your continued success!

RE: Diagnosed with stage 4 esophogeal cancer

by paul64 on Thu Dec 31, 2015 12:51 AM

Quote | Reply

On Dec 23, 2015 8:04 PM steveb50 wrote:

On Dec 22, 2015 8:53 PM paul64 wrote:

Hi all, just joined the site. After an endoscopy I was diagnosed with EC 12/3/15. It has mets to lymph nodes. My oncologist order a PET scan which I had Friday and I'm waiting on the results. He wanted me to start pill form and IV type chemo last week ( with possible radiation also )  but I'm waiting for the results of the PET to come in before making a treatment decision. If the cancer is in my lungs or anywhere else I may opt to just not get treatment. My wife passed with lung/brain/bone cancer three years ago so I'm not sure if I want to go thru with it (chemo/radiation) myself after watching and living with what it did to her. It's a decision I have to make soon though...just as she did. I miss her terribly and at nearly 65 years of age there isn't much to live for now.   Doctor says 6-7 months likely with no treatment....I just dont know what to do at this point in time..maybe the PET results will make a decision easier for me.  Has any one of you felt this way with your EC, I mean is the treatment worth the ride?  Whatever battle or struggles you face I wish you the very best and Merry Christmas to all.  ( Politically incorrectness aside)    

Dear Paul,

You have suffered such an agonizing loss it is understandable why you don't feel like you have much fight left in you. Especially after watching someone battle cancer with traditional chemo therapies and radiation.

My husband has stage 4 EC. He was diagnosed in 2011 folfox/5fu every 3 wks, had his esophogus removed in Jan.2012, had a recurrence 9/12 treated with taxol/carboplatin wkly with daily radiation aimed just at a node and now has been positive with a EC in his lung since last March. He began a clinical trial in October with Keytruda. It virtually has had no side effects so far and he has had a slight response after 3 infusions. Check with your oncologist to see if you qualify for the clinical trial for pembrolizumab(Keytruda). It is the agent Jimmy Carter has had success with so far.

Hang in there! I hope you won't give up! You are still in shock from this diagnosis. Give it some time and get with the best docs and hospital available.

Best, Tracy B. (wife of steveb50)

TracyB...how are you and SteveB doing? Very well I hope.  That Keytruda sounds promising and I am wanting to hear some really positive news from you! 

RE: Diagnosed with stage 4 esophogeal cancer

by paul64 on Thu Dec 31, 2015 12:54 AM

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Whippleschmiple I am truly happy for you and I appreciate your input. Thank you!

RE: Diagnosed with stage 4 esophogeal cancer

by tomsimmons57 on Thu Dec 31, 2015 01:44 AM

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I was diagnosed in Feb 15 EC stage IV,  mets to lymph nodes and lungs.  I have been on chemo since (14 - 3 week cycles)  My quality of life had been OK until about Sept. when the mets on my neck started spreading fast.  I did a much stronger chemo for 3 cycles, and finally asked the Doc to delay the "ugly chemo" until after the holidays,  returning to the original 2 drugs taken since Feb.  The mets ARE gone for now and I feel almost normal again.  We will take pics again at the end of Jan.,  to see where it is and re-evaluate the progress.  You can always modify your drug regiment and take what works for you.  I was told one year back in Feb.,  but I am far from dead,  and will try to go as long as possible.  As far as the quality of life....   It's what you can do,  that counts.  At some point in my life,  I realized that I wasn't going to grow another foot and a half, and would never play for the NBA,  but that didn't stop me from living.  Now I am thankful for my friends and family that support me,  and really appreciate the "little things"  The doc said inoperable and non curable,  but I still don't buy it....  Every person is different and every Cancer is different...   Work to beat the "Beast" ...  My prayers go out to you.

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