Radiation or surgery

15 Posts | Page(s): 1 2  Next 

Radiation or surgery

by Kdaugherty55 on Thu Dec 31, 2015 03:53 AM

Quote | Reply
Just diagnosed with pc from turp surgery.urolog ist wants to do radiation and I have read up on a lot of side effects from this treatment but what are the side effects I can expect from prostate removal.score was 3 + 4 with psa of 3

RE: Radiation or surgery

by jwest29 on Thu Dec 31, 2015 05:06 AM

Quote | Reply

I do not know a whole lot of the details but i have been doing radiation for laryngeal cancer for over a month and I have been with a lot of pc patients.  They all said that pretty much their only side effects was feeling tired from time to time. Honestly after seeing them every day and they were doing 44 treatments, I would try radiation first.  I was with one man on his last treatment and showed no side effects at all. Again though, I am not an expert.

RE: Radiation or surgery

by Kdaugherty55 on Tue Jan 05, 2016 02:29 AM

Quote | Reply
Thank you see dr again tomorrow

RE: Radiation or surgery

by tomatoman on Tue Jan 05, 2016 03:57 PM

Quote | Reply

I had radiation therapy in 2008. Can't recall any side effects. You go in, lie on a table, the machine rotates around your body.  You go home. 38 times total over six weeks, once a day or so as I recall.

RE: Radiation or surgery

by jwt1253 on Tue Mar 08, 2016 03:07 AM

Quote | Reply
Did you do proton therapy and if so where and results, any side effects, UI or ED? How about psa results? Thanks, husband just diagnosed 2 weeks ago.

RE: Radiation or surgery

by tomatoman on Tue Mar 08, 2016 02:39 PM

Quote | Reply

In my case the cancer metastised somewhere outside the prostate.  Don't recall any side effects like ed from the rad. therapy. Although PSA was reduced to <.1, for about three years, it then began rising, up to about 10 over a few months.  That was judged by the doc to be sign of metastic cancer, and Lupron with Bicalutimide, (three shots over six month period), was used to stop testosterone production.  Again the PSA returned to <.1, but only for about 20 months, and it again started rising, again to 10 over a few months. Doc again applied Lupron-bicalutimide, and it again fell to <.1.  Twenty-one months later PSA again rose to about 10 over a few months.  I am now in third series of Lupron-bicalutimide treatment.  Just took PSA but don't know results.  I presume <.1, as I have no clear pain sensations.  It is essentially symptomless, except that the hormone therapy of course kills libido and causes ed for about a year, after which testosterone levels rise and libido returns, ed lessens.

The cancer I have is microscopic, or at least too small to detect by bone scans or catscans. I suspect, from pain sensing, tumors grew in unknown location first time it metastized, in my tailbone the second time, and in my rectum the third time, last fall, but I don't really know for certain as nothing showed on scans.

First cycle I reduced red meat animal fat but continued eating lean meat.  Second cycle I stopped eating red meat (beef and pork, but ate chicken), and began tomato soup (with jalepeno, black pepper, garlic, onion, etc) consumption. Third cycle I stopped eating all meat except fish and continued tomato soup regimen.   

RE: Radiation or surgery

by sandy26 on Tue Mar 08, 2016 02:53 PM

Quote | Reply

I am not an expert in this area but I do know in 2002 my supervisor had proton therapy done for his prostate cancer and he is cancer free to this day. He did a lot of research on prostate cancer and he said that proton therapy is the best treatment out there. He had it done at Lom Linda in California. It took two months. It's noninvasive. They now have proton therapy in Seattle at SCCA.

You want proton therapy instead of regular radiation. The insurance might fight you on this, but go for it, they will end up paying the bill.

Sandy

RE: Radiation or surgery

by tomatoman on Tue Mar 08, 2016 03:12 PM

Quote | Reply

Forgot to mention, my rad therapy was" external beam radiation therapy", (don't know if different from proton therapy), at Alta Bates Summit medical center in Berkeley, California.

RE: Radiation or surgery

by jwt1253 on Tue Mar 08, 2016 04:05 PM

Quote | Reply

Thank you so much for recommending proton therapy. It helps to know that if you fight for payment the insurance company will finally pay as this is a major concern for him. While I'm the spouse and will not make the choice, I pray he chooses proton therapy because I don't care how much it costs if it gives him a better quality of life.  My husband will be on Medicare in mid Jan 2017, not sure if they will pay but hope they do, so we hope to wait until then.  

RE: Radiation or surgery

by jwt1253 on Tue Mar 08, 2016 04:12 PM

Quote | Reply

Proton Therapy is different. It is more specific if I am understanding the literature correctly. I am a bit concerned about recurrence. Did they say why yours came back, was it because it was too small to detect?

15 Posts | Page(s): 1 2  Next 
Subscribe to this message board discussion

Latest Messages

View More

We care about your feedback. Let us know how we can improve your CancerCompass experience.