My mother has a poorly differentiated, high grade pancreatic NET

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My mother has a poorly differentiated, high grade pancreatic NET

by csrosen on Sun Jan 03, 2016 01:57 PM

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Hey all,

Back in November, my mother had a CT scan for unrelated issues and a suspicious mass was found on her pancreas. At first, we thought it was conventional PC, but a biopsy showed that it was actually a poorly differenitated, high grade NET. The tumor is non-functional. The doctor said it was remarkable how early it was caught as it has yet to spread outside the pancreas, though it is touching a vein (but hasn't invaded it yet). It is only 5 cm by 2 cm, around the size of a golf ball. The doctor estimated it was only formed a 2-3 months ago. My mother is now undergoing a carboplating and etoposide chemo treatment. The doctor said the tumor is resectable with a Whipple, but feels some chemo beforehand will make the operation more easy on my mother.

I have done research on this type of tumor, and all I keep reading is about the poor prognosis of poorly differentiated tumors. However, from what I hear, most of these tumors are caught when it has already spread to the liver and most of time, surgery is impossible. Despite this, my mother's doctor is optimistic about her.

Has anyone had or know anyone who had a whipple to remove a poorl differentiated, high grade tumor? If you have, please let me know how it went and how you/your loved one are doing today. 



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