Stage IV Esophageal Cancer Survivors and Positive Stories Please!!!

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RE: Stage IV Esophageal Cancer Survivors and Positive Stories Please!!!

by bobdonaghy on Thu Jan 03, 2019 06:53 AM

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Rick, I started folfox and herceptin in sept 2015. after 9 rounds, the oxaliplatin was stopped due to neuropathy setting in. I continue to get 5fu and leucouvorin (sp) which are the other 2 components of folfox plus herceptin every 3 weeks. next tuesday I think will be my 75th chemo session. being on paliative care, I will be treated for the rest of my life even though I am NED at this point. someday, it may stop working to keep the cancer at bay but until it does......

RE: Stage IV Esophageal Cancer Survivors and Positive Stories Please!!!

by RickG1000 on Thu Jan 03, 2019 02:18 PM

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On Jan 03, 2019 6:53 AM bobdonaghy wrote:

Rick, I started folfox and herceptin in sept 2015. after 9 rounds, the oxaliplatin was stopped due to neuropathy setting in. I continue to get 5fu and leucouvorin (sp) which are the other 2 components of folfox plus herceptin every 3 weeks. next tuesday I think will be my 75th chemo session. being on paliative care, I will be treated for the rest of my life even though I am NED at this point. someday, it may stop working to keep the cancer at bay but until it does......

Thank you for the info.

I did eight rounds last summer (May to August). My doctor then stopped because my PET scans were clear. This was a bit controversial (at least to me), because as you said, the cells were obviously still there, just to small for a PET to pick up. I wanted to keep going, but we stopped. The cancer then returned a few months later, on one lymph node.

I also noticed the neuropathy, but interestly enough, it wasn't so much while on the chemo, but a few months later after it stopped. Tingling, cold feeling, tiny bit of numbing, but no loss of feeling or motion. My new doctor has recently put me on Gabapentin (300mg x 2), which has helped.

Thank you again for the info on what you are doing, that is truly fascinating.

RE: Stage IV Esophageal Cancer Survivors and Positive Stories Please!!!

by RickG1000 on Thu Jan 03, 2019 02:21 PM

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On Jan 02, 2019 11:46 PM jojoalexis wrote:

Hello Rick. My husband was diagnosed stage 4 November 2016. He is on immunotherapy now and stable. I definitely suggest you check the referrals on here for treatment. My husband goes to cancer treatment centers of anerica.

Thank you. Hearing these success stories the past few days have been a big uplift. 'Success' from the standpoint that people are making past a year and living their lives.

May i ask what immuno therapy drug your husband is having success with?

RE: Stage IV Esophageal Cancer Survivors and Positive Stories Please!!!

by jojoalexis on Thu Jan 03, 2019 05:35 PM

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he is on keytruda since jan/february. no new growth since diagnosis in 2016. they did radiation on liver in october which is supposed to help keytruda work better. we see the protein levels in blood are higher so it is working and no new growth. MRI in a couple months to see how well it worked.

https://www.keytruda.com/?src=google&med=cpc&camp=Keytruda+Pan+Tumor_Brand_BRND_NA_ENGM_EXCT_TEXT_NA&adgrp=Brand+Keyword_General&kw=keytruda&utm_kxconfid=sq7irm3mh&gclid=CjwKCAiAgrfhBRA3EiwAnfF4trQt4531F2Wo5fY3Udoy6X_YjYjZQEv19SnqM2km7DnXRGHeSYK_JBoCEPcQAvD_BwE&gclsrc=aw.ds

RE: Stage IV Esophageal Cancer Survivors and Positive Stories Please!!!

by Chris3455 on Fri Apr 26, 2019 05:28 PM

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Hi Rick,

My husband has has EC since Sept. of 2016.  He was on a trial chemo and Keytruda.  Didn't work out well.  Then Folfox again didn't work out well.  For the last year and half he has only been on Keytruda and all the spots in his liver have basically vanished.  It has not done anything for the main tumor in his esophagus, so finally the Doctors are maybe going to start radiation. Just for quality of life, since he has been on a feeding tube for 2 years now.  Hopefully they can shrink the tumor in his esophagus so he can at least eat.  I have no idea how long you can stay on Keytruda, but his Doctor has said it has worked miracles... at least in his liver. He still has 3 mets in his lymph nodes and is still considered stage IV. Surgery is out of the question.  I would love for him to be able to eat again.  But, for now he still works everyday.  He is a contractor and goes out on jobs everyday. Comes home early usually, but if you looked at him and didn't know him you would not be able to tell he was sick.  He has a great attitude while he is out with others and only shows his weaknesses around me.  I hope for all who are going through this awful disease get the help they deserve.  And that it is the best care available.  Bless you, Marcia

RE: Stage IV Esophageal Cancer Survivors and Positive Stories Please!!!

by johnfantastic on Mon May 20, 2019 03:11 PM

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My friends sister was diagnosed with stage 3 cancer June of 2017. She underwent chemo, surgery then chemo again.
Her condition got worsed and became Stage IV and has metastasized to her liver and lymph nodes. The doctor said she has no hope giving her 18 months to live.

She started taking guyabano tea leaves and she got well. She is now cancer free for the last 8 months.

I posted the story in a thread. Its a miracle

RE: Stage IV Esophageal Cancer Survivors and Positive Stories Please!!!

by bkwinn on Mon May 20, 2019 08:46 PM

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Did she do other things aside from drinking guyabano tea leaves?  Please let me know because my husband was diagnosed with Stage 4 EC.  Currently, he is going through chemo.  Really appreciate your reply.  Thank you so much.

RE: Stage IV Esophageal Cancer Survivors and Positive Stories Please!!!

by jojoalexis on Tue May 21, 2019 02:05 PM

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Hi there - have you considered cryotherapy? My husband was diagnosed stage 4 November will be three years. On keytruda now for a year and is stable but did not shrink main tumors. started havign issues swallowing again so went through 4 rounds of cryotherapy and can eat !!!

RE: Stage IV Esophageal Cancer Survivors and Positive Stories Please!!!

by jojoalexis on Tue May 21, 2019 02:06 PM

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sorry meant this for you - Hi there - have you considered cryotherapy? My husband was diagnosed stage 4 November will be three years. On keytruda now for a year and is stable but did not shrink main tumors. started havign issues swallowing again so went through 4 rounds of cryotherapy and can eat !!!

RE: Stage IV Esophageal Cancer Survivors and Positive Stories Please!!!

by johnfantastic on Tue May 21, 2019 03:53 PM

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On May 20, 2019 8:46 PM bkwinn wrote:

Did she do other things aside from drinking guyabano tea leaves?  Please let me know because my husband was diagnosed with Stage 4 EC.  Currently, he is going through chemo.  Really appreciate your reply.  Thank you so much.

Hello BKwinn,

My friends sister because she was a nurse in the USA went to the traditional medicine procedures. She had surgery to remove her esophagus, then chemotherapy then when new growth was found she went into chemo again but her condition did not improve. Last August of 2018, her oncologist said that there is no more hope of a cure for her because her cancer has metastasized to her liver and lymph nodes and they should start preparing for palliative care.

Thats the only time my friend able to convince her to try something different. She had always been reluctant because her doctor forbids her from drinking unknown and unproven concoctions because it may interfere with her chemotherapy drugs, But when her doctor gave up on her, she finally agreed.

You see in my country Guyabano Tea Leaves has always been a folkloric cure for Cancer.

She started taking 6-10 cups of guyabano Tea a day prepared from grounded dried guyabano leaves. 1 tablespoon of guyabano leaves per cup of water.

She also started taking very small quantities of baking soda. I will ask for the exact ratio from my Friend and I will post it again tomorrow.

I hope Bkwinn that your husband gets well and please take all this advises with a grain of salt. It may not work for your husband. 

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