Radiation in pelvic region, endometrial cancer

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Radiation in pelvic region, endometrial cancer

by bradfordsbabe on Sat Feb 20, 2016 10:17 PM

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I just finished 33 radiation treatments and am astounded by the lack of attention given by Dr. and nurse regarding the oozing burns I'm left with.  When they are between your legs and in the genatalia, normal movement is impossible and the dripping oozing is horrendous.  Anyone know of any garment made of Telfa or absorbent material that could go on over the aloe, or Aquafor or whatever to keep in the mess.  Am I doomed to be spread-eagled in gowns for 2 weeks?!!

RE: Radiation in pelvic region, endometrial cancer

by BonBonV on Sat Feb 27, 2016 08:06 AM

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I feel for you after having 28 radiation treatments for anal cancer. Third degree burns in that area is awful. I tried the liquid spray bandaide but it seem to make the burns burn more. Try using baking soda in a warm water tub and soak often and use a fan to air dry. I wouldn't count on healing in two weeks and don't expect your pubic hair to grow back. Kind of a blessing not to have five o'clock shadow there anyway. If you just finished treatments the burns tend to increase for at least two weeks as the radiation works out of your body. Only wear loose cotton underwear. Try flannel boxer underwear as those won't rub in the creases.

RE: Radiation in pelvic region, endometrial cancer

by bradfordsbabe on Sat Feb 27, 2016 04:19 PM

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Thank you, thank you.  It's reassuring that I'm not alone.  I'm going to try the boxer underwear angle.  Right now, I'm just using a pillow case tucked into the back of a skirt to have a sit-upon to prevent the yuck from transferring when I sit.  I have a mixture of lidocaine and Aquafor for the skin damage but the best pain relief for me is Ibuprofen.

RE: Radiation in pelvic region, endometrial cancer

by BonBonV on Sun Feb 28, 2016 09:29 AM

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Lyrica for the pins and needles in both legs. Hydromorphone fast acting for break through pain and slow release pain meds. In April of 2012, after 28 radiation combined with 2 weeks of chemo treatments to shrink a 5 cm anal tumor, I was told the pelvic area was the worst place for radiation skin damage. Constant diarrhea for a year did not help either because the scar tissue continues to break and bleed to this day. I've since had 5 radiation treatments on my lung and 5 treatments twice on my liver last year with no extra skin damage. They wanted to do surgery on both the 2 cm lung tumor in 2014 and then the 2 cm liver tumors in 2015 but I pushed for radiation instead. My chemo doctor told me she thought I made the right decisions because a liver resection would take a long time to heal and then the second liver tumor appeared 4 months later anyway. I'm very hopeful now because my CT scan was clear for new tumors in December and the treated tumor shrunk in size. I've been drinking Dandelion tea for the last 3 months and believe that is stopping the spread of the secondary liver cancer. I'd swear by the tea if my April scheduled scan is good because I've beaten the odds so far for overall survival rates. It is good to know we are not alone in our fight to survive cancer. I wish you all the best in your battle.

RE: Radiation in pelvic region, endometrial cancer

by bradfordsbabe on Sun Feb 28, 2016 04:05 PM

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Thank you again for your input.  It is a pain to have to live with cancer and its treatments but the important thing is that we can continue to live.  People live with other diseases and inspite of them - Parkinsons, MS, etc - so keeping that positive thought pattern sure doesn't hurt!

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