Post rad 6 wks how much do you sleep?

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Post rad 6 wks how much do you sleep?

by Cardoza33 on Tue Mar 15, 2016 10:36 PM

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today is 6 weeks post radiation.  My mouth is still bad, but getting better.  I can use lidocaine and get some food down, but mostly still on tube. Over the past week or so my fatigue level has gotten ridiculous.  If I do not make myself get up and take a walk, I think I could sleep all day?  For the most part it seems odd the fatigue kicks in so late.  Is this consistent with anyone elses experience?  I think I am healing while I sleep.  I think that is why my mouth is getting better finally.  Though this whole experience my fatigue level was okay except with I did chemo it knocked me out for a few days.  Now 6 weeks out I literally feel like sleeping all day.  Any suggestions?  Should I just sleep and let it pass?

Thanks

RE: Post rad 6 wks how much do you sleep?

by atcbugsy on Tue Mar 15, 2016 10:55 PM

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Tony,

As you've read, everyone is different.  Of course you could sleep all day - you've been through the biggest crapfest of your life and your body has been through hell.  Give yourself time and trust what your body is telling you.  It's a balancing act.  You want to get out of bed and at least walk around the house, but your body is saying it needs to recover.  Give it time.  You'll find what works for you.

Best of luck.

Bugsy

RE: Post rad 6 wks how much do you sleep?

by PopPop on Wed Mar 16, 2016 01:37 AM

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Cardoza, 

Like Bugsy stated, everyone is different and listen to your body. Remember, we "Cook" from anywhere between 4-8 weeks after treatments, so you might be in the longer range for a bit more.

When you have some bloodwork done, make sure your Iron and Thyroid levels are taken, these can cause fatigue as well if they are not where they are suppose to be. 

When I was going thru Radiation, I would drive myself and when I got home, I was tired, but I didn't take a nap until I split wood for at least 10-15 minutes. Now I had a real reason to take a nap, not because of treatments, but from doing some sort of work. It was my little mind game that worked for me.

My Best to You and Everyone Here

RE: Post rad 6 wks how much do you sleep?

by Sdurnell on Wed Mar 16, 2016 05:06 AM

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I think you are right about the sleep promoting healing.  That along with good nutrition will get you better faster.

I vote for allowing yourself to sleep as much as you can when you're tired.  Get up to eat, try to take a daily walk outside, even if it's just around the yard or down the block, then go back to bed if you need to.

I was very tired the first year, and took a lot of naps.  The first few months were the worst, but improvement was slow, very slow.  When I got so I could go out to do something, I'd have to take the next day off to sleep.  It wasn't until two years out that I felt I had my stamina fully back.  

All the best,

Susan

RE: Post rad 6 wks how much do you sleep?

by atcbugsy on Wed Mar 16, 2016 11:07 AM

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Tony,

PopPop brings up a good point about getting your Thyroid levels checked.  My doctor never mentioned it.  Only after reading about it on the Boards did I ask my regular doctor about it and we had them checked.  Sure enough, I have hypothyroidism thanks to all the radiation on my neck area.  Easily treatable, and definitely worth checking.

Best of luck.

Bugsy

RE: Post rad 6 wks how much do you sleep?

by hisprincesstoo on Wed Mar 16, 2016 05:04 PM

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I also slept a lot even post radiation.  I decided if I wanted a nap to take it.  Slowly, I found other things to do besides a nap.  I made sure I did something physical that was fun for me because I'm prone to depression.  For me this was dancing.  I went at least once a month at first even though I couldn't do the entire dance.  Now, I'm going a couple times a week to help with lessons.

I was hyper thyroid before treatment, normal now, so I know the radiation takes out part of the thyroid.

my energy level now 15 months out is higher than it was pre treatment even.  Getting ready to get my garden in.  Been years since I've felt like that.

so, I repeat what I'm hearing from the others give yourself permission to take the time needed to heal.  Your body will let you know.  and Best wishes to you.

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