Chemo and radiation together-any experience?

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Chemo and radiation together-any experience?

by Prayformom on Wed Mar 16, 2016 12:52 AM

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Hi All- I would like as much feedback as possible. So, my mom is diagnosed with stage 4 lung cancer. She has has been having radiation for 3 weeks and also got a PET scan. The cancer has not spread anywhere except for the lungs. She met with the doctors and is going to start Chemo along with the radiation. Has anyone done both at once? Experiences? Side effects? Do we have a chance at beating this thing? Do we have a better chance at extending her life for a long time? If anyone has any stories of similar situations (good or bad) , I would love to hear them. This whole thing has come as a shock, and we are all trying to stay positive. But it's so hard to watch someone you love go through this! Thank you for your support!!

RE: Chemo and radiation together-any experience?

by SDougan on Wed Mar 16, 2016 09:17 PM

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My father had stage 3 lung cancer about 4 years ago, they removed 1/2 of his top right lung. He had chemo after that for a long time. He really for a long time was shorter on breath, and his biggest issue was that he could not taste food and was not that hungry for almost a year. He is still alive and is a 3 time cancer survivor- there was not a lot of pain with that surgery but there has been much more with a lymph node/muscle/nerve cancer found in his neck last year... Then followed With 30 radiation treatments. That source was a primary skin cancer on his forehead and it traveled into his cheek - and then down into lymph node. Been in excruciating pain from radiation and surgery since last May. Still trying to manage his pain and went to Blaustein Pain Mgmt at Hopkins-tried a partial nerve block -- we will know if 4 weeks if this is going to actually work. Watching him in this much pain all this time, has been horrible... Trying to help with no solutions.... We are praying the nerve block works.

RE: Chemo and radiation together-any experience?

by Dkramer on Wed Mar 16, 2016 10:00 PM

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Hi, I have stage 3B and my age when it was found was 67. My doctors said that since I was in very good health they would do both chemo and proton radiation at the same. It was fine at first but it mad me very weak, also the radiation made it that I could not eat. I lose 52 lbs in two months ( however I put it all back in the last two years ). I was told that they get better results by doing both at the same time. I pasted my two year mark this past December and I'm due foe my next scan in early May. I still get very upset the week before the scan, until I see my doctors. During my treatment I got double pneumonia and was in the hospital for 2 weeks. The real problem that I had was my heart rate went very high, resting rate was around 70 and went to 140/150. Been put on meds to control that problem. You must also make sure the you do not touch anything and wash your hands very offen. The best of luck to you and ask your doctors as many questions as possible, I ever to this day write down every question I might have and I ask my doctors everyone of them.

RE: Chemo and radiation together-any experience?

by Prayformom on Thu Mar 17, 2016 07:24 PM

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Hi- THANK YOU so much for replying to my message!! 2 years!!! Congratulations to you. First of all, your situation sounds exactly like my moms. My mom is 67. She also got pneumonia. Her heart rate also went up. She also lost a bunch of weight. (20 pounds in two weeks) Your story gave me so much hope. I hope you don't mind, but I have a few questions for you. Was the cancer in both lungs or just one? After you completed both the radiation and the chemo, that was it? You were in "remission" and now you go back every year for a scan? Did they give you an original time frame when you were diagnosed? The doctors must be so pleased, correct? How do you feel? I think that's wonderful that you just pasted your two year mark!! Way to go!! I'm hopeful for my mom! She's a strong woman. I know she can beat it!! Thanks again for answering my questions. I really appreciate it. I do sooo much research online, but it's nice to talk to someone first hand that has been through it!! Thanks again. I look forward to hearing from you.

RE: Chemo and radiation together-any experience?

by Dkramer on Thu Mar 17, 2016 08:16 PM

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Hi, I'm sure your mom will do well. When I first read the news ( on my birthday ), I had to pick up the results of my CT and take them to the doctor so I read them in the hospital lobby. The only think I keep on saying to my husband was " I had cancer", I must have said it 10 times. When I got to the doctors office, he said I'm going to send you to my mentor and he got me an appointment the next day. I live in Philadelphia and I go to university of Pennsylvania., so I very lucky. Within two weeks I had every test done and was starting treatments. I think the hardest thing was losing my hair ( because I had beautiful hair ) I must have got 10 wigs all lace front so no one could tell I had a wig on. Since then my hair has come back the same as it was, but I still like to were my wigs. The next thing I did was go and buy plots and my husband was very up set about that, but I had to deal with reality. I also made all my arrangements, that also got my husband upset however I had to take control. My cancer started in my right bronchial tube and 2 lymph nodes. I was told that after the chemo and radiation I had scans every 3 months for two years. From years 2 to 4 I will have scans every 6 mo this then once a year after that. The doctors will not say that I'm in remission they will only say I'm N.E.D. I was also told the long it gose without coming back the better are my changes are. So I'm moving on with life. I go to Florida for 6 months, I'm going to Israel and Greece is September and I made plans to go to South America in December for the holidays. Please had hope for your mon, it's hard but she can do it and make sure you have the best doctors. I have met so many people at the hospital that are doing well after many years. Any questions please just ask and never be shy about asking questions.

Chemo and radiation together-any experience?

by pshega on Mon Mar 21, 2016 05:36 PM

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My mother gas stage IV adinocarcinoma.  She has been having chemo since June 2015.  She just fininshed 3 weeks of radiation along with her chemo.  She is having trouble swolling and is very sensitive to smells.  We are done with radiation for the time being.  Her last SCAN showed no evidence of disease in her lung and adrenal gland. She had a little cancer left in her lymph node.  She is 75 years young and has always been healthy.  Shei s down to 106 lbs.  Praying the worst is over.  Overall she continues to amaze us. 

Patti - Medina Ohio

Chemo and radiation together-any experience?

by pshega on Mon Mar 21, 2016 05:37 PM

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My mother has stage IV adinocarcinoma lung cancer.  She has been having chemo since June 2015.  She just fininshed 3 weeks of radiation along with her chemo.  She is having trouble swolling and is very sensitive to smells.  We are done with radiation for the time being.  Her last SCAN showed no evidence of disease in her lung and adrenal gland. She had a little cancer left in her lymph node.  She is 75 years young and has always been healthy.  Shei s down to 106 lbs.  Praying the worst is over.  Overall she continues to amaze us. 

Patti - Medina Ohio

RE: Chemo and radiation together-any experience?

by edeuson on Thu Mar 24, 2016 12:36 AM

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Hello Prayformom-I have stage 3b non small cell lung cancer, 69 years old, severe RA,and had chemo and radiation at the same time. Two rounds of chemo and 36 radiation treatments. I had very few problems during treatment, it was after, that I had severe esophagus pain, and nausea. It has been 6 weeks and both problems have cleared up.  Hope this helps. Praying for you both.

PS If she needs to be sad and shed a few tears occasionally, pleease let her.

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