Who frequently would you get sick during recovery?

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Who frequently would you get sick during recovery?

by Cardoza33 on Wed Mar 16, 2016 07:50 PM

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I'm just checking on others experience. [Since I am sitting around all day just thinking/worrying...I'm sorry.]  I am getting sick a few times a day still 6 weeks out. There does not appear to be any main cause I can pin point.  At times I think it's because I waited too long to feed myself through the tube.  Others, its appear to be acid reflux which was a problem for me before I even had cancer.  At times, I can go a few days without throwing up.  Then I will have a string of days where I throw up 2-3 times.  Are/have  others experiencing this?

I am thinking about going back on the anti nausea medications.  I think it was zophran and adivan?  Any other suggestions.

RE: Who frequently would you get sick during recovery?

by Sdurnell on Wed Mar 16, 2016 08:35 PM

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I would definitely go back to anti-nausea meds if they worked for you before.

Are you taking anything for reflux?  If not you might want to consider that too, since GERD is even worse for people who have any kind of scar tissue from surgery and/or radiation.

And my last suggestion is to think about changing whatever you are using with your tube.  I had a lot of problems with my first formula and feeling sick to my stomach, sometime vomiting.  I was only getting about 400 calories a day, which was the same as before the tube, and my weight continued to drop like a stone.  Finally I got a different, more concentrated formula which was a lot easier on my stomach and my weight stabilized too.

Good luck to you with this bothersome problem.

Susan

RE: Who frequently would you get sick during recovery?

by Loves2Fly on Wed Mar 16, 2016 10:06 PM

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Several things bothered my husband:

1) The formula itself - changing formulas may work better for you

2) Speed you are taking it. Slower is sometimes much better, so watch how fast you pour it in

3) Reclining when taking it. Keep upright, or at least 30 degrees. Laying down seems to make it come back up.

A little trick we learned was to take a small alcohol wipe - the small individually wrapped you use for a shot - and wave it (not wipe it) under your nose and sniff. For some reason, this can sometimes help get the nausea under control.

RE: Who frequently would you get sick during recovery?

by Sdurnell on Thu Mar 17, 2016 05:47 PM

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Another thing.  I could not do bolus feeds (using a syringe) so had a bag on a pole for gravity feeds.  That was making me sick, too, so I got a pump which can be controlled even more closely.  I had to be hooked up a lot, but the feeds were a lot easier to tolerate, especially after changing formulas.  There are many, many therapeutic formulas out there, so if one doesn't sit well on your stomach, be sure to ask for a change.  

I was on the tube for quite a while, and it got really old being hooked up to a pole.  I eventually got a backpack pump so I could travel, and it was wonderful.  Something to think about if you are still having problems down the road.

Susan

RE: Who frequently would you get sick during recovery?

by murf100 on Tue Mar 22, 2016 12:09 PM

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I had a similar experience. I would get gagging and dry heaves at unpredictable times, but most commonly in the am. I was not linked to feeding. As best I can tell it was just gag reflex induced by the radiation damage. It graddually subsided after 2-3 months. Like most treatment side effects, time tends to reduce the severity. Hang in there. Brian

RE: Who frequently would you get sick during recovery?

by Hawkatp on Tue Mar 22, 2016 04:42 PM

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I'm 8 weeks out from my treatment and got sick this morning, first time in several weeks.  No particular reason.  It was really bad about a month ago, but has gotten a lot better.

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