Post treatment fatigue

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Post treatment fatigue

by Hawkatp on Sat Mar 26, 2016 01:41 PM

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I am 8 weeks out from 7 weeks of chemo/radiation and am doing pretty well except extreme fatigue. I lost about 20 pounds during treatment. My strength is way down, and I just want to lie down all the time. I've been walking about 2 miles a day, and am going to start reintroducing strength training. How common is this weakness/fatigue after radiation and how long did it last for you?

RE: Post treatment fatigue

by PopPop on Sat Mar 26, 2016 02:23 PM

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Hawkatp,

Congratulations on completing your treatments and only losing 20 pounds, many of us lose much more. You are basically were most of us have been, fatigued after treatments.

We "Cook" from anywhere between 4-8 weeks after the final treatment. We feel the full effects of the cummulative treatments, so basically getting hit with the kitchen sink after treatments are done.

You are doing good by walking 2 miles each day and soon you will start to feel better each week. Measure your improvements by weeks, not days, it is a slow process for us. The affects of Radiation can last as long as one year with the fatigue issue. 

Two things my RO told me to check with my bloodwork were my Iron levels and my Thyroid levels (TSH). He stated that it wasn't a matter IF my Thyriod would fail, it was a matter of WHEN it would fail. Mine did last for nearly 5 yrs before my energy level fell off the charts and now I take a generic med for it and it has helped. 

MY Best to You and Everyone Here

RE: Post treatment fatigue

by atcbugsy on Sat Mar 26, 2016 07:07 PM

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Hawkatp,

You are light years beyond where I was at 8 weeks out.  I wish I could have walked 2 miles.  Like PopPop said, it's a s-l-o-w process and we all progress differently.  The good news is, you will progress.  I'm about 18 months post and I hike 4-5 times per week anywhere from 3-10 miles each hike.  I've got a 3 year-old Catahoula and she keeps me busy.  So, hang in there and don't set yourself back trying to do too much.  Your body will let you know.

I'll second what PopPop said about getting your thyroid levels checked.  I started Synthroid a few months ago because radiation killed my thyroid.  So, get it checked.

Best of luck.

Bugsy

RE: Post treatment fatigue

by Cardoza33 on Sat Mar 26, 2016 09:58 PM

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Tuesday I will be 8 weeks out as well.  I took a nap in the middle of replying to this note. hahah.  yeah, I feel like I could sleep all day as well. I walk a coupe times a day.  Try to go out and watch my kids run wild, but still I eventually end up inside crashed out.  If you find any tricks besides time, let me know. Tony

RE: Post treatment fatigue

by Hawkatp on Sat Mar 26, 2016 10:28 PM

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I have a 4 and 6 year old so it's been pretty tough laying around all the time and not being able to play with them. The only way I was able to be with them when they were playing was to lay on the couch and have them play video games while they sat on me! Hahaha, true! I had a light workout today and felt a lot better after, gathering the energy to do it was a huge effort though.

RE: Post treatment fatigue

by Tandj1119 on Sat Mar 26, 2016 11:03 PM

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I cannot imagine how you are coping with fatigue while having little ones around. Although I know when my grand kids are around it helps me so much. It sounds like you are pushing thru, good for you!

RE: Post treatment fatigue

by Cardoza33 on Sun Mar 27, 2016 01:10 AM

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That's funny my litte ones are 4 and 6 as well.  I also have a 13 year old.  Just curious how are you doing eating wise?

RE: Post treatment fatigue

by Hawkatp on Sun Mar 27, 2016 01:59 AM

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On Mar 27, 2016 1:10 AM Cardoza33 wrote:

That's funny my litte ones are 4 and 6 as well.  I also have a 13 year old.  Just curious how are you doing eating wise?

I'm doing so much better eating! I had the PEG tube removed 4 weeks ago because it irritated me so much, and I had made it 3 days without taking formula. Soon after they took it out my pain went way up eating and I was worried I pushed them to take it out to fast, so I just kept my food soft until I could manage the pain better.within the last few days I finally came off the pain medicine, and was able to eat the Margaritta Chicken Bowl and a cup of chili at Chilis yesterday, and pizza for diner. The biggest problem is the lack of saliva. After a couple of bites the saliva is gone. My taste was way off 4 weeks ago and is finally getting back to normal. I hope that improves, but I can only hope.

RE: Post treatment fatigue

by Cardoza33 on Sun Mar 27, 2016 03:16 AM

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The last few weeks my stomach has been so irritated and I have been throwing up like crazy.  I decided a couple night ago it had to be the peg tube.  I'm doing my best to not use it and i have not thrown up in 3 days.  I'm leaning towards doing the same and getting this thing out.

RE: Post treatment fatigue

by Hawkatp on Sun Mar 27, 2016 11:37 AM

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On Mar 27, 2016 3:16 AM Cardoza33 wrote:

The last few weeks my stomach has been so irritated and I have been throwing up like crazy.  I decided a couple night ago it had to be the peg tube.  I'm doing my best to not use it and i have not thrown up in 3 days.  I'm leaning towards doing the same and getting this thing out.

It seemed like I would throw up everyday when I had the tube. I would start coughing or sneezing and that was all that it took to trigger it. I've only gotten sick a few times since I've had it removed, usually in the morning trying to clear mucus.
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