Post treatment fatigue

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RE: Post treatment fatigue

by Hawkatp on Sun Mar 27, 2016 12:57 PM

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On Mar 26, 2016 7:07 PM atcbugsy wrote:

Hawkatp,

You are light years beyond where I was at 8 weeks out.  I wish I could have walked 2 miles.  Like PopPop said, it's a s-l-o-w process and we all progress differently.  The good news is, you will progress.  I'm about 18 months post and I hike 4-5 times per week anywhere from 3-10 miles each hike.  I've got a 3 year-old Catahoula and she keeps me busy.  So, hang in there and don't set yourself back trying to do too much.  Your body will let you know.

I'll second what PopPop said about getting your thyroid levels checked.  I started Synthroid a few months ago because radiation killed my thyroid.  So, get it checked.

Best of luck.

Bugsy

That's great that you are hiking so much! Do you feel the same as before treatment now? Thanks for the thyroid tip, does it fail quickly or slowly?

RE: Post treatment fatigue

by atcbugsy on Sun Mar 27, 2016 03:48 PM

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I feel pretty much the same, though I don't work as fast outside because I need to stop for water breaks more often.  Same for hiking and eating (more water breaks).  But I feel good and don't hesitate doing things.  I would recommend carrying Biotene spray.  I use it before beginning an activity and it helps.

I didn't even think to check my thyroid until I read about it on this Board and I was 14 months since my last treatment.  When we first had it checked, my T4 was 0.67 (normal is 0.82-1.77). TSH was 15.16 (normal is 0.45-4.5).  I've been on Synthroid for a few months now and my thyroid numbers are getting to within norms.  And the medication is cheap.  My cost is only $4 for a 30-day supply.

Best of luck.

Bugsy

RE: Post treatment fatigue

by murf100 on Fri Apr 01, 2016 01:45 AM

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On Mar 27, 2016 1:59 AM Hawkatp wrote:

On Mar 27, 2016 1:10 AM Cardoza33 wrote:

That's funny my litte ones are 4 and 6 as well.  I also have a 13 year old.  Just curious how are you doing eating wise?

I'm doing so much better eating! I had the PEG tube removed 4 weeks ago because it irritated me so much, and I had made it 3 days without taking formula. Soon after they took it out my pain went way up eating and I was worried I pushed them to take it out to fast, so I just kept my food soft until I could manage the pain better.within "" target="_blank" rel="nofollow">http://better.within " target="_blank" rel="nofollow">better.within the last few days I finally came off the pain medicine, and was able to eat the Margaritta Chicken Bowl and a cup of chili at Chilis yesterday, and pizza for diner. The biggest problem is the lack of saliva. After a couple of bites the saliva is gone. My taste was way off 4 weeks ago and is finally getting back to normal. I hope that improves, but I can only hope.
Hawkatp Hang in there. You are a recover rock star! You are so far ahead of where I was at this point it is unbelievable. Things will continue to get better over time. Get some Biotene dry mouth rinse. A helps a lot with dry mouth. I keep a 2oz sample size in my pocket st all times. A little bit used frequently helps keep your mouth moist and helps with swallowing. I refill the sample bottle from the large, economy size. Good luck. I'm 5 years out and doing well Brian

RE: Post treatment fatigue

by Cattastroficka on Sat Apr 02, 2016 07:20 AM

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I am 6 months to the day out from treatment and my energy is the same as before treatment. I got it back a month ago. I work all day then go shopping because I lost 70 lbs. LOL Thirty five of it was deliberate and I have 5-10 to go. I get my peg tube out April 8 and haven't used it since March 9th. I hope you get your energy back soon. It's a rough ride.

RE: Post treatment fatigue

by Whitewhale on Sun Apr 03, 2016 03:17 PM

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I am trying to post after radiation but can not start new decussion. But I can reply just got done with 28 rt to laynings last my voice on last treatment 10 days out only can whisper. Any ideas? Had surgery and rt hope to get voice was gonna go to see doc tomorrow. Thank you Bob

RE: Post treatment fatigue

by DC-Wolverine on Tue Apr 19, 2016 11:06 PM

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Hawk - how is the fatigue?  Are you still on narcotics?  My fatigue didn't subside until I started tapering off my oxycodone and got down to doses below 10mg.  The sooner you can go off the narcotics, I bet the sooner your energy will come back.

RE: Post treatment fatigue

by Hawkatp on Wed Apr 20, 2016 09:51 PM

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On Apr 19, 2016 11:06 PM DC-Wolverine wrote:

Hawk - how is the fatigue?  Are you still on narcotics?  My fatigue didn't subside until I started tapering off my oxycodone and got down to doses below 10mg.  The sooner you can go off the narcotics, I bet the sooner your energy will come back.

The fatigue is all gone finally. I've been back in the weight room for about 3 weeks now. I was so weak and muscle wasted from the treatment , but have recovered quickly. I think getting my strength and muscle back helped a lot, squats quickly took care of my tired legs. I Think another month I should be back to my pre treatment strength and size. I was really amazed at how much the treatment wrecks havoc on muscle and strength.

RE: Post treatment fatigue

by Mbrosnan on Wed Aug 10, 2016 05:04 PM

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hey guys

9-10 months out here, seems once in awhiloe if I over do it the fatigue comes on but it is getting less and less and less severe as well. Nausea is a big one for me but thats getting better as well, i hate when someone says listen to your body. I bike surf and run with my two kids but know that feeling of not being able to participate like before, it will come, they are young have faith ..

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