New diagnosis, MDAnderson

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New diagnosis, MDAnderson

by Houstonwife123 on Thu Apr 21, 2016 02:53 AM

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My mom has a small tumor in her bladder and the doctor diagnosed her with cancer without a biopsy.  She is scheduled to have the tumor removed and mitomycin implanted. She is in a mid-size city about 2 hours from Houston.

I am urging her to come to Houston for second opinion b/c I'm concerned about a cancer diagnosis without a biopsy.

What else am I missing?  Thanks.

RE: New diagnosis, MDAnderson

by Catalina2 on Thu Apr 21, 2016 04:51 AM

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On Apr 21, 2016 2:53 AM Houstonwife123 wrote:

My mom has a small tumor in her bladder and the doctor diagnosed her with cancer without a biopsy.  She is scheduled to have the tumor removed and mitomycin implanted. She is in a mid-size city about 2 hours from Houston.

I am urging her to come to Houston for second opinion b/c I'm concerned about a cancer diagnosis without a biopsy.

What else am I missing?  Thanks.

I have a history of bladder cancer. I met a very good bladder cancer Doctor at M.D. Anderson. Her name was Arlene O Siefker-Radtke, MD. You can not go wrong with her. I know another at Sloan Kettering in NY. His name is Jonathan Rosenberg. Both are very good. I hope I was of some Help.

RE: New diagnosis, MDAnderson

by lorenzodow on Wed Apr 27, 2016 08:44 PM

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Is it possible that a CT scan was done on her kidney and a filling defect was seen? If so, that is probably why he dx'd her as having cancer. If not, I agree, a second opinion is the best way to go (unless he is judging by size). Since she is so close to MD Anderson, I would definitely get a second opinion there.

RE: New diagnosis, MDAnderson

by lorenzodow on Wed Apr 27, 2016 08:52 PM

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PS I have TCC now known as urothelial cancer which began in renal pelvis of left kidney. Filling defect was originally missed by local urologist, but found on re-check. He did a cystoureteroscopy and confirmed the filling defect, and made the diagnosis; however, I chose to go to another institution after another issue arose. Kidney was removed, but it is now in bladder, but follow-up continues. Mitomycin-C was used only when high grade tumors were found. It was not a difficult treatment, just a bit uncomfortable near the end, with some urinary frequency. I think I had nine weeks of treatment 3 1/2 years ago. Since then have had numerous low-grade tumors removed. For the past twelve months have had only one incidence of low grade lesions removed, and with none found last Fall, one very tiny one being removed this coming June. Hope this gives you a better outlook.

RE: New diagnosis, MDAnderson

by Catalina2 on Wed May 18, 2016 03:01 AM

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How did things turn out for your Mom ?

RE: New diagnosis, MDAnderson

by Catalina2 on Wed May 18, 2016 03:15 AM

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This may help, There is hope ! Urachal cancer is not a death sentance. I was one who thought it was.I was given very little time to live with stage 4 Urachal cancer. This is a cancer with very poor out comes.Drs . Jonathon Rosenberg and Harry Herr at Sloan Kettering knew I had a though road ahead of me but eighteen months later I am well and cancer free. I am from Kansas and ended up at Slone Kettering and NY Presberterian at Cornell. Great doctors at both. Also, get as many people praying for you as possible across the globe. Prayer works
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