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Stage 4 glioblastoma cured

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grantsnanny grantsnanny
(Inactive)

RE: Stage 4 glioblastoma cured

by grantsnanny on Wed Mar 31, 2010 07:33 PM

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I am in full and total agreement with you!  What on earth can people be thinking!  GBM is treatable and not curable--YET!  But to use the heartache and pain of families going through this to get money is absolutely heartless.  This is just unforgiveable. 

PLEASE PEOPLE DO NOT FALL FOR THIS NONSENSE.

RE: Stage 4 glioblastoma cured

by mbg53 on Wed Mar 31, 2010 08:19 PM

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Any one here who knows me knows how many times this discussion has gone on on this board. I am not a believer in homeopathics. but my philosophy is: do whatever makes you feel you have control. To each his own The sheer ignorance of posting a 5 month span of no recurrence as cured of gbm is offensive, though. it's not remotely unusual for a patient to have 5 months or more cancer-free after a full resection. I got 15 months. But it's radiation, avastin and other treatments that have given me almost 18 months of quality life, not fish oil. if the alternative options had clinical results it would be different. But they don'tand never will. I congratulate your wife on her 5 months. I hope it continues

RE: Stage 4 glioblastoma cured

by I_love_Gary on Wed Mar 31, 2010 11:29 PM

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Mary, if that woman is still going strong, thanks to her husband, then it would be 2 years now.  I don't know about you, but I want to hear that she is still 'cured'.  Lets see, she would be 74 years old now.  Well, I'm not holding my breath. 

But you know, I can understand someone's excitment over the 'apparent' cure of their loved one.  I'm sure the reality has kicked in long ago, but it is pretty impressive if they got 5 months of good time with no standard treatment.  I'm sure a lot of people would love to believe it.  I'm not one of them, but everyone needs something to hang onto.

Let's keep our hopes up for a real medical cure in the near future!               DL

RE: Stage 4 glioblastoma cured

by Shemay on Thu Apr 01, 2010 01:25 AM

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Julierr

Since you contacted me privately today I have made three unsuccessful attempts to reply privately to your message with information that I hoped would be helpful.  

After reading through this thread tonight I understand why the moderators might be holding my messages to you for review.  I am presuming they have received complaints about the claims posted earlier on this thread of successful outcomes when alternative protocols have been used.  

I sincerely hope this does not anger or offend anyone else on this board but since you asked and I know you are very worried about your grandmother I can only suggest for now that you do a Google search using the words  "Dr. Prasanta Banerji / brain cancer/ Ruta 6 

Hopefully you'll receive the private messages within the next day or so. In the meantime please pass along my best regards to your grandmother. She is blessed to have you advocating for her.

RE: Stage 4 glioblastoma cured

by Pegonedayatatime on Thu Apr 01, 2010 05:03 AM

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It seems to me that GBM and the time you get after diagnosis is the luck of the draw.  My MIL has now had almost 18 months since surgery with no regrowth of the tumor.  she has been off chemo since Sept of 09.  Her next MRI is tomorrow and they assume it will be clean yet again.

She has not changed her diet in anyway.  Nor has she taken any supplements.  She had surgery, radiation and chemo.  I feel like we are really darn lucky so far.  I am glad for anyone who does well with this nasty disease.  For those who aren't as lucky; I just hate for them to think if they had eaten better, prayed harder, or whatever that they would have been a lucky one.

Stay strong and keep on keeping on.

Peggy 

RE: Stage 4 glioblastoma cured

by jondank on Mon Apr 05, 2010 08:29 AM

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I do not believe that posts about alternative cancer cures posted here are mailicious in intent. As a scientist trained to assess hypotheses and experiments based on facts, I find that on occaison what does not make scientific sense is real nevertheless. We should not discount alternative cancer treaments outright just because they are not mainstream. For example, see the recent story on papaya leaf extract. For decades, perhaps longer, papaya has been used as an alternative cancer cure  that was not widely known. Now suddenly, because of one study at U of Florida it has gained a certain level of credibility. While we should not accept alternative cancer therapy claims at face value, the same is true of mainstream treatments...there is a lot of money driven exageration of expectations. Alternative cancer cures are like a field of landmines - you have to tread carefully to make your way through. I suppose we would not be considering crossing that field if the enemeny was not at the gates. As for the cancertutor website it seems to present information in a fair and logical manner. See the brain cancer article on that site. I am currently reviewinng the material to try understand the basis of the recommended treatments.

John

RE: Stage 4 glioblastoma cured

by SmittysLove on Mon Apr 05, 2010 01:17 PM

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John, the problem that I see in promoting alternative cancer treatments for GBM is that this cancer grows so fast that alternative methods, even if they work, do not have time to work on GBM.  Someone thinking they might try alternative, and then medical if the alternative didn't work could find that they never get the chance to, later, try the medical.

No one is saying alternative doesn't or can't help. But substituting Alternative, holistic, whatever you want to call it, for the standard medical treatments is simply condemning the patient to die faster - its cruel.

Also, the chemo for GBM is actually not as hard on most patients as chemo is for other cancers - it's tolerated better by most people, not everyone but most. Worst cancer-best chemo.

So basically, this is not the right board for the alternative-treatment-instead-of-chemo message.

RE: Stage 4 glioblastoma cured

by I_love_Gary on Mon Apr 05, 2010 01:48 PM

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Thanks John, the voice of reason.  A good example of what you are describing is the DCA, so cheap and common that it is overlooked by the drug companies.  I hope to hear more about that, but I also understand the agony of losing a loved one and I realize how painful it would be to hear of a simple thing that might have helped, after it was too late. 

Brain tumours suck!!             DL

RE: Stage 4 glioblastoma cured

by Shemay on Tue Apr 06, 2010 06:15 PM

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John

I very much appreciate your above post and I agree with your assessment of the Cancer Tutor site as well.  I have learned a lot there.

I have been a member on this board since shortly after my diagnosis in 2004 and my intent has always been just to pass forward information that I hope will be helpful for others about the alternative protocols that have worked for me and for other cancer patients that I personally know.   It has never been to try to dissuade others from any treatment path they are one or about to embark on.  I do though encourage them to research research and do more research on all types of treatment options before accepting that the current standard of care treatment for their particular cancer is the only way to go.

I would guess that most of the posters on the alternative board have no ulterior motive either when they suggest someone try a certain supplement or herb or natural treatment that has proven effective for them.   Anyone who has been healed from cancer, especially without having to go through toxic treatments,  feels such joy and awe and gratitude it just comes naturally to want to share the good news and the possibilities with others who are suffering and unsure.   Unfortunately some members find this unacceptable, become angry and find it necessary to do whatever they can to discourage further posts on alternatives.

I am very thankful that Cancer Treatment Centers of America who are the sponsors of this website I believe, have made an alternative treatment board available for those  who wish to share,  as well as those who wish to research and learn, to come together and hopefully give each other support, hope and knowledge.  There are other cancer hospital sponsored boards who offer complementary and integrative boards but this is the only one I know of personally with a separate alternative treatment board.  Some others actually disallow any discussion about non drug related therapies.

To  I Love Gary

I quote from your message    "I also understand the agony of losing a loved one and I realize how painful it would be to hear of a simple thing that might have helped, after it was too late. "   This has given me a new understanding as to why some of the  messages I have received  have been shown such anger over my posts about Dr. Banerji... Ruta 6 http://www.pbhrfindia.org/index.php/FAQ/cat/Brain-Tumor/46.h
Dr. Burzinski,  antineoplastons  http://www.ncbi.nlm.nih.gov/pubmed/15312271 and even Dr. Jeanne Wallace   http://video.google.com/videoplay?docid=-8203376527577997655
Thanks for your insight on this.

To Smitty'sLove

It is not always necessary to choose one modality over the other.   Very often alternatives can be combined with standard of care treatment and there are many doctors doing exactly this through hospitals that offer integrative and complementary therapy.
http://www.ncbi.nlm.nih.gov/pubmed/17283738?log$=activity

Let's all strive to keep our minds open to all possibilities so that in the end, whatever the outcome, we will know in our hearts we did all that was humanly possible to save ourselves and others.

RE: Stage 4 glioblastoma cured

by Jdaaf on Wed Apr 07, 2010 01:45 AM

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Nothing but a $$$$$$$$$$$$$$$$$$$$$$$ scam taking advantage of people at the worst moments in their lives!!!  Shame on you !!!

I'm a 6yr survivor who has lost many friends over those years.  

You should be ashamed of your self!

John f.

 

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