Stage 4 glioblastoma cured

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"It's not easy being a miracle" - 15 year GBM grade 4 survivor

by askray on Sat Jun 27, 2015 05:57 AM

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My wife Diane Knerr survived for 15 years with a GBM grade VI Tumor.  She was treated at UCLA with Dr. Cloughesy.

She always said "its not easy being a miracle"  and indeed she was.  After surgery in 2000 at UCLA, radiation, and year of chemo, she was stable for 14 years.  She had a reoccurance last year  in 2014,  and went to Heaven a year later on June 3rd.  She always took control of her illness and monitored everything she did.  I believe her survival was because of her positivity, faith, and hope.  She never gave up!

I am proud of her courage and bravery in spite of a life-threatening disease.  She lived to see her children graduate from college and become successful adults.  She lived and appreciated each day and I will live my remaining days as she lived - appreciating life and always showing kindness to others - for in the end, that really is the only thing that matters.

From her husband - Ray

RE: Stage 4 glioblastoma cured

by wrburton on Sat Jun 27, 2015 05:38 PM

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I was diagnosed with a GBM stage 4 in October of 2013. Tumor was small and on surface of brain just inside skull. Surgeon got everything he could find. But never promised it wouldn't come back. Prognosis: incurable and terminal. I did the temodor and radiation. Then continued temador for another 12 months. Also, per my oncologist's suggestion, I immediately started a strict ketogenic diet.... No sugars, starches or carbs. I eat fatty meat, cheese, leafy or low carb veggies (spinach, kale, zuccini, cauliflower, brocalli, and a few small portions of low sugar fruits, like blueberries and rasberries, etc.) I also take supplements to boost my immune system (potassium, selenium, Vit C, magnesium, etc.) Stopped chemo about 5 months ago. All my MRIs (10) have been clear. Especially since I started using Cesium Chloride last summer. My Dr. doesn't believe it works. But doesn't mind my trying it... But because my tumor was on my occipital lobe where the optic nerves for my left field of vision end, I have the benefit of "seeing" how things are going. At least that's my take. When I'm off of the cesium, my vision becomes occasionally erratic. Like a mini-psychedelic episode  several times a day. for about a minute or so. When I was still doing temador 5 days a month. I only took the cesium in spurts of 7 to 14 days between chemo treatments. Now that I am off of chemo, I find that as soon as I get off the cesium, my vision starts acting up, which tells me I probably didn't do it long enough. So, this month I am taking cesium for the 33days that was recommended me by a friend who used it for his prostate cancer and has 3 other friends who have done the same successfully for their own protocols... I am taking 6x 500mg daily for a total of 3 grams per day. The cesium is absorbed by the cancer cells and raises the alkaline level to 8.0 within the cells, killing the cancer. I get another MRI is a couple of weeks and based on what I am experiencing now, I expect a perfectly clear image.

RE: "It's not easy being a miracle" - 15 year GBM grade 4 survivor

by Laceface on Sun Jun 28, 2015 10:35 PM

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On Jun 27, 2015 5:57 AM askray wrote:

My wife Diane Knerr survived for 15 years with a GBM grade VI Tumor.  She was treated at UCLA with Dr. Cloughesy.

She always said "its not easy being a miracle"  and indeed she was.  After surgery in 2000 at UCLA, radiation, and year of chemo, she was stable for 14 years.  She had a reoccurance last year  in 2014,  and went to Heaven a year later on June 3rd.  She always took control of her illness and monitored everything she did.  I believe her survival was because of her positivity, faith, and hope.  She never gave up!

I am proud of her courage and bravery in spite of a life-threatening disease.  She lived to see her children graduate from college and become successful adults.  She lived and appreciated each day and I will live my remaining days as she lived - appreciating life and always showing kindness to others - for in the end, that really is the only thing that matters.

From her husband - Ray

Hi Ray, my deepest condolences on the loss of your wife but I am happy to hear that she kept the beast at bay for 14 years, a miracle lady indeed!

Donna ((((hugs))))

RE: Stage 4 glioblastoma cured

by Melclemson on Thu Jul 02, 2015 05:44 AM

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Hi! My husband's story is similar to yours.....dx in Nov 2014, radiation and temodar for 6 weeks, and now monthly temodar for 5 days of every month.  We just met with Duke and they suggested the novocure device......we are considering.....my question to you is which chemo drug do u take?  BC docs there suggest we switch to different chemo pill since he had recent recurrence. Any more help or info you can provide would be most welcome!!!

RE: "It's not easy being a miracle" - 15 year GBM grade 4 survivor

by Melclemson on Thu Jul 02, 2015 05:49 AM

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Hi!  I am new to this board but you and your wife have renewed my hope!! Can u please tell me which chemo drug she took?  My husband was dx last Nov, had surgery, radiation, and temodar (chemo).  Continued monthly chemo for 4 months, and even added in Avastin........but now faces a rcurrence.  Docs are encouraging us to change the chemo pill..... Any info or suggestions would be most welcome!!

RE: Stage 4 glioblastoma cured

by udaykumar on Tue Dec 01, 2015 10:48 AM

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On Feb 09, 2010 3:05 AM Tortuga wrote:

I am infuriated by the original post. My husband was treated with the standard debulking surgery, radiation and temodar at UCSF in 2006 and is still alive and well. Which part of our daily routine should I give credit for the "cure"? ( Not that he's been deemed as "cured" by UCSF. They won't even say the word remission. ) Maybe it's the black coffee he drinks every morning or the bowl of ice cream he eats almost every evening...Really! We all want a cure, but it's probably not an energy drink or leafy green vegetable or we wouldn't be paying in $$ and years. I have as much hope as the rest of you. I believe that a cure for GBM is likely eventually. I hope that my husband and your loved ones can stay healthy for long enough to benefit. I want this with all my heart. 

Helo Is there any cure for my mother she is sufering with glioblastoma 4 th stage age 51 yrs

RE: "It's not easy being a miracle" - 15 year GBM grade 4 survivor

by askray on Thu Mar 24, 2016 05:26 AM

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On Jul 02, 2015 5:49 AM Melclemson wrote:

Hi!  I am new to this board but you and your wife have renewed my hope!! Can u please tell me which chemo drug she took?  My husband was dx last Nov, had surgery, radiation, and temodar (chemo).  Continued monthly chemo for 4 months, and even added in Avastin........but now faces a rcurrence.  Docs are encouraging us to change the chemo pill..... Any info or suggestions would be most welcome!!

This is Ray and I apologize for not being on this site for such a long time. After Diane's reoccurance - 14 years after diagnosis, she was put on Temodar.  This was the same chemo she used for a year in the beginning.  Her tumor actually reduced after the first two months, but sadly, I think that some tumor cells were resistant to the chemo and eventually overcame its effectiveness.  I hope this helps.  Diane did live 15 years with this disease, a miracle in itself.

RE: "It's not easy being a miracle" - 15 year GBM grade 4 survivor

by askray on Thu Mar 24, 2016 05:27 AM

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On Jun 28, 2015 10:35 PM Laceface wrote:

On Jun 27, 2015 5:57 AM askray wrote:

My wife Diane Knerr survived for 15 years with a GBM grade VI Tumor.  She was treated at UCLA with Dr. Cloughesy.

She always said "its not easy being a miracle"  and indeed she was.  After surgery in 2000 at UCLA, radiation, and year of chemo, she was stable for 14 years.  She had a reoccurance last year  in 2014,  and went to Heaven a year later on June 3rd.  She always took control of her illness and monitored everything she did.  I believe her survival was because of her positivity, faith, and hope.  She never gave up!

I am proud of her courage and bravery in spite of a life-threatening disease.  She lived to see her children graduate from college and become successful adults.  She lived and appreciated each day and I will live my remaining days as she lived - appreciating life and always showing kindness to others - for in the end, that really is the only thing that matters.

From her husband - Ray

Hi Ray, my deepest condolences on the loss of your wife but I am happy to hear that she kept the beast at bay for 14 years, a miracle lady indeed!

Donna ((((hugs))))

To Donna wherever you are - thank you for your support.

- Ray Knerr, Ventura, Ca

RE: Stage 4 glioblastoma cured

by Sanjaybawa on Tue Dec 06, 2016 04:48 PM

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Hello Jennifer My dad 81 old has been detected with glioblastoma stage IV due age factor and poor health doctor is against chemotherapy and radiation. I have read the MEDICINES that you used what was the dosage of each and frequency of the same in a day and any particular sequence is required while taking these medicine dad is bed ridden and is in ICU since 09nov16 ,how long did you take these when you stared to see results, I have already ordered for Noni juice and graviola leafs plus it's tincture it's commonly known as sour sop I am awaiting delivery Waiting to hear from you Regards Sanjay

RE: Stage 4 glioblastoma cured

by Garyyap on Sat Dec 10, 2016 03:19 AM

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On Dec 06, 2016 4:48 PM Sanjaybawa wrote:

Hello Jennifer My dad 81 old has been detected with glioblastoma stage IV due age factor and poor health doctor is against chemotherapy and radiation. I have read the MEDICINES that you used what was the dosage of each and frequency of the same in a day and any particular sequence is required while taking these medicine dad is bed ridden and is in ICU since 09nov16 ,how long did you take these when you stared to see results, I have already ordered for Noni juice and graviola leafs plus it's tincture it's commonly known as sour sop I am awaiting delivery Waiting to hear from you Regards Sanjay
Hi all my dad was diagnosed with gbm stage 4. He is 71 this year the oncology is going to do radiation n chemo therapy. According to the neurosurgeon he might not live more than 12 months I m so nervous n sad. I hope can pro long my dad life pls share with me your protocol thanks
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