Stay with local physicians or go to top hospital out of town?

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Stay with local physicians or go to top hospital out of town?

by Janet86 on Mon Jul 18, 2016 01:10 PM

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How advanced are local hospitals/treatment care? Should we start treatment locally right away, then go to top hospitals for surgery after chemo/radiation or go straight to top hospital now? Does most insurance cover this? What do you think?

Also, how fast will chemo/radiation start? Does it happen right away or will we have to wait several weeks for treatment plan?

Thanks

RE: Stay with local physicians or go to top hospital out of town?

by donsmrs on Wed Jul 20, 2016 08:38 PM

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On Jul 18, 2016 1:10 PM Janet86 wrote:

How advanced are local hospitals/treatment care? Should we start treatment locally right away, then go to top hospitals for surgery after chemo/radiation or go straight to top hospital now? Does most insurance cover this? What do you think?

Also, how fast will chemo/radiation start? Does it happen right away or will we have to wait several weeks for treatment plan?

Thanks

If you have a great local oncologist who believes that if some other place can provide care to better fight your cancer, he will ask if you want to go there, or say you need to go there, as ours does,  then it is safe to stay there until you want or need to go to a bigger facility. If, on the other hand, your local oncologist has that dread disease called, "professional proprietorism, " (whose ,main symptom includes a statement such as, " We can provide the same care you can get anywhere else, " or a similar statement), or even issues an outright refusal to give you a referral when you ask for it, RUN at top speed to the nearest big facility that has an oncologist who specializes in your cancer, and stay there. Professional Proprietorism is an ego and financially driven disease and is nearly always fatal to the patient. Also, the latest national statistics indicate that big facilities see more of many diseases and are a whopping 30% less likely to make a mistake in reading a CT or an MRI, because they see more of it. My husband's RCC return with mets was completely misdiagnosed as a "Fatty liver," in the Fall of 2011 at a local facility. 6 months later, one of those, "fat" deposits grew into an 8cm. mass. The surgeon at Mayo said the fatty liver on the 2011 CT was really renal mets. We nearly lost the battle as a result. So, you can see how my husband and I  feel about correctly read films and getting the very best care. We have an excellent local oncologist. We go to Mayo when my husband needs things our that are unavailable to our local oncologist, such as clinical studies and trials, and second opinions from a Mayo oncologist who only treats a few kinds of cancer, so is better versed in which drugs to try next. Our local onc orders a consult without batting an eye.  And we keep him in the loop. Since 2011, and through 2013, there have been 3 really big errors in reading my husband's films at the local hospital. Same group of radiologists staff all the local facilities. By the third time, we were used to it so didn't believe it and made a beeline for Jacksonville. So, we will be getting those scans and MRIs done at Mayo, even when our local oncologist orders them, even though it means a 5-hour drive each way and an overnight stay for each set of tests.  I hope this info is enlightening and beneficial. Be well, and until you are well, be smart and be safe!

RE: Stay with local physicians or go to top hospital out of town?

by Jeevie on Wed Jul 20, 2016 08:39 PM

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Sorry you are going through this. Insurance can be tricky. If you can get the recommended treatment from a local hospital, insurance is unlikely to cover you to get it at an out of town hospital if the cost is more. You would have to pay the difference, plus travel, accomodation, and food costs. 

When chemo starts depends. Some people need it to shrink the tumor before surgery. Some people get surgery then chemo. My bf did surgery last February and had chemo in May. 

RE: Stay with local physicians or go to top hospital out of town?

by Jeevie on Wed Jul 20, 2016 08:44 PM

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On Jul 20, 2016 8:30 PM packman1 wrote:

I'd look at MMS, see jimhumble.is "" target="_blank" rel="nofollow">http://jimhumble.is " target="_blank" rel="nofollow">jimhumble.is /, pau d' arco, Cancer Step Outside the Box by Ty Bollinger, cellect.org "" target="_blank" rel="nofollow">http://cellect.org " target="_blank" rel="nofollow">cellect.org , paw paw, oleander extract, ect. Cancerdefeated.com "" target="_blank" rel="nofollow">http://Cancerdefeated.com " target="_blank" rel="nofollow">Cancerdefeated.com

This information can be dangerous. Lots of people who use alternative medcines as their main treatmenthave "sucess" because they had the tumor surgically removed and don't do the adjunct chemo. They don't realize they were essentially cured the moment the tumor was removed and attribute it to the herbs, etc. It is great in conjunction with traditional treatment. 

RE: Stay with local physicians or go to top hospital out of town?

by Janet86 on Wed Jul 20, 2016 09:19 PM

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Thank you Don's Mrs.,

I appreciate your note. I will follow your advice. Mayo CLinic is one we are looking at and I will talk about referrals with the current doctor to see how she reacts.

Best Wishes to both of you,

Janet86

RE: Stay with local physicians or go to top hospital out of town?

by Janet86 on Wed Jul 20, 2016 09:22 PM

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Thank you Jeevie,

How long between diagnosis and surgery?

RE: Stay with local physicians or go to top hospital out of town?

by Janet86 on Wed Jul 20, 2016 09:26 PM

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Thanks everybody. I appreciate all of your notes and will proceed with caution.

RE: Stay with local physicians or go to top hospital out of town?

by unterelsbach on Wed Jul 20, 2016 11:38 PM

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On Jul 20, 2016 9:19 PM Janet86 wrote:

Thank you Don's Mrs.,

I appreciate your note. I will follow your advice. Mayo CLinic is one we are looking at and I will talk about referrals with the current doctor to see how she reacts.

Best Wishes to both of you,

Janet86

In addition to Mayo Clinic,  also check out Memorial Sloan Kettering.  You should also check out on-line cancer forums for advice from people with the same type of cancer you are dealing with.  Good luck to you.

RE: Stay with local physicians or go to top hospital out of town?

by Leyamichelle on Wed Jul 20, 2016 11:50 PM

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I would NOT stay with a local hometown oncologist. I would go to a hospital that dealt only with cancer & nothing else! It can make the difference between life or death...literally! We found this out with my sister. She went to what was supposed to be a very good neurologist who read her scans wrong! Glioblastoma grade 4 by the time she finally got to MD Anderson in Zhouston! Don't fool around with anywhere but a major hospital!

RE: Stay with local physicians or go to top hospital out of town?

by dave78578 on Thu Jul 21, 2016 02:06 PM

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Go to the best hospital. Most don't need referals and don't cost anymore than the local. The cancer centers such as MD Anderson are a lot better at insurance filing also. They also want to start treatment as soon as possible and you will get world class treatment everytime.

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