My Son

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My Son

by Liz5245 on Wed Jul 27, 2016 11:44 PM

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Hi my name is Liz , my 21 year old son was diagnosed with AA3 after having a surgery with little to no chance of living . He is now in his 3 week of chemo and radiation. His self esteem is very low is always tired . Doctor recommends anti depressants but I am scared . Any feed back please advice I am scared and really worried .

RE: My Son

by Dodgerblue on Thu Jul 28, 2016 11:51 AM

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Hi Liz,

    Sorry to hear your son and your family are having to go through this tough dx.  It's very normal for him to be experiencing significant fatigue during this stage of treatment.  It will improve 1-3 weeks after radiation is over.  As far as AA3, I recieved the same dx 12/8/13 and I'm still quite alive.  AA3 is rarer brand of tumor and many can act, grow, recur similiar to a grade 2(benign) tumor, while others can resemble a grade 4(GBM).  Sounds like your son is getting standard treatment which most every brain cancer survivor has gone through.  I can tell you I have met many long term survivors of AA3 and GBM!  There is every reason for you and your son to remain hopeful that he has many years ahead of him to enjoy life fully.  Stay off the internet, you won't find many stories of hope there.  Find a local brain tumor support group, which is for survivor's and caregivers.  There are many other people going the same thing, the highs and lows.  Any questions, feel free to message me.  Gotta run, MRI in Boston today, get the ole brain check up!

Dodger

RE: My Son

by Liz5245 on Thu Jul 28, 2016 03:46 PM

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I am so happy to hear that , I was worried my son is 21 and has his whole life ahead of him . He is very depressed and that probably doesn't help much either .Especially after loosing his hair . Did you loose your eyesight for a while ? Of any side of your body ? If so was it recovered ? Sorry to ask so many questions .

RE: My Son

by Dodgerblue on Fri Jul 29, 2016 02:20 PM

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I had no eyesight issues, but everyone's symptoms vary depending where their tumor was/is located.  Hairloss is standard during radition, but most if not all will grow back in the months following the end of radiation treatments.  My tumor was right Parietal lobe, so my left side was somewhat effected, before dx and after surgery, but has improved over time.  They say these symptoms will improve and the brain will continue to compensate for up to a year after surgery/treatment.  After a year, whatever deficits remain may be permanent.  Depression/shock is normal for all the newly dx'd!  I find that everyone does work their way out of it though and becomes very positive and grateful for everything they do have in life.  No need to apoligize for the questions, that's why I still check this site daily.  

Dodger

RE: My Son

by bdana on Fri Jul 29, 2016 05:53 PM

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Hi Liz,

I am considerably older than your son and I was diagnosed with AA3 in August, 2013. My tumor is inoperable and I received the standard radiation and chemo with an additional 6 months of 5/23 days on/off chemo. I had an MRI on Monday and it showed no progression. It is normal to be scared, worried, fatigued, and depressed. Anti-depressants can be a temporary aid in fighting back. My radiation oncologist told me that his goal is to get this from being a life-threatening event to being a chronic health problem like diabetes or high cholesterol.

Don't forget to breathe and eat well and take care of yourself as well as your son; his young age will be a benefit in the long run.

Belinda

RE: My Son

by Liz5245 on Fri Jul 29, 2016 06:01 PM

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Hello thank you for your reply I am indeed very scared for my son . I was scared to give him the anti depressants thought it would make it worst. Since some days he just wants to lay in bed all day . His surgery was 2 months ago it was a live threatening so as you must understand I am thankful to have my son and would do what I can to help him get through this . That's why I decided to be a part of this great site so that I can relate to others in my struggled search . God bless you hope you alway stay healthy . Thank you .

RE: My Son

by Ghassanriyad on Sat Jul 30, 2016 03:46 AM

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Please, this is regarding my son Ghassan, 30 years old, he was diagnosed as oligoasytrocytoma Grade II since February 2013, he experienced radiotherapy and CCNU as chemotherapy then surgery with a good removal of most the tumor. Unfortunately, before 4 months recurrent of the tumor is diagnosed by MRI and it became compatible with high grade glioma. He took three cycles of temodal without any response therefore, his neuroncolgist cut the temodal and advice to shift for Avastin.

What's your advice

this is the report of the nuroncologist

Unfortunately, the new MRI on 27/08/2016 shows severe progression of the disease. The tumor is much bigger, involves wide parts of the left hemisphere and is associated with severe mass effect. I do not think that there is a possibility of additional surgical treatment. 

You can try Avastin treatment, at the dose of 5 mg/kg, i.v. every 2 weeks. The treatment should be given in an experienced oncological day-care or hospital unit. We usually give 4 treatments  and repeat MRI to see the response. 

Meanwhile increase dexamethasone dose to 18 mg/day. Start immediately (if he got 6 mg in the morning give now additional 12 mg). 

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