Benign Hurthle Cell Carcinoma

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Benign Hurthle Cell Carcinoma

by Jbryant on Wed Aug 03, 2016 08:19 PM

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Hi all. I had benign Hurthle cell carcinoma and in Dec. 2015 they removed my whole thyroid. At that time I had very swollen lymph nodes and voice changes and swallowing difficulties. In April 2016, I had a 3 level cervical neck fusion. All lymph nodes on the right side are still very swollen, one on left arm and one on left side of groin. My Endo Doctor said they would disappear after 6 months. They haven't, but appear larger. Does anyone have any thoughts or advice. I really need some advice. Thank you very much.

RE: Benign Hurthle Cell Carcinoma

by butterfly501 on Thu Aug 04, 2016 08:17 AM

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Adenoma?  I'm not familiar with any type of benign carcinoma.

I'd suggest you speak with the surgeon who performed the cervical neck fusion.

What health issues does your endocrinologist manage for you?

RE: Benign Hurthle Cell Carcinoma

by Jbryant on Thu Aug 04, 2016 11:02 AM

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Thank you so much for your reply. I have read about Hurthle cell carcinoma and it can be benign or maglignant. But, my gut feeling did not believe the pathologist report because my symptoms never went away. They have only become worse. This type of thyroid cancer is very rare, only 3 % typically get this. My Endo Doctor increased my Levothyroxine to 112mcg. The cervical fusion was just another problem, but they went through my neck to perform the surgery of the 3 level fusion. Actually the MRI they did for my neck found the tumor on my thyroid. My Endo Doctor keeps saying that it was because of the two surgeries close together through my neck. I don't believe that would cause your lymph nodes to swell. I am truly concerned about this and extremely tired. The pathology report says Hurthle cell carcinoma (benign). Scary.

RE: Benign Hurthle Cell Carcinoma

by butterfly501 on Fri Aug 05, 2016 12:55 AM

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On Aug 04, 2016 11:02 AM Jbryant wrote:

Thank you so much for your reply. I have read about Hurthle cell carcinoma and it can be benign or maglignant. But, my gut feeling did not believe the pathologist report because my symptoms never went away. They have only become worse. This type of thyroid cancer is very rare, only 3 % typically get this. My Endo Doctor increased my Levothyroxine to 112mcg. The cervical fusion was just another problem, but they went through my neck to perform the surgery of the 3 level fusion. Actually the MRI they did for my neck found the tumor on my thyroid. My Endo Doctor keeps saying that it was because of the two surgeries close together through my neck. I don't believe that would cause your lymph nodes to swell. I am truly concerned about this and extremely tired. The pathology report says Hurthle cell carcinoma (benign). Scary.

Carcinoma = cancer.  Cancer = malignant.  You may want to seek clarification from your treating physician.

Hurthle cell lesions can be benign or carcinoma (malignant).

Your Tg should be followed and you should be receiving at least annual neck ultrasounds monitoring the thyroid bed and cervical lymph nodes.

What treatments have you had aside from TT?  What is your Tg history?

RE: Benign Hurthle Cell Carcinoma

by Jbryant on Fri Aug 05, 2016 02:27 AM

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Thank you for responding to my post. So far nothing has been done. That is what is so scary about all this, with the swollen lymph nodes, and swallowing issue. Endo Doctor stated they would calm down in 6 months. I have a scan set up in September and blood work. I am confused and what you stated is what I have read too. I am going to go and find last blood draw and read pathology for the 4 th time and make sure I am not losing my mind. Thank you so much. I don't think my panic is unwarranted.

RE: Benign Hurthle Cell Carcinoma

by Jbryant on Fri Aug 05, 2016 02:36 AM

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I just found the 2 nd pathology report that says final. It states Hurthle Cell with Calcification and lymphocytic thyroiditis. Much different from first report. Last blood draw July 3, Lymphs (Absolute) 3.3, Bun/Cretinine Ratio, Low 8, Sodium, low; Chloride Low, Vit. D low. That is all I can tell that had issues. Maybe she is right that they will go down?

RE: Benign Hurthle Cell Carcinoma

by butterfly501 on Fri Aug 05, 2016 05:38 AM

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It doesn't sound like you have/had thyroid cancer. 

The labs you had done are not for thyroid cancer management.  Aside from maybe the Vitamin D in the face of parathyroid damage. 

My best suggestion is to speak to your endo about your thyroid pathology and find out if you have thyroid cancer or not; not sure why they would have definitively told you this post surgery but there's not much you can do to change the past.

You also may want to contact the surgeon responsible for the neck fusion and let him know your post surgery status.

Be Well!

RE: Benign Hurthle Cell Carcinoma

by Jbryant on Fri Aug 05, 2016 09:35 AM

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Thank you so much. I went back again and in the report it us ese this term; Hurthle Cell nodule with calcification etc. I thought about calling the surgeon, but this makes me feel better by hearing what you are saying. I am just so puzzled about all my symptoms. I noticed the very first nodule or lymph node she is calling it in the exact same spot where the thyroid was. The right lymph node has been very large from the beginning. The one that is where the nodule would have been located has grown in size and making it much harder to swallow meds and food. That is why I have been worrying and reading conflicting information. She did not seem concerned and feels they are all swollen lymph nodes. My right side of my neck is much larger than the left. My GP was very concerned about this as well and found the others in my body. Do the swollen lymph nodes cause extreme tiredness and weight loss? I pray to get to the bottom of it soon. The odds of this type of cancer is only 3%. Very good odds. Thank you again so much for your help.

RE: Benign Hurthle Cell Carcinoma

by butterfly501 on Fri Aug 05, 2016 05:13 PM

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On Aug 05, 2016 9:35 AM Jbryant wrote:

Thank you so much. I went back again and in the report it us ese this term; Hurthle Cell nodule with calcification etc. I thought about calling the surgeon, but this makes me feel better by hearing what you are saying. I am just so puzzled about all my symptoms. I noticed the very first nodule or lymph node she is calling it in the exact same spot where the thyroid was. The right lymph node has been very large from the beginning. The one that is where the nodule would have been located has grown in size and making it much harder to swallow meds and food. That is why I have been worrying and reading conflicting information. She did not seem concerned and feels they are all swollen lymph nodes. My right side of my neck is much larger than the left. My GP was very concerned about this as well and found the others in my body. Do the swollen lymph nodes cause extreme tiredness and weight loss? I pray to get to the bottom of it soon. The odds of this type of cancer is only 3%. Very good odds. Thank you again so much for your help.

You need to contact your endo and ask, point blank, do I have thyroid cancer. 

If your lymph nodes are so swollen, that they are visible in the mirror and causing your problems with swallowing, something is wrong inside your body.  You possibly have a post-surgery infection.  I would suggest you contact the surgeon responsible for your latest surgery, asap.

RE: Benign Hurthle Cell Carcinoma

by Jbryant on Fri Aug 05, 2016 06:28 PM

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Thank you and I do have an appointment set up with them in August, but trying to move that up. It is the 13. I feel like you do and my body is too. I am not eating well, and in fact, eating makes me sick on my stomach. I have ate lots of Popsicles. I have pleaded with them to do something or tell me something, but the Endo continues to say they will go down and it is because of two neck surgeries so close together. I feel doubtful. The TT surgery was Dec 2015 and cervical spinal fusion in April 2016. And they have been swollen since the TT SURGERY, but have become larger instead of smaller. That is why I went to my GP to try and understand. He feels the same way that they need to do a scan now. I will see if I can get him behind me have get the scan earlier than September. I will let you know what I find out. If you think of anything that could be related to this, please let me know. Thank you again.
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