43 yo with metastatic urachal adenocarcinoma

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43 yo with metastatic urachal adenocarcinoma

by dayhawk on Sun Aug 07, 2016 01:51 AM

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I was recently diagnosed with a midline bladder dome mass that looks like urachal adenocarcinoma, biopsy pending. It also looks like I have few small lung nodules and liver mets, with one liver metastasis that's a little larger. All this info was discovered 2 days ago on CT after few months of what seemed like clinical prostatitis, and I'm just feeling depressed and hopeless right now from most things I'm reading online. I can't sleep well and my appetite is really poor. Found this great discussion board to find some hope. Bad news is that I'm young, but I'm trying to think that because I'm young without comorbidities I can fight longer and harder. I have a family with young kids who I want to be with for as long as possible. If there are any encouraging anecdotes from someone who was in similar shoes, please please share.

RE: 43 yo with metastatic urachal adenocarcinoma

by Catalina2 on Mon Aug 22, 2016 09:40 PM

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On Aug 07, 2016 1:51 AM dayhawk wrote:

I was recently diagnosed with a midline bladder dome mass that looks like urachal adenocarcinoma, biopsy pending. It also looks like I have few small lung nodules and liver mets, with one liver metastasis that's a little larger. All this info was discovered 2 days ago on CT after few months of what seemed like clinical prostatitis, and I'm just feeling depressed and hopeless right now from most things I'm reading online. I can't sleep well and my appetite is really poor. Found this great discussion board to find some hope. Bad news is that I'm young, but I'm trying to think that because I'm young without comorbidities I can fight longer and harder. I have a family with young kids who I want to be with for as long as possible. If there are any encouraging anecdotes from someone who was in similar shoes, please please share.

how are you now ? I have a simalar story. I had a grim prognosis from MD Anderson so I went to Sloan Kettering and I am doing ok now.

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