looking for friends to talk to

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RE: looking for friends to talk to

by davezuro on Fri Apr 20, 2018 01:00 PM

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Even if the performance properties of lunasin isn't 100% clear, wouldn't it still be worth it to consume to provide some benefit?  I have met and spoken with dozens of folks who decided to use this and their condition has not gotten any worse, and in some cases thrived!  Stability and peace of mind are priceless when living everyday wondering if your condition is going to take a turn for the worse.

https://www.ncbi.nlm.nih.gov/pubmed/15730231

https://www.ncbi.nlm.nih.gov/pubmed/19056440

https://www.ncbi.nlm.nih.gov/pubmed/25627564

RE: looking for friends to talk to

by tomatoman on Fri Apr 20, 2018 03:23 PM

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JimGray

You gotta try heat therapy, which is where I am at now. My tumor pains in spine and back are disappearing over the past few weeks.  It seems so effective, I no longer take V8 juice or other lycopenes. Just apply heat (110F) to the area of concern. If it is in the pelvis then I guess that means hot tub or sauna. I use steel weight that I boil in water, then cool to under 150F, and lie down on it on the areas of pain in my back and spine.

Mike (tomatoman) 

RE: looking for friends to talk to

by shellie12 on Sat Apr 21, 2018 12:23 AM

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On Apr 20, 2018 11:12 AM JimGray wrote:

Hi,

  Glad to be able to talk with you. I also was diagonosed with stage 4 about 2 years ago and was given 1-3 years. Obviously they were wrong. My urologist/oncologist has been very agressive in my treatment and I feel pretty good

  I have been able  to talk to my wife and children and they know that I am living on borrowed time. My PSA is starting to take off again, doubled from dec to jan, almost doubled from jan to feb, etc. It appears that my hormone meds (Xtandi) are not working as well as they did. Friends and family visit from across the country which perks up my spirits while they are here.

   Drop me a line and say what's on your mind.

Hang in there.

JimGray

hiya sorry to hear about the psa  what was it last blood test. my uncle  is the same his started to rise as well adn they put hiim on bicbicalutamide  which he was on at the start for a week before starting the zoladex injection , have they added anything more to you r treatment  i also give him ip-6 which he is one 5/6 weeks now  and am not what or of it is doing anything but i do know that in that time he has not had one infection  he has a cathiter in ,and its gives a lot of bother at times  in the mean time goodluck and am glad to see ur keeping ur head up 

RE: looking for friends to talk to

by Himads on Wed May 02, 2018 05:11 PM

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Hi J,

I'm sorry to hear you are going through all this. It is a tough situation. If no one has mentioned this to you, you may ask your urology clinic if they or somewhere in your area have a prostate cancer support group. Some of the groups are very good; some are less than desirable. One of these groups is a great place to get support and hear the experiences of others who are going through similar situations. Best of luck to you.

RE: looking for friends to talk to

by DeanGlaser on Thu May 03, 2018 07:59 PM

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On Jun 11, 2017 10:46 PM Nora59 wrote:

I feel it is also very healthy to let go, and cry your heart out!!It is a very healthy release, and good for your soul. I hope your family will learn to be more supportive and caring. Nora

No one wants a doctor to tell you you have prostate cancer. However when the stages 2-? level occur and the prostate cancer cells decide to wander off and set up home in your bones and organs, then your options for treatment become limited.

Yes, asking support from your wife, family, or friends would be nice, but the topic of cancer is taboo and feared by all of us. Why? It just is.Talkin g about "your" cancer can't cure it or make it go away. Family/friends can support the cancer patient, but they're limited in what you can do to make it better. Talk is free, but does not cure the cancer in the person you love. The statement "Cancer will progress unless aggressive conventional treatment occurs-chemo or radiation" is the mantra of the system. The conventional system won't allow hollistic, herbal treatments, or old school treaments which were shunned by the "industry" decades ago.

When your Urologist flat tells you you'll never reach your normal family's lifespan, you gasp in shock and immediately question life and longevity. Will this summer's trip be the last trip I take? Will thre trip to Hawaii be the last rip I take? These are the thoughts all of us have had and will continue to dwell on. We must escape the fears because STRESS is our enemy. Find peace and calm the anxiety. Stress is food for cancer-stop feeding it!

The level of battle you take to live longer and cope with this cancer is based on your level of surviving. I choose to fight for every quality day of life no matter if my family or friends support me.

You personally have to choose the type of treatment conventional or nonconventional. I'm not doing chemo or radiation for my stage-4, but taking protocel-23. I've been on it for 9 months and Ijust had my organs and bone scans and waiting for the results.

As a fellow prostate cancer patient, I can personally say I know your anxieties and pains. If those you had hoped for support let you down, don't hesitate to talk to all of us here. And yes-God Bless!  Dean

RE: looking for friends to talk to

by compaid on Thu Oct 25, 2018 03:45 PM

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Some say very hot chilli ( habanero) kills cancer cells taken with tomato juice helps if its spread. Plus Turmeric extract Curcumin (not Turmeric but the active ingrediant). Worth running it alongside.

RE: looking for friends to talk to

by jonbo49 on Wed Mar 13, 2019 03:34 PM

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I deffinately agree with what you said, I too was looking for a forum to talk to other prostate cancer fighters, don't know if this forum is active alot of out of date reply's.My name is Bobby and I'm 63, was told by urologist in 2012 after byopsy I had stage 4 prostate cancer, an that chemo or radiation would do no good. so i've been on lupron since, which was told it would after time stop working, I too take it one day at a time, since the cancer has spread to my bones, back, pelvic and other places, was recently told I was very fortunate to still be alive, my gleason scale is a 9, I wear a cap that says, God is in control, and thats the way i feel, I would love to talk to anyone with our every day life and encorage each other to live every day an enjoy it

RE: looking for friends to talk to

by tomatoman on Wed Mar 13, 2019 05:06 PM

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I've had prostate  cancer since 2008 at age 62, over ten years ago, and it metastacized in 2012, now into seventh year of Stage 4.  I've gone through three hormone therapy sessions but none since June 2016.  Now my PSA is rising again, up to 20.8 now and accelerating it seems.  I've tried a lot of things which I think slowed it down but what seemed to  work best was lycopenes and heat.  In spite of those the PSA keeps rising, so it might be that things slow it down like diet, and of course hormone therapy, but nothing stops it completely. Some day they'll find a cure.

I'll have an MRI body scan and pelvic scan next week, but scans so far have not shown much in terms of tumors, (although I can feel them in back lymph nodes), except that in fact the last scan I had detected a 2" cancerous polyp in my sigmoid colon which was removed in January.  Colon cancer tumors emit markers called CEA which is detectable with a blood test similar to PSA test for prostate cancer.  But don't be confused, they are two different kinds of cancer.  I have to wonder if the colon cancer was caused by the radiation therapy from prostate cancer, since the location of the polyp was pretty much in the same spot where a tattoo mark was placed on my abdomen fas a rad therapy locator.  

So it might be my imagination or it might be true that my prostate cancer metasticized due to the biopsy, and the colon cancer was caused by the radiation therapy.  Nobody will ever know but it's what I think now.

And in spite of it all, I have to recognize that life has been great for me and I am still happy and healthy, but on borrowed time, but aren't we all?

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