Anaplastic Astrocytoma Survivors?

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RE: Anaplastic Astrocytoma Survivors?

by Ghog43 on Sun Oct 30, 2016 11:21 PM

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Thank you for your kind words and support. My doctors still insist on annual MRI's so I will definitely keep this site posted of any further developments.

RE: Anaplastic Astrocytoma Survivors?

by jonjt488 on Sun Oct 30, 2016 11:33 PM

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That sounds like a good idea.  It's on the safe side, definitely.  Best of luck to you though.  I hope you can live out a normal life!

God bless.

RE: Anaplastic Astrocytoma Survivors?

by huxley2006 on Mon Oct 31, 2016 08:18 PM

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Hello Ghog,

24 years (or something like that) 

Started as as a grade 2 PXA. Progressed a bit since then  (GBM or anaplastic astrocytoma depending on the path you read) and have had a couple of reoccurrences and surgeries but so far so good. Clean scans since 2010

Thanks

Hux...

RE: Anaplastic Astrocytoma Survivors?

by Ghog43 on Tue Nov 01, 2016 01:42 AM

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On Oct 31, 2016 8:18 PM huxley2006 wrote:

Hello Ghog,

24 years (or something like that) 

Started as as a grade 2 PXA. Progressed a bit since then  (GBM or anaplastic astrocytoma depending on the path you read) and have had a couple of reoccurrences and surgeries but so far so good. Clean scans since 2010

Thanks

Hux...

THAT is AWESOME! Good for you!

RE: Anaplastic Astrocytoma Survivors?

by JeannaO on Tue Nov 08, 2016 06:52 PM

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Much congratulations on your survival! My son was diagnosed with Stage 3 anaplastic astrocytoma in July 2013 and was given 12-48 months to live. His tumor was the size of a large baked potato. He is at 3 years 4 months with no recurrance and is being treated at Duke. You have given me such hope!

RE: Anaplastic Astrocytoma Survivors?

by JeannaO on Tue Nov 08, 2016 06:53 PM

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Please see my post! Thanks!

RE: Anaplastic Astrocytoma Survivors?

by FordLady on Tue Nov 08, 2016 10:13 PM

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I also want to hear of survivors My husband (the survivor) refuses to join this group but will welcome positive stories from me He needs to hear of other survivors Congrats & stay fighting How many of you went back to work? I've read that those who stay active & doing their regular activities have a better success rate Anyone else ?

RE: Anaplastic Astrocytoma Survivors?

by Ghog43 on Tue Nov 08, 2016 11:01 PM

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On Nov 08, 2016 10:13 PM FordLady wrote:

I also want to hear of survivors My husband (the survivor) refuses to join this group but will welcome positive stories from me He needs to hear of other survivors Congrats & stay fighting How many of you went back to work? I've read that those who stay active & doing their regular activities have a better success rate Anyone else ?
I went back to work while I was still in treatment (chemo & radiation). Had to ride the bus and I wore a hat when my hair fell out. Which, by the way, was ONLY from the radiation, for me. The chemo I had (BCNU) did NOT causes ANY hair loss. The radiation, however, caused permanent hair loss! Most people don't know that because I've perfected the comb-over ;-)

RE: Anaplastic Astrocytoma Survivors?

by Dodgerblue on Wed Nov 09, 2016 01:33 AM

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Clear MRI today, celebrate 3 years next month recurrence free.

RE: Anaplastic Astrocytoma Survivors?

by Cayman on Tue Mar 21, 2017 11:43 PM

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I am also interested in tracking long term survivors.

I am a few months away from the 20 year mark with no reccurance.

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