Brain Surgery for Glioma in Right Frontal Lobe

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Brain Surgery for Glioma in Right Frontal Lobe

by Fleming on Wed Dec 28, 2016 03:53 PM

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Would like to hear from patients or care givers who have had brain surgery for Glioma Grade Two in Right Frontal Lobe.  What to expect after surgery?  Tips of any thing we should have on hand - type of pillows, etc.   What has worked for someone who has been through it.   Thanks.

RE: Brain Surgery for Glioma in Right Frontal Lobe

by MrBrightside on Mon Jan 02, 2017 04:53 PM

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Hello-

I've had surgery on my left frontal lobe twice now - once in 2010 and again in 2015.  First thing I would say is every patient and every surgery is different as a whole.  So it is tough to say exactly what to expect.  But basically I'm pretty sure I remember sleeping propped up a bit the first week or two after surgery to relieve some of the pressure.  I don't think I would sleep all the way through a night but rather would get up at times and then go back to sleep as well as nap during the day.  A reclining chair works well.  You want to keep yourself moving though at some level and try to ease back into a daily routine even if it is just getting short walks in or moving about the house.  I remember having a very weird sense of time especially after the first surgery.  Time either flew by or went very slowly.  Concentration and focus was really bad but it comes back slowly in time - by that I mean it could be weeks or months.  I can remember at times scrolling through the guide on the tv for what seemed like forever because I couldn't make a decision on what to watch - but I also remember not realizing it at the time.  Recovery times vary.  I took about 3 months off from work after my first surgery and maybe a little less after my second.  I had also had pretty major seizures in the times leading up to each and I think it took me longer to mentally recover from those than the surgeries themselves.  So without them, recovery could be faster.  Everyone is different though!!  

Be vigilant about follow up MRI's in the months and years after surgery.  Do not blow them off and if your doctor does not think they are necessary then find another doctor.

RE: Brain Surgery for Glioma in Right Frontal Lobe

by PineHillGirl on Mon Jan 02, 2017 06:13 PM

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I am a 17 year survivor of a GBM grade 4.  It was small plus I had an MRI guided surgery. I believe that this is what really gave me that boost.  My tumor was in my right temporal lobe.  Different parts of the brain to different things.  Mine are mood and behavior.  I have said for 17 years and still do.  "Don't piss me Off, It gets UGLY'  I also couldn't cry for a few months, they wouldn't come out.   Trying to get together with friends really helped keep a smile on my face.  Also, go on-line and search - David M Bailey,  He had radical radiation and was on the TV program 48 hours.  He wrote many songs which are available on CD.  I don't remember how I slept.  I did get a perscription to help me sleep.  I gave it to my husband to keep it hidden from me.  I was also afraid of what could have happened if I had it in my possession. 

RE: Brain Surgery for Glioma in Right Frontal Lobe

by MrBrightside on Mon Jan 02, 2017 07:23 PM

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PineHillGirl reminded me of something else about my recovery after my first surgery.  I am normally really easy going and nice but I suddenly turned into a bit of a jerk in the few weeks following my first surgery.  I typically filter everything I say about 3 times before it comes out of my mouth, but suddenly I had no filter at all and was being mean for no clear reason.  My two girls were only 8 & 13 at the time.  I don't think we figured it out until later on, but we are now quite sure it was the steroids I was on to reduce brain swelling and then coming off of them too fast instead of tapering off.  Going into my second surgery my wife was sure to mention it to my doctor and it wasn't as big a deal.  We joke about it now but it wasn't a joking matter back when it was going on.  Coming of steroids quickly can really mess with you.

RE: Brain Surgery for Glioma in Right Frontal Lobe

by cfcej111 on Mon Aug 20, 2018 05:31 AM

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Did you have resection surgery? If so, how are you doing now?o
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